How much public activity do you limit with your newborn with CF

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wiltonnh

New member
Thanks again for the info-I have a feeling that my newborn is not doing well on Ultrase-although he is doing well with weight gain he seems so uncomfortable during bowel movements-which still contain some mucus. Is it possible to have normal stools if you find right enzyme balance or is there always a touch of mucus, etc in movements.

This site is dangerous I keep walking by computer and stopping to check in-my chores are way behind today. Who wants to do laundry anyways-for me it is the worse house chore going.
 
W

wiltonnh

New member
Thanks again for the info-I have a feeling that my newborn is not doing well on Ultrase-although he is doing well with weight gain he seems so uncomfortable during bowel movements-which still contain some mucus. Is it possible to have normal stools if you find right enzyme balance or is there always a touch of mucus, etc in movements.

This site is dangerous I keep walking by computer and stopping to check in-my chores are way behind today. Who wants to do laundry anyways-for me it is the worse house chore going.
 
K

ktsmom

New member
Our DD's stools are not constistantly normal but they are SO much different than they were pre-diagnosis (at age 3 years and 3 months). So I would venture to say that YES enzymes can correct to a close semblance of normal.

By the way, graduate yourself on up to the Families section <img src="i/expressions/face-icon-small-wink.gif" border="0"> and post a new thread on the enzyme balance question, if you would like. The Newly Diagnosed section doesn't get the same traffic, I don't think.

For me, some days are better than others, as far as spending time here versus doing what I'm supposed to be doing! I think we all go through phases where sometimes we need a lot more connection to people that understand what we are going through.
 
K

ktsmom

New member
Our DD's stools are not constistantly normal but they are SO much different than they were pre-diagnosis (at age 3 years and 3 months). So I would venture to say that YES enzymes can correct to a close semblance of normal.

By the way, graduate yourself on up to the Families section <img src="i/expressions/face-icon-small-wink.gif" border="0"> and post a new thread on the enzyme balance question, if you would like. The Newly Diagnosed section doesn't get the same traffic, I don't think.

For me, some days are better than others, as far as spending time here versus doing what I'm supposed to be doing! I think we all go through phases where sometimes we need a lot more connection to people that understand what we are going through.
 
K

ktsmom

New member
Our DD's stools are not constistantly normal but they are SO much different than they were pre-diagnosis (at age 3 years and 3 months). So I would venture to say that YES enzymes can correct to a close semblance of normal.

By the way, graduate yourself on up to the Families section <img src="i/expressions/face-icon-small-wink.gif" border="0"> and post a new thread on the enzyme balance question, if you would like. The Newly Diagnosed section doesn't get the same traffic, I don't think.

For me, some days are better than others, as far as spending time here versus doing what I'm supposed to be doing! I think we all go through phases where sometimes we need a lot more connection to people that understand what we are going through.
 
D

DEES4

New member
I was in your shoes three years ago when my 4th child was born and diagnosed with cf. We also have three other children with no cf. I know what a shock it is....all of us parents have been there. To be honest I don't think I have found that happy medium when it comes to winter and all the nasty germs, colds, viruses, ect.... I still tend to try and keep my 3 year old at home as much as possible during the winter months. I take him out in public only when it is absolutely necessary. I am not saying this is the way to be...I know I am way to paranoid...it's just that I cant really help it. I just don't want him sick. I know it is part of being human to get sick every now and then but I do all I can to prevent it. He does actually have a cold right now.....there is only so much you can do when your child has three other siblings to help spread the germs!! Anyway the good news is that winter is quickly coming to an end!!
Carrie
Mom to Daniel (w/o cf), Emily (w/o cf), Ethan (w/o cf) and Sawyer (cf)
 
D

DEES4

New member
I was in your shoes three years ago when my 4th child was born and diagnosed with cf. We also have three other children with no cf. I know what a shock it is....all of us parents have been there. To be honest I don't think I have found that happy medium when it comes to winter and all the nasty germs, colds, viruses, ect.... I still tend to try and keep my 3 year old at home as much as possible during the winter months. I take him out in public only when it is absolutely necessary. I am not saying this is the way to be...I know I am way to paranoid...it's just that I cant really help it. I just don't want him sick. I know it is part of being human to get sick every now and then but I do all I can to prevent it. He does actually have a cold right now.....there is only so much you can do when your child has three other siblings to help spread the germs!! Anyway the good news is that winter is quickly coming to an end!!
Carrie
Mom to Daniel (w/o cf), Emily (w/o cf), Ethan (w/o cf) and Sawyer (cf)
 
D

DEES4

New member
I was in your shoes three years ago when my 4th child was born and diagnosed with cf. We also have three other children with no cf. I know what a shock it is....all of us parents have been there. To be honest I don't think I have found that happy medium when it comes to winter and all the nasty germs, colds, viruses, ect.... I still tend to try and keep my 3 year old at home as much as possible during the winter months. I take him out in public only when it is absolutely necessary. I am not saying this is the way to be...I know I am way to paranoid...it's just that I cant really help it. I just don't want him sick. I know it is part of being human to get sick every now and then but I do all I can to prevent it. He does actually have a cold right now.....there is only so much you can do when your child has three other siblings to help spread the germs!! Anyway the good news is that winter is quickly coming to an end!!
Carrie
Mom to Daniel (w/o cf), Emily (w/o cf), Ethan (w/o cf) and Sawyer (cf)
 
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