how often do you miss treatments?

[cdale613]

I'm sorry, but you and I strongly disagree on some fundamental ideas of happiness, health, and how to live life with CF.

What are your goals? What are your responsibilities? What are your dreams?

I'm engaged to be married in 3 months. I could not ask my fiance to marry me and risk the heartache of losing me to CF if I wasn't willing to give 110% in keeping myself healthy. I'm 27. My FEV1 baseline is still 90 percent. That makes it possible to look optimistically to the future and consider children (we don't care what the board thinks btw). Ask my fiance the difference between 45 and 55. Its worth it, and to suggest that its ok compromise any of that for 2 joints a year or getting drunk every so often is just sad.

I like to exercise. I am scared of not being able to do the things I love to do - biking, hiking, running, etc. Compliance with my meds is nothing compared to what I'd be giving up if I couldn't do these activities.

I work full time, I have a Masters degree. I'm not done achieving, and I'm not willing to sit around watching my life pass me by just because I have CF. I took the LSAT yesterday. I am competing in a half-ironman triathlon in three weeks. I'm biking 150 miles for the CFF in 5 weeks. I'm going on my honeymoon to Croatia in 14 weeks. I'm living a full life, and compliance with my meds makes that possible.

The guilt and shame I would feel if I was unable to provide for my wife and family; lost the ability to do the activities I love doing; lost the drive and ability to achieve... while knowing that I hadn't been fully compliant would be more than I could handle. Now, CF is chronic... I understand that. I can live with myself if I know I've done everything I can do to stave it off as long as possible.

100 percent compliance with my health care makes everything else I do possible. The 3-4 hours I spend taking care of myself each day is a small price to pay for the other 20.

And seriously.... you do realize you can do other things while you inhale meds through a neb... right? Be it LSAT prep tests, reading, watching TV, being online... a lot of it is time you would spend sitting anyway.

Don't try to justify your lack of compliance. Set goals that necessitate full compliance, and achieve them. That is how you live a full live with CF.

Sorry, but there no shortcuts. You get one chance at life. No do-overs. Don't make foolish decisions that appear to gratify you in the short-term that sacrifice your long-term health and happiness. Its really not worth it.

Chris

27 m w/CF

 

[cdale613]

I'm sorry, but you and I strongly disagree on some fundamental ideas of happiness, health, and how to live life with CF.

What are your goals? What are your responsibilities? What are your dreams?

I'm engaged to be married in 3 months. I could not ask my fiance to marry me and risk the heartache of losing me to CF if I wasn't willing to give 110% in keeping myself healthy. I'm 27. My FEV1 baseline is still 90 percent. That makes it possible to look optimistically to the future and consider children (we don't care what the board thinks btw). Ask my fiance the difference between 45 and 55. Its worth it, and to suggest that its ok compromise any of that for 2 joints a year or getting drunk every so often is just sad.

I like to exercise. I am scared of not being able to do the things I love to do - biking, hiking, running, etc. Compliance with my meds is nothing compared to what I'd be giving up if I couldn't do these activities.

I work full time, I have a Masters degree. I'm not done achieving, and I'm not willing to sit around watching my life pass me by just because I have CF. I took the LSAT yesterday. I am competing in a half-ironman triathlon in three weeks. I'm biking 150 miles for the CFF in 5 weeks. I'm going on my honeymoon to Croatia in 14 weeks. I'm living a full life, and compliance with my meds makes that possible.

The guilt and shame I would feel if I was unable to provide for my wife and family; lost the ability to do the activities I love doing; lost the drive and ability to achieve... while knowing that I hadn't been fully compliant would be more than I could handle. Now, CF is chronic... I understand that. I can live with myself if I know I've done everything I can do to stave it off as long as possible.

100 percent compliance with my health care makes everything else I do possible. The 3-4 hours I spend taking care of myself each day is a small price to pay for the other 20.

And seriously.... you do realize you can do other things while you inhale meds through a neb... right? Be it LSAT prep tests, reading, watching TV, being online... a lot of it is time you would spend sitting anyway.

Don't try to justify your lack of compliance. Set goals that necessitate full compliance, and achieve them. That is how you live a full live with CF.

Sorry, but there no shortcuts. You get one chance at life. No do-overs. Don't make foolish decisions that appear to gratify you in the short-term that sacrifice your long-term health and happiness. Its really not worth it.

Chris

27 m w/CF

 

[cdale613]

I'm sorry, but you and I strongly disagree on some fundamental ideas of happiness, health, and how to live life with CF.

What are your goals? What are your responsibilities? What are your dreams?

I'm engaged to be married in 3 months. I could not ask my fiance to marry me and risk the heartache of losing me to CF if I wasn't willing to give 110% in keeping myself healthy. I'm 27. My FEV1 baseline is still 90 percent. That makes it possible to look optimistically to the future and consider children (we don't care what the board thinks btw). Ask my fiance the difference between 45 and 55. Its worth it, and to suggest that its ok compromise any of that for 2 joints a year or getting drunk every so often is just sad.

I like to exercise. I am scared of not being able to do the things I love to do - biking, hiking, running, etc. Compliance with my meds is nothing compared to what I'd be giving up if I couldn't do these activities.

I work full time, I have a Masters degree. I'm not done achieving, and I'm not willing to sit around watching my life pass me by just because I have CF. I took the LSAT yesterday. I am competing in a half-ironman triathlon in three weeks. I'm biking 150 miles for the CFF in 5 weeks. I'm going on my honeymoon to Croatia in 14 weeks. I'm living a full life, and compliance with my meds makes that possible.

The guilt and shame I would feel if I was unable to provide for my wife and family; lost the ability to do the activities I love doing; lost the drive and ability to achieve... while knowing that I hadn't been fully compliant would be more than I could handle. Now, CF is chronic... I understand that. I can live with myself if I know I've done everything I can do to stave it off as long as possible.

100 percent compliance with my health care makes everything else I do possible. The 3-4 hours I spend taking care of myself each day is a small price to pay for the other 20.

And seriously.... you do realize you can do other things while you inhale meds through a neb... right? Be it LSAT prep tests, reading, watching TV, being online... a lot of it is time you would spend sitting anyway.

Don't try to justify your lack of compliance. Set goals that necessitate full compliance, and achieve them. That is how you live a full live with CF.

Sorry, but there no shortcuts. You get one chance at life. No do-overs. Don't make foolish decisions that appear to gratify you in the short-term that sacrifice your long-term health and happiness. Its really not worth it.

Chris

27 m w/CF

 

[cdale613]

I'm sorry, but you and I strongly disagree on some fundamental ideas of happiness, health, and how to live life with CF.

What are your goals? What are your responsibilities? What are your dreams?

I'm engaged to be married in 3 months. I could not ask my fiance to marry me and risk the heartache of losing me to CF if I wasn't willing to give 110% in keeping myself healthy. I'm 27. My FEV1 baseline is still 90 percent. That makes it possible to look optimistically to the future and consider children (we don't care what the board thinks btw). Ask my fiance the difference between 45 and 55. Its worth it, and to suggest that its ok compromise any of that for 2 joints a year or getting drunk every so often is just sad.

I like to exercise. I am scared of not being able to do the things I love to do - biking, hiking, running, etc. Compliance with my meds is nothing compared to what I'd be giving up if I couldn't do these activities.

I work full time, I have a Masters degree. I'm not done achieving, and I'm not willing to sit around watching my life pass me by just because I have CF. I took the LSAT yesterday. I am competing in a half-ironman triathlon in three weeks. I'm biking 150 miles for the CFF in 5 weeks. I'm going on my honeymoon to Croatia in 14 weeks. I'm living a full life, and compliance with my meds makes that possible.

The guilt and shame I would feel if I was unable to provide for my wife and family; lost the ability to do the activities I love doing; lost the drive and ability to achieve... while knowing that I hadn't been fully compliant would be more than I could handle. Now, CF is chronic... I understand that. I can live with myself if I know I've done everything I can do to stave it off as long as possible.

100 percent compliance with my health care makes everything else I do possible. The 3-4 hours I spend taking care of myself each day is a small price to pay for the other 20.

And seriously.... you do realize you can do other things while you inhale meds through a neb... right? Be it LSAT prep tests, reading, watching TV, being online... a lot of it is time you would spend sitting anyway.

Don't try to justify your lack of compliance. Set goals that necessitate full compliance, and achieve them. That is how you live a full live with CF.

Sorry, but there no shortcuts. You get one chance at life. No do-overs. Don't make foolish decisions that appear to gratify you in the short-term that sacrifice your long-term health and happiness. Its really not worth it.

Chris

27 m w/CF

 

[Ricky123]

cdale i take on board on what ya saying but still have to disagree with you and still maintain my argument of living a little bit what may work for you will not work for me ive had this discussion with my mates and they agree with me ie reminds me a bit of people at school who done everything by the book ate right ,never smoked ,never got drunk yes i use to do everthing by the book as well in fact i was a proper mummys boy and yes i use to run every day ,use to be in my football teams(but my health declined anyway even though i was doing everything right and i couldent keep it up as i got breathless) i think you have got to get the right balance but i still maintain what works for you may not work for me i genuinly do feel better within myself since i relax more its not fooling myself its finding what works for me and i feel better phycholigically i think thats the crux over the physical benefits whatever way you look at it

 

[Ricky123]

cdale i take on board on what ya saying but still have to disagree with you and still maintain my argument of living a little bit what may work for you will not work for me ive had this discussion with my mates and they agree with me ie reminds me a bit of people at school who done everything by the book ate right ,never smoked ,never got drunk yes i use to do everthing by the book as well in fact i was a proper mummys boy and yes i use to run every day ,use to be in my football teams(but my health declined anyway even though i was doing everything right and i couldent keep it up as i got breathless) i think you have got to get the right balance but i still maintain what works for you may not work for me i genuinly do feel better within myself since i relax more its not fooling myself its finding what works for me and i feel better phycholigically i think thats the crux over the physical benefits whatever way you look at it

 

[Ricky123]

cdale i take on board on what ya saying but still have to disagree with you and still maintain my argument of living a little bit what may work for you will not work for me ive had this discussion with my mates and they agree with me ie reminds me a bit of people at school who done everything by the book ate right ,never smoked ,never got drunk yes i use to do everthing by the book as well in fact i was a proper mummys boy and yes i use to run every day ,use to be in my football teams(but my health declined anyway even though i was doing everything right and i couldent keep it up as i got breathless) i think you have got to get the right balance but i still maintain what works for you may not work for me i genuinly do feel better within myself since i relax more its not fooling myself its finding what works for me and i feel better phycholigically i think thats the crux over the physical benefits whatever way you look at it

 

[Ricky123]

cdale i take on board on what ya saying but still have to disagree with you and still maintain my argument of living a little bit what may work for you will not work for me ive had this discussion with my mates and they agree with me ie reminds me a bit of people at school who done everything by the book ate right ,never smoked ,never got drunk yes i use to do everthing by the book as well in fact i was a proper mummys boy and yes i use to run every day ,use to be in my football teams(but my health declined anyway even though i was doing everything right and i couldent keep it up as i got breathless) i think you have got to get the right balance but i still maintain what works for you may not work for me i genuinly do feel better within myself since i relax more its not fooling myself its finding what works for me and i feel better phycholigically i think thats the crux over the physical benefits whatever way you look at it

 

[Ricky123]

cdale i take on board on what ya saying but still have to disagree with you and still maintain my argument of living a little bit what may work for you will not work for me ive had this discussion with my mates and they agree with me ie reminds me a bit of people at school who done everything by the book ate right ,never smoked ,never got drunk yes i use to do everthing by the book as well in fact i was a proper mummys boy and yes i use to run every day ,use to be in my football teams(but my health declined anyway even though i was doing everything right and i couldent keep it up as i got breathless) i think you have got to get the right balance but i still maintain what works for you may not work for me i genuinly do feel better within myself since i relax more its not fooling myself its finding what works for me and i feel better phycholigically i think thats the crux over the physical benefits whatever way you look at it

 

[Ricky123]

cdale i take on board on what ya saying but still have to disagree with you and still maintain my argument of living a little bit what may work for you will not work for me ive had this discussion with my mates and they agree with me ie reminds me a bit of people at school who done everything by the book ate right ,never smoked ,never got drunk yes i use to do everthing by the book as well in fact i was a proper mummys boy and yes i use to run every day ,use to be in my football teams(but my health declined anyway even though i was doing everything right and i couldent keep it up as i got breathless) i think you have got to get the right balance but i still maintain what works for you may not work for me i genuinly do feel better within myself since i relax more its not fooling myself its finding what works for me and i feel better phycholigically i think thats the crux over the physical benefits whatever way you look at it

 

[CyndiW555]

Ricky123 , You said you are 18 right? well, I remember that. I didn't have cf then. Dr. told me about it when I was 24. ( thats how I think about it). Yes you are young and free and feelin fine! no you think goin' till 44 or 45 is ok and the most you might get anyway is 55? Well, I am now 42 and let me tell you 44 is not ok. I WANT 70, I'm hoping for 60. Just think of all the fun I can have!!! I am a 9 I do all the inhailing things the dr. wants. I also do all the pills the dr. wants. I don't do the vest or chest pt. I don't like them. I work out. I know its not the same and now at this age I am comming to terms with doing the vest. I read about it a lot on here and people seem to like it. (Mine is gathering dust as we speak).

FUN FUN FUN that is what you are talking about in your post. All we are saying is you can have even more fun the more meds you do. REALLY, just try it. Do your morning and evening stuff. You can't tell me you don't know your going out later and don't have time Nebs don't take that long. look into different kinds of cups. Stop talking to your buddies about this stuff and start listening to your lungs. Your head will tell you to skip it but your bod will tell you how wrong you are. You are 18 now and need to live YOUR life not the life of "wanting to fit in". Look at your buddies, seriously, do they look or act like they "fit in"???lol.

Good luck to you.

 

[CyndiW555]

Ricky123 , You said you are 18 right? well, I remember that. I didn't have cf then. Dr. told me about it when I was 24. ( thats how I think about it). Yes you are young and free and feelin fine! no you think goin' till 44 or 45 is ok and the most you might get anyway is 55? Well, I am now 42 and let me tell you 44 is not ok. I WANT 70, I'm hoping for 60. Just think of all the fun I can have!!! I am a 9 I do all the inhailing things the dr. wants. I also do all the pills the dr. wants. I don't do the vest or chest pt. I don't like them. I work out. I know its not the same and now at this age I am comming to terms with doing the vest. I read about it a lot on here and people seem to like it. (Mine is gathering dust as we speak).

FUN FUN FUN that is what you are talking about in your post. All we are saying is you can have even more fun the more meds you do. REALLY, just try it. Do your morning and evening stuff. You can't tell me you don't know your going out later and don't have time Nebs don't take that long. look into different kinds of cups. Stop talking to your buddies about this stuff and start listening to your lungs. Your head will tell you to skip it but your bod will tell you how wrong you are. You are 18 now and need to live YOUR life not the life of "wanting to fit in". Look at your buddies, seriously, do they look or act like they "fit in"???lol.

Good luck to you.

 

[CyndiW555]

Ricky123 , You said you are 18 right? well, I remember that. I didn't have cf then. Dr. told me about it when I was 24. ( thats how I think about it). Yes you are young and free and feelin fine! no you think goin' till 44 or 45 is ok and the most you might get anyway is 55? Well, I am now 42 and let me tell you 44 is not ok. I WANT 70, I'm hoping for 60. Just think of all the fun I can have!!! I am a 9 I do all the inhailing things the dr. wants. I also do all the pills the dr. wants. I don't do the vest or chest pt. I don't like them. I work out. I know its not the same and now at this age I am comming to terms with doing the vest. I read about it a lot on here and people seem to like it. (Mine is gathering dust as we speak).

FUN FUN FUN that is what you are talking about in your post. All we are saying is you can have even more fun the more meds you do. REALLY, just try it. Do your morning and evening stuff. You can't tell me you don't know your going out later and don't have time Nebs don't take that long. look into different kinds of cups. Stop talking to your buddies about this stuff and start listening to your lungs. Your head will tell you to skip it but your bod will tell you how wrong you are. You are 18 now and need to live YOUR life not the life of "wanting to fit in". Look at your buddies, seriously, do they look or act like they "fit in"???lol.

Good luck to you.

 

[CyndiW555]

Ricky123 , You said you are 18 right? well, I remember that. I didn't have cf then. Dr. told me about it when I was 24. ( thats how I think about it). Yes you are young and free and feelin fine! no you think goin' till 44 or 45 is ok and the most you might get anyway is 55? Well, I am now 42 and let me tell you 44 is not ok. I WANT 70, I'm hoping for 60. Just think of all the fun I can have!!! I am a 9 I do all the inhailing things the dr. wants. I also do all the pills the dr. wants. I don't do the vest or chest pt. I don't like them. I work out. I know its not the same and now at this age I am comming to terms with doing the vest. I read about it a lot on here and people seem to like it. (Mine is gathering dust as we speak).

FUN FUN FUN that is what you are talking about in your post. All we are saying is you can have even more fun the more meds you do. REALLY, just try it. Do your morning and evening stuff. You can't tell me you don't know your going out later and don't have time Nebs don't take that long. look into different kinds of cups. Stop talking to your buddies about this stuff and start listening to your lungs. Your head will tell you to skip it but your bod will tell you how wrong you are. You are 18 now and need to live YOUR life not the life of "wanting to fit in". Look at your buddies, seriously, do they look or act like they "fit in"???lol.

Good luck to you.

 

[CyndiW555]

Ricky123 , You said you are 18 right? well, I remember that. I didn't have cf then. Dr. told me about it when I was 24. ( thats how I think about it). Yes you are young and free and feelin fine! no you think goin' till 44 or 45 is ok and the most you might get anyway is 55? Well, I am now 42 and let me tell you 44 is not ok. I WANT 70, I'm hoping for 60. Just think of all the fun I can have!!! I am a 9 I do all the inhailing things the dr. wants. I also do all the pills the dr. wants. I don't do the vest or chest pt. I don't like them. I work out. I know its not the same and now at this age I am comming to terms with doing the vest. I read about it a lot on here and people seem to like it. (Mine is gathering dust as we speak).

FUN FUN FUN that is what you are talking about in your post. All we are saying is you can have even more fun the more meds you do. REALLY, just try it. Do your morning and evening stuff. You can't tell me you don't know your going out later and don't have time Nebs don't take that long. look into different kinds of cups. Stop talking to your buddies about this stuff and start listening to your lungs. Your head will tell you to skip it but your bod will tell you how wrong you are. You are 18 now and need to live YOUR life not the life of "wanting to fit in". Look at your buddies, seriously, do they look or act like they "fit in"???lol.

Good luck to you.

 

[CyndiW555]

Ricky123 , You said you are 18 right? well, I remember that. I didn't have cf then. Dr. told me about it when I was 24. ( thats how I think about it). Yes you are young and free and feelin fine! no you think goin' till 44 or 45 is ok and the most you might get anyway is 55? Well, I am now 42 and let me tell you 44 is not ok. I WANT 70, I'm hoping for 60. Just think of all the fun I can have!!! I am a 9 I do all the inhailing things the dr. wants. I also do all the pills the dr. wants. I don't do the vest or chest pt. I don't like them. I work out. I know its not the same and now at this age I am comming to terms with doing the vest. I read about it a lot on here and people seem to like it. (Mine is gathering dust as we speak).

FUN FUN FUN that is what you are talking about in your post. All we are saying is you can have even more fun the more meds you do. REALLY, just try it. Do your morning and evening stuff. You can't tell me you don't know your going out later and don't have time Nebs don't take that long. look into different kinds of cups. Stop talking to your buddies about this stuff and start listening to your lungs. Your head will tell you to skip it but your bod will tell you how wrong you are. You are 18 now and need to live YOUR life not the life of "wanting to fit in". Look at your buddies, seriously, do they look or act like they "fit in"???lol.

Good luck to you.

 

[NoExcuses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cdale613</b></i>

I'm sorry, but you and I strongly disagree on some fundamental ideas of happiness, health, and how to live life with CF.



What are your goals? What are your responsibilities? What are your dreams?



I'm engaged to be married in 3 months. I could not ask my fiance to marry me and risk the heartache of losing me to CF if I wasn't willing to give 110% in keeping myself healthy. I'm 27. My FEV1 baseline is still 90 percent. That makes it possible to look optimistically to the future and consider children (we don't care what the board thinks btw). Ask my fiance the difference between 45 and 55. Its worth it, and to suggest that its ok compromise any of that for 2 joints a year or getting drunk every so often is just sad.



I like to exercise. I am scared of not being able to do the things I love to do - biking, hiking, running, etc. Compliance with my meds is nothing compared to what I'd be giving up if I couldn't do these activities.



I work full time, I have a Masters degree. I'm not done achieving, and I'm not willing to sit around watching my life pass me by just because I have CF. I took the LSAT yesterday. I am competing in a half-ironman triathlon in three weeks. I'm biking 150 miles for the CFF in 5 weeks. I'm going on my honeymoon to Croatia in 14 weeks. I'm living a full life, and compliance with my meds makes that possible.



The guilt and shame I would feel if I was unable to provide for my wife and family; lost the ability to do the activities I love doing; lost the drive and ability to achieve... while knowing that I hadn't been fully compliant would be more than I could handle. Now, CF is chronic... I understand that. I can live with myself if I know I've done everything I can do to stave it off as long as possible.



100 percent compliance with my health care makes everything else I do possible. The 3-4 hours I spend taking care of myself each day is a small price to pay for the other 20.



And seriously.... you do realize you can do other things while you inhale meds through a neb... right? Be it LSAT prep tests, reading, watching TV, being online... a lot of it is time you would spend sitting anyway.



Don't try to justify your lack of compliance. Set goals that necessitate full compliance, and achieve them. That is how you live a full live with CF.



Sorry, but there no shortcuts. You get one chance at life. No do-overs. Don't make foolish decisions that appear to gratify you in the short-term that sacrifice your long-term health and happiness. Its really not worth it.



Chris



27 m w/CF</end quote></div>




Bravo! Bravo! Bravo!!!!

 

[NoExcuses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cdale613</b></i>

I'm sorry, but you and I strongly disagree on some fundamental ideas of happiness, health, and how to live life with CF.



What are your goals? What are your responsibilities? What are your dreams?



I'm engaged to be married in 3 months. I could not ask my fiance to marry me and risk the heartache of losing me to CF if I wasn't willing to give 110% in keeping myself healthy. I'm 27. My FEV1 baseline is still 90 percent. That makes it possible to look optimistically to the future and consider children (we don't care what the board thinks btw). Ask my fiance the difference between 45 and 55. Its worth it, and to suggest that its ok compromise any of that for 2 joints a year or getting drunk every so often is just sad.



I like to exercise. I am scared of not being able to do the things I love to do - biking, hiking, running, etc. Compliance with my meds is nothing compared to what I'd be giving up if I couldn't do these activities.



I work full time, I have a Masters degree. I'm not done achieving, and I'm not willing to sit around watching my life pass me by just because I have CF. I took the LSAT yesterday. I am competing in a half-ironman triathlon in three weeks. I'm biking 150 miles for the CFF in 5 weeks. I'm going on my honeymoon to Croatia in 14 weeks. I'm living a full life, and compliance with my meds makes that possible.



The guilt and shame I would feel if I was unable to provide for my wife and family; lost the ability to do the activities I love doing; lost the drive and ability to achieve... while knowing that I hadn't been fully compliant would be more than I could handle. Now, CF is chronic... I understand that. I can live with myself if I know I've done everything I can do to stave it off as long as possible.



100 percent compliance with my health care makes everything else I do possible. The 3-4 hours I spend taking care of myself each day is a small price to pay for the other 20.



And seriously.... you do realize you can do other things while you inhale meds through a neb... right? Be it LSAT prep tests, reading, watching TV, being online... a lot of it is time you would spend sitting anyway.



Don't try to justify your lack of compliance. Set goals that necessitate full compliance, and achieve them. That is how you live a full live with CF.



Sorry, but there no shortcuts. You get one chance at life. No do-overs. Don't make foolish decisions that appear to gratify you in the short-term that sacrifice your long-term health and happiness. Its really not worth it.



Chris



27 m w/CF</end quote></div>




Bravo! Bravo! Bravo!!!!

 

[NoExcuses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cdale613</b></i>

I'm sorry, but you and I strongly disagree on some fundamental ideas of happiness, health, and how to live life with CF.



What are your goals? What are your responsibilities? What are your dreams?



I'm engaged to be married in 3 months. I could not ask my fiance to marry me and risk the heartache of losing me to CF if I wasn't willing to give 110% in keeping myself healthy. I'm 27. My FEV1 baseline is still 90 percent. That makes it possible to look optimistically to the future and consider children (we don't care what the board thinks btw). Ask my fiance the difference between 45 and 55. Its worth it, and to suggest that its ok compromise any of that for 2 joints a year or getting drunk every so often is just sad.



I like to exercise. I am scared of not being able to do the things I love to do - biking, hiking, running, etc. Compliance with my meds is nothing compared to what I'd be giving up if I couldn't do these activities.



I work full time, I have a Masters degree. I'm not done achieving, and I'm not willing to sit around watching my life pass me by just because I have CF. I took the LSAT yesterday. I am competing in a half-ironman triathlon in three weeks. I'm biking 150 miles for the CFF in 5 weeks. I'm going on my honeymoon to Croatia in 14 weeks. I'm living a full life, and compliance with my meds makes that possible.



The guilt and shame I would feel if I was unable to provide for my wife and family; lost the ability to do the activities I love doing; lost the drive and ability to achieve... while knowing that I hadn't been fully compliant would be more than I could handle. Now, CF is chronic... I understand that. I can live with myself if I know I've done everything I can do to stave it off as long as possible.



100 percent compliance with my health care makes everything else I do possible. The 3-4 hours I spend taking care of myself each day is a small price to pay for the other 20.



And seriously.... you do realize you can do other things while you inhale meds through a neb... right? Be it LSAT prep tests, reading, watching TV, being online... a lot of it is time you would spend sitting anyway.



Don't try to justify your lack of compliance. Set goals that necessitate full compliance, and achieve them. That is how you live a full live with CF.



Sorry, but there no shortcuts. You get one chance at life. No do-overs. Don't make foolish decisions that appear to gratify you in the short-term that sacrifice your long-term health and happiness. Its really not worth it.



Chris



27 m w/CF</end quote></div>




Bravo! Bravo! Bravo!!!!

 

[NoExcuses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cdale613</b></i>

I'm sorry, but you and I strongly disagree on some fundamental ideas of happiness, health, and how to live life with CF.



What are your goals? What are your responsibilities? What are your dreams?



I'm engaged to be married in 3 months. I could not ask my fiance to marry me and risk the heartache of losing me to CF if I wasn't willing to give 110% in keeping myself healthy. I'm 27. My FEV1 baseline is still 90 percent. That makes it possible to look optimistically to the future and consider children (we don't care what the board thinks btw). Ask my fiance the difference between 45 and 55. Its worth it, and to suggest that its ok compromise any of that for 2 joints a year or getting drunk every so often is just sad.



I like to exercise. I am scared of not being able to do the things I love to do - biking, hiking, running, etc. Compliance with my meds is nothing compared to what I'd be giving up if I couldn't do these activities.



I work full time, I have a Masters degree. I'm not done achieving, and I'm not willing to sit around watching my life pass me by just because I have CF. I took the LSAT yesterday. I am competing in a half-ironman triathlon in three weeks. I'm biking 150 miles for the CFF in 5 weeks. I'm going on my honeymoon to Croatia in 14 weeks. I'm living a full life, and compliance with my meds makes that possible.



The guilt and shame I would feel if I was unable to provide for my wife and family; lost the ability to do the activities I love doing; lost the drive and ability to achieve... while knowing that I hadn't been fully compliant would be more than I could handle. Now, CF is chronic... I understand that. I can live with myself if I know I've done everything I can do to stave it off as long as possible.



100 percent compliance with my health care makes everything else I do possible. The 3-4 hours I spend taking care of myself each day is a small price to pay for the other 20.



And seriously.... you do realize you can do other things while you inhale meds through a neb... right? Be it LSAT prep tests, reading, watching TV, being online... a lot of it is time you would spend sitting anyway.



Don't try to justify your lack of compliance. Set goals that necessitate full compliance, and achieve them. That is how you live a full live with CF.



Sorry, but there no shortcuts. You get one chance at life. No do-overs. Don't make foolish decisions that appear to gratify you in the short-term that sacrifice your long-term health and happiness. Its really not worth it.



Chris



27 m w/CF</end quote></div>




Bravo! Bravo! Bravo!!!!