Scarlett81
New member
Wow this has been so frustrating. I made literally 20 phone calls today to various physical therapy places, gyms, hospitals, visiting nurse associations, ect....natta.
It is getting me thinking wow-here I am doing all I can do to get well and no one is willing to help me. I mean, I should say, people have been very nice but visiting resp therapists just don't exist. There is one company is Nj but they can't take me bc I'm too far. There's a few visiting nurse companies that do it, but again-they all seem too far. I don't live in Timbucktoo....but everyone seems to be saying, I am TOO FAR!!!!!!
So I found a local hospital that has visiting nurses and physical therapist and they said they don't generally do chest pt, but they would be willing to have one of their therapists trained by my cf center for me. So this is the most promising thing so far. We'll see if it works out.
I posted this as an fyi for anyone who needs this for the future.
I'd say, #1-you really have to do the research yourself and make the calls yourself to find someone. Don't necessarily assume that bc someone says its impossible to work out, that it really is.
And rather than accept that no one can do it for you, find a visiting health company that would be willing to have someone train their employees.
I remember the head of my cf centers respiratory department saying once that she'd be willing to come out to my area to train home health or any family members for me. So hopefully I can take her up on that offer.
It is getting me thinking wow-here I am doing all I can do to get well and no one is willing to help me. I mean, I should say, people have been very nice but visiting resp therapists just don't exist. There is one company is Nj but they can't take me bc I'm too far. There's a few visiting nurse companies that do it, but again-they all seem too far. I don't live in Timbucktoo....but everyone seems to be saying, I am TOO FAR!!!!!!
So I found a local hospital that has visiting nurses and physical therapist and they said they don't generally do chest pt, but they would be willing to have one of their therapists trained by my cf center for me. So this is the most promising thing so far. We'll see if it works out.
I posted this as an fyi for anyone who needs this for the future.
I'd say, #1-you really have to do the research yourself and make the calls yourself to find someone. Don't necessarily assume that bc someone says its impossible to work out, that it really is.
And rather than accept that no one can do it for you, find a visiting health company that would be willing to have someone train their employees.
I remember the head of my cf centers respiratory department saying once that she'd be willing to come out to my area to train home health or any family members for me. So hopefully I can take her up on that offer.