How often do you visit your CF clinic?

[anonymous]

I am curious how often people go to their CF clinics for regular checkups? We go every three months. Thanks.

 

[CFHockeyMom]

When our CFer was first diagnosed (at 11wks) and after he finally got out of the hospital, we were going about once a month until he was about a year old. Since then, we've been going about every three months. If we're involved in any studies, then it depends on the protocol for that particular study.

 

[anonymous]

we go every 3 months also.. but we see the pediatritan all the time..

 

[Dea]

I also go every 3 months...as long as I am "well".
Dea
31 w/CF

 

[rose4cale]

Cale goes every 3 months. They do cultures every time with a swab. Every other time they take blood and do labs. He has done well and has been away from the pediatrician more since his diagnosis one year ago.

 

[SeasonsOfLove]

Coll goes every 3 months too

<img src="i/expressions/clock.gif" border="0">

 

[anonymous]

Mark goes every 6 months, but drops off a sputum culture every 2 months.


Julie (wife to Mark 24 w/CF)

 

[anonymous]

My twins with cf go every one to two months, all depends how they are doing, at the moment monthly.

 

[spicyone18]

I go about every 6 weeks to 2 months...also depending on how I am feeling.

 

[EmilysMom]

Emily goes every three months (depending on health) and also dependent on school schedule. If she's in Boston and can't get home, they are pretty good about scheduling around her semesters.

 

[HollyCatheryn]

Some years I'll go every three months. Most it is every six for monitoring and whenever I need in between if I am having a problem.

 

[2sickkids]

My 2yr old goes every 6wks. The baby goes every 1 or 2 wks he used to go every other day.

 

[anonymous]

My 2 yr old dd goes every 3 months...

 

[anonymous]

Our 7 month old goes every month up to the first year of life

 

[ehtansky21]

we go to the clinic every 3 months, so far. my 15 month old son was diagnosed at Christmas. so we were going every other week, then every month, then every 2 months. Now I think they are feeling confident in his weight gain etc. so hopefully we will just stick to every 3 months.

 

[anonymous]

My daughter goes every 3 months. This visit includes meeting with all members of the CF team, vital signs, weight/height, and PFT's. She has labwork, cultures, CXR, and calorie card study done on annual basis.

 

[anonymous]

Thank you for your replies. I was just curious if going more often for cultures would allow for more rapid treatment if something was to develop. My 10 month old has not cultured for anything yet and when I asked if we could come more often (every 6 weeks) they said that was not necessary. I just want to stay on top of anything that may develop so we can treat it quickly (I am sure you can all relate..!) - Paula