TreasureGoddess
Member
Sometimes when my son has a bad cough and can't stop at night to even fall asleep, (after doing vest 4 times a day, meds, etc), we got relief from an old times method. We would soak a hand towel in hot water (but not burning, test against your wrist to make sure) wring it out, lay it on his chest. We'd also raise the head of his bed a few inches. This sometimes helped the drainage and would allow him to sleep.
Do you use nebulized pulmozyme? We got better results when we did the pulmozyme last thing at night as it seemed to work better when done after other meds.
Good luck!! Follow up with your CF doctors and get across to them that this cough is worse than you've ever experienced. Sometimes the doctors just hear "cf cough" and assume it's the regular stuff. Be persistent and keep calling until you get some ideas or results.
Do you use nebulized pulmozyme? We got better results when we did the pulmozyme last thing at night as it seemed to work better when done after other meds.
Good luck!! Follow up with your CF doctors and get across to them that this cough is worse than you've ever experienced. Sometimes the doctors just hear "cf cough" and assume it's the regular stuff. Be persistent and keep calling until you get some ideas or results.