how often do you miss treatments?

Jennifer1981

New member
I would say a 9.

I NEVER miss a whole treatment. The past weekend we visited my parents and came home at 11:00pm. I STILL did my treatment. I did the Albuterol, HS, Vest, and Pulmozyme; however, I shorten the length of the Vest from 30 minutes to 20. That is why I said a 9. I don't miss.

If we are up until 1:00 am, I still do a treatment. Yeah, I get to bed at like 2:00, but I still do it.
 

Jennifer1981

New member
I would say a 9.

I NEVER miss a whole treatment. The past weekend we visited my parents and came home at 11:00pm. I STILL did my treatment. I did the Albuterol, HS, Vest, and Pulmozyme; however, I shorten the length of the Vest from 30 minutes to 20. That is why I said a 9. I don't miss.

If we are up until 1:00 am, I still do a treatment. Yeah, I get to bed at like 2:00, but I still do it.
 

catboogie

New member
i am a 9...i've been known to come home and go to bed instead of doing my treatment after a good night of beer. (incidentally, i'm always mad at myself after the fact for doing this.) but that rarely happens.

there was a time when i could be more slack on the weekends and i certainly was when i could. now i can't anymore. well, we always have a choice. it's just not worth it to me.

i know what you mean about feeling like a slave to your CF. it is possible to fit everything in, though, with a different attitude besides that you are being a slave to CF. (i am happy to sacrifice time now for more time later, and for less hospital time later.) i think that's ultimately what we all want.

you want to be able to go out with your friends, but if you get run down, or you're coughing more than you would be with treatments, or down the road if you have trouble keeping up with them...you will have realized too late that your treatments should have had a higher priority.

*end of lecture* <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

catboogie

New member
i am a 9...i've been known to come home and go to bed instead of doing my treatment after a good night of beer. (incidentally, i'm always mad at myself after the fact for doing this.) but that rarely happens.

there was a time when i could be more slack on the weekends and i certainly was when i could. now i can't anymore. well, we always have a choice. it's just not worth it to me.

i know what you mean about feeling like a slave to your CF. it is possible to fit everything in, though, with a different attitude besides that you are being a slave to CF. (i am happy to sacrifice time now for more time later, and for less hospital time later.) i think that's ultimately what we all want.

you want to be able to go out with your friends, but if you get run down, or you're coughing more than you would be with treatments, or down the road if you have trouble keeping up with them...you will have realized too late that your treatments should have had a higher priority.

*end of lecture* <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

catboogie

New member
i am a 9...i've been known to come home and go to bed instead of doing my treatment after a good night of beer. (incidentally, i'm always mad at myself after the fact for doing this.) but that rarely happens.

there was a time when i could be more slack on the weekends and i certainly was when i could. now i can't anymore. well, we always have a choice. it's just not worth it to me.

i know what you mean about feeling like a slave to your CF. it is possible to fit everything in, though, with a different attitude besides that you are being a slave to CF. (i am happy to sacrifice time now for more time later, and for less hospital time later.) i think that's ultimately what we all want.

you want to be able to go out with your friends, but if you get run down, or you're coughing more than you would be with treatments, or down the road if you have trouble keeping up with them...you will have realized too late that your treatments should have had a higher priority.

*end of lecture* <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

catboogie

New member
i am a 9...i've been known to come home and go to bed instead of doing my treatment after a good night of beer. (incidentally, i'm always mad at myself after the fact for doing this.) but that rarely happens.

there was a time when i could be more slack on the weekends and i certainly was when i could. now i can't anymore. well, we always have a choice. it's just not worth it to me.

i know what you mean about feeling like a slave to your CF. it is possible to fit everything in, though, with a different attitude besides that you are being a slave to CF. (i am happy to sacrifice time now for more time later, and for less hospital time later.) i think that's ultimately what we all want.

you want to be able to go out with your friends, but if you get run down, or you're coughing more than you would be with treatments, or down the road if you have trouble keeping up with them...you will have realized too late that your treatments should have had a higher priority.

*end of lecture* <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

catboogie

New member
i am a 9...i've been known to come home and go to bed instead of doing my treatment after a good night of beer. (incidentally, i'm always mad at myself after the fact for doing this.) but that rarely happens.

there was a time when i could be more slack on the weekends and i certainly was when i could. now i can't anymore. well, we always have a choice. it's just not worth it to me.

i know what you mean about feeling like a slave to your CF. it is possible to fit everything in, though, with a different attitude besides that you are being a slave to CF. (i am happy to sacrifice time now for more time later, and for less hospital time later.) i think that's ultimately what we all want.

you want to be able to go out with your friends, but if you get run down, or you're coughing more than you would be with treatments, or down the road if you have trouble keeping up with them...you will have realized too late that your treatments should have had a higher priority.

*end of lecture* <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

catboogie

New member
i am a 9...i've been known to come home and go to bed instead of doing my treatment after a good night of beer. (incidentally, i'm always mad at myself after the fact for doing this.) but that rarely happens.

there was a time when i could be more slack on the weekends and i certainly was when i could. now i can't anymore. well, we always have a choice. it's just not worth it to me.

i know what you mean about feeling like a slave to your CF. it is possible to fit everything in, though, with a different attitude besides that you are being a slave to CF. (i am happy to sacrifice time now for more time later, and for less hospital time later.) i think that's ultimately what we all want.

you want to be able to go out with your friends, but if you get run down, or you're coughing more than you would be with treatments, or down the road if you have trouble keeping up with them...you will have realized too late that your treatments should have had a higher priority.

*end of lecture* <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

AnD

New member
I'm probably a 9.9. I don't miss a whole treatment (I can't remember the last time I did that), and the only time I may miss part of one is when I absolutely have to be somewhere else (like on vacation and running behind, and checkout is at 11am sharp). I also wasn't particularly compliant before I had my daughter- better, as I got older, but not dedicated to it. Now, I too feel that I owe it to my family, as well as myself, to do a better job.

It is a bummer that it takes about an hour and a half, twice a day. However, the extra time and energy I get from feeling well and being healthier on the other end are so worth it! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

AnD

New member
I'm probably a 9.9. I don't miss a whole treatment (I can't remember the last time I did that), and the only time I may miss part of one is when I absolutely have to be somewhere else (like on vacation and running behind, and checkout is at 11am sharp). I also wasn't particularly compliant before I had my daughter- better, as I got older, but not dedicated to it. Now, I too feel that I owe it to my family, as well as myself, to do a better job.

It is a bummer that it takes about an hour and a half, twice a day. However, the extra time and energy I get from feeling well and being healthier on the other end are so worth it! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

AnD

New member
I'm probably a 9.9. I don't miss a whole treatment (I can't remember the last time I did that), and the only time I may miss part of one is when I absolutely have to be somewhere else (like on vacation and running behind, and checkout is at 11am sharp). I also wasn't particularly compliant before I had my daughter- better, as I got older, but not dedicated to it. Now, I too feel that I owe it to my family, as well as myself, to do a better job.

It is a bummer that it takes about an hour and a half, twice a day. However, the extra time and energy I get from feeling well and being healthier on the other end are so worth it! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

AnD

New member
I'm probably a 9.9. I don't miss a whole treatment (I can't remember the last time I did that), and the only time I may miss part of one is when I absolutely have to be somewhere else (like on vacation and running behind, and checkout is at 11am sharp). I also wasn't particularly compliant before I had my daughter- better, as I got older, but not dedicated to it. Now, I too feel that I owe it to my family, as well as myself, to do a better job.

It is a bummer that it takes about an hour and a half, twice a day. However, the extra time and energy I get from feeling well and being healthier on the other end are so worth it! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

AnD

New member
I'm probably a 9.9. I don't miss a whole treatment (I can't remember the last time I did that), and the only time I may miss part of one is when I absolutely have to be somewhere else (like on vacation and running behind, and checkout is at 11am sharp). I also wasn't particularly compliant before I had my daughter- better, as I got older, but not dedicated to it. Now, I too feel that I owe it to my family, as well as myself, to do a better job.

It is a bummer that it takes about an hour and a half, twice a day. However, the extra time and energy I get from feeling well and being healthier on the other end are so worth it! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

AnD

New member
I'm probably a 9.9. I don't miss a whole treatment (I can't remember the last time I did that), and the only time I may miss part of one is when I absolutely have to be somewhere else (like on vacation and running behind, and checkout is at 11am sharp). I also wasn't particularly compliant before I had my daughter- better, as I got older, but not dedicated to it. Now, I too feel that I owe it to my family, as well as myself, to do a better job.

It is a bummer that it takes about an hour and a half, twice a day. However, the extra time and energy I get from feeling well and being healthier on the other end are so worth it! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

LouLou

New member
I haven't always been able to say this so it makes me proud.
I'm a 10 - have been since 2003. Prior to that I was an 8-9 for the majority of my life. Before the age of 6 I was also a 10 (thanks Mom!)

Does it effect my life? Absolutely I feel wonderful the majority of the time and I know it's because I'm so compliant. It also does provide a stringent schedule but we work around the treatments to not let it control our lives.
 

LouLou

New member
I haven't always been able to say this so it makes me proud.
I'm a 10 - have been since 2003. Prior to that I was an 8-9 for the majority of my life. Before the age of 6 I was also a 10 (thanks Mom!)

Does it effect my life? Absolutely I feel wonderful the majority of the time and I know it's because I'm so compliant. It also does provide a stringent schedule but we work around the treatments to not let it control our lives.
 

LouLou

New member
I haven't always been able to say this so it makes me proud.
I'm a 10 - have been since 2003. Prior to that I was an 8-9 for the majority of my life. Before the age of 6 I was also a 10 (thanks Mom!)

Does it effect my life? Absolutely I feel wonderful the majority of the time and I know it's because I'm so compliant. It also does provide a stringent schedule but we work around the treatments to not let it control our lives.
 

LouLou

New member
I haven't always been able to say this so it makes me proud.
I'm a 10 - have been since 2003. Prior to that I was an 8-9 for the majority of my life. Before the age of 6 I was also a 10 (thanks Mom!)

Does it effect my life? Absolutely I feel wonderful the majority of the time and I know it's because I'm so compliant. It also does provide a stringent schedule but we work around the treatments to not let it control our lives.
 

LouLou

New member
I haven't always been able to say this so it makes me proud.
I'm a 10 - have been since 2003. Prior to that I was an 8-9 for the majority of my life. Before the age of 6 I was also a 10 (thanks Mom!)

Does it effect my life? Absolutely I feel wonderful the majority of the time and I know it's because I'm so compliant. It also does provide a stringent schedule but we work around the treatments to not let it control our lives.
 

LouLou

New member
I haven't always been able to say this so it makes me proud.
I'm a 10 - have been since 2003. Prior to that I was an 8-9 for the majority of my life. Before the age of 6 I was also a 10 (thanks Mom!)

Does it effect my life? Absolutely I feel wonderful the majority of the time and I know it's because I'm so compliant. It also does provide a stringent schedule but we work around the treatments to not let it control our lives.
 
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