How were you tested for pancreatic insufficiency?

Beccamom

New member
My daughter has failure to thrive down to .785tile weight 3% for height.  One GI suggeste that she have a pancreatic stimulation test for pancreatic insufficiency.  We want to this during bronchoscopy so she is sedated 1 time and since her gi and pulmonologist are at 2 different hospitals we have a 2nd opinion and the pulmonologists hospital and she feels fecal elastace is more accurate than the pacreatic stimulation test.  What test did you do to determine pancreatic insufficiency?  we are going to repeat the fecal elastace in the meantime.d
 

Beccamom

New member
My daughter has failure to thrive down to .785tile weight 3% for height. One GI suggeste that she have a pancreatic stimulation test for pancreatic insufficiency. We want to this during bronchoscopy so she is sedated 1 time and since her gi and pulmonologist are at 2 different hospitals we have a 2nd opinion and the pulmonologists hospital and she feels fecal elastace is more accurate than the pacreatic stimulation test. What test did you do to determine pancreatic insufficiency? we are going to repeat the fecal elastace in the meantime.d
 

Beccamom

New member
My daughter has failure to thrive down to .785tile weight 3% for height. One GI suggeste that she have a pancreatic stimulation test for pancreatic insufficiency. We want to this during bronchoscopy so she is sedated 1 time and since her gi and pulmonologist are at 2 different hospitals we have a 2nd opinion and the pulmonologists hospital and she feels fecal elastace is more accurate than the pacreatic stimulation test. What test did you do to determine pancreatic insufficiency? we are going to repeat the fecal elastace in the meantime.d
 

kitomd21

New member
DD was tested for fecal elastase...no question with her results as it was below measurable! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

kitomd21

New member
DD was tested for fecal elastase...no question with her results as it was below measurable! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

kitomd21

New member
DD was tested for fecal elastase...no question with her results as it was below measurable! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

LouLou

New member
...been a member on here since 2006 and have never heard anyone mention pancreatic stim. Is it a newer test? If so I would read the journal articles on it to see that it is a proven diagnostic test. And to make sure the doctor who is asking to perform the test isn't the only person doing it LOL. Fecal elastase is a test where the feces is collected for 3 days I believe. Some centers have you count the number of fat grams the patient eats and others don't.
 

LouLou

New member
...been a member on here since 2006 and have never heard anyone mention pancreatic stim. Is it a newer test? If so I would read the journal articles on it to see that it is a proven diagnostic test. And to make sure the doctor who is asking to perform the test isn't the only person doing it LOL. Fecal elastase is a test where the feces is collected for 3 days I believe. Some centers have you count the number of fat grams the patient eats and others don't.
 

LouLou

New member
...been a member on here since 2006 and have never heard anyone mention pancreatic stim. Is it a newer test? If so I would read the journal articles on it to see that it is a proven diagnostic test. And to make sure the doctor who is asking to perform the test isn't the only person doing it LOL. Fecal elastase is a test where the feces is collected for 3 days I believe. Some centers have you count the number of fat grams the patient eats and others don't.
 

Printer

Active member
Fecal at age 44 (before I was dx) and a cat scan at age 69 to determine the extent of insuffancy.
<br />
<br />Bill
 

Beccamom

New member
My understanding is that for the fecal fat test it takes 3 days and you have to keep track of how much fat is eaten to compare to how much fat is extreted.  The fecal elastace test is a 1 day test.  One of the GIs fealt the fecal Elastace was the most accurate.  The other GI fealt that the pancreatic stimulation test was more accurate, but that most hospitals don't have the capability to do this test.  The GI that feels Elastace is most accurate did admit her hospital cannot do the pancreatic stim with the "best" procedure because her hospital could not get a manufactorer to make the tube she needed for the test.  This doctor also has to send the specimen to another hospital on dry ice for testing.  I am not sure if the pancreatic stimulation test is most accurate, but more difficult to do or if the elastace is all that is needed and that is why the pancreatic stimulation is less common.  We are going to do another fecal elastace and if it is borderline then consider the pancreatic stimulation or maybe it is best to just try enzymes at that point not sure? 
 

Beccamom

New member
My understanding is that for the fecal fat test it takes 3 days and you have to keep track of how much fat is eaten to compare to how much fat is extreted. The fecal elastace test is a 1 day test. One of the GIs fealt the fecal Elastace was the most accurate. The other GI fealt that the pancreatic stimulation test was more accurate, but that most hospitals don't have the capability to do this test. The GI that feels Elastace is most accurate did admit her hospital cannot do the pancreatic stim with the "best" procedure becauseher hospital could not get a manufactorer to make the tube she needed for the test. This doctor alsohas to send the specimen to another hospital on dry icefor testing. I am not sure if the pancreatic stimulation test is most accurate, but more difficult to do or if the elastace is all that is needed and that is why the pancreatic stimulation is less common. We are going to do another fecal elastace and if it is borderline then consider the pancreatic stimulation ormaybe it is best to just try enzymesat that point not sure?
 

Beccamom

New member
<BR>My understanding is that for the fecal fat test it takes 3 days and you have to keep track of how much fat is eaten to compare to how much fat is extreted. The fecal elastace test is a 1 day test. One of the GIs fealt the fecal Elastace was the most accurate. The other GI fealt that the pancreatic stimulation test was more accurate, but that most hospitals don't have the capability to do this test. The GI that feels Elastace is most accurate did admit her hospital cannot do the pancreatic stim with the "best" procedure becauseher hospital could not get a manufactorer to make the tube she needed for the test. This doctor alsohas to send the specimen to another hospital on dry icefor testing. I am not sure if the pancreatic stimulation test is most accurate, but more difficult to do or if the elastace is all that is needed and that is why the pancreatic stimulation is less common. We are going to do another fecal elastace and if it is borderline then consider the pancreatic stimulation ormaybe it is best to just try enzymesat that point not sure?
 

2005CFmom

Super Moderator
My daughter, being diagnosed at age 8 with double Df508 and only 42 lbs, they knew she was PI. She has never had a GI test to determine it. They started her on a low dose of enzymes and she started to gain weight. The dose has been gradually increased over time.

I say just try the enzymes to see if they help. Maybe the doctor even can give a supply of samples to try before you fill a prescription.
 

2005CFmom

Super Moderator
My daughter, being diagnosed at age 8 with double Df508 and only 42 lbs, they knew she was PI. She has never had a GI test to determine it. They started her on a low dose of enzymes and she started to gain weight. The dose has been gradually increased over time.

I say just try the enzymes to see if they help. Maybe the doctor even can give a supply of samples to try before you fill a prescription.
 
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