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How Were You / Your Loved One Diagnosed?
- Thread starter hhildema
- Start date
Scarlett81
New member
Well I was dx'd at 2 yrs old or so. My aunt always noticed when she kissed me, that I tasted salty. I also had digestive issues-I filled diapers all the time, the poop was runny/diahrea. I had bloating, and gas alot. She read an article in the paper about cf and called the editor to find out where to take me to the doctor, and they found one for her to take me to.
I was dx'd by Daniel Schidlow at St. Christopher's in Philly, PA USA.
I was dx'd by Daniel Schidlow at St. Christopher's in Philly, PA USA.
Scarlett81
New member
Well I was dx'd at 2 yrs old or so. My aunt always noticed when she kissed me, that I tasted salty. I also had digestive issues-I filled diapers all the time, the poop was runny/diahrea. I had bloating, and gas alot. She read an article in the paper about cf and called the editor to find out where to take me to the doctor, and they found one for her to take me to.
I was dx'd by Daniel Schidlow at St. Christopher's in Philly, PA USA.
I was dx'd by Daniel Schidlow at St. Christopher's in Philly, PA USA.
Scarlett81
New member
Well I was dx'd at 2 yrs old or so. My aunt always noticed when she kissed me, that I tasted salty. I also had digestive issues-I filled diapers all the time, the poop was runny/diahrea. I had bloating, and gas alot. She read an article in the paper about cf and called the editor to find out where to take me to the doctor, and they found one for her to take me to.
I was dx'd by Daniel Schidlow at St. Christopher's in Philly, PA USA.
I was dx'd by Daniel Schidlow at St. Christopher's in Philly, PA USA.
Emily65Roses
New member
I had meconium ileus (my meconium [baby's first bowel movement] was stuck in my intestines), and it was surgically removed when I was 2 days old. They pretty much knew from that. I then had sweat testing to confirm when I was 6 months. They only waited so long because this was in 1984, and back then you couldn't sweat test a child younger than 6 months. But, like I said, they pretty much assumed I had it from the age of 2 days.
Emily65Roses
New member
I had meconium ileus (my meconium [baby's first bowel movement] was stuck in my intestines), and it was surgically removed when I was 2 days old. They pretty much knew from that. I then had sweat testing to confirm when I was 6 months. They only waited so long because this was in 1984, and back then you couldn't sweat test a child younger than 6 months. But, like I said, they pretty much assumed I had it from the age of 2 days.
Emily65Roses
New member
I had meconium ileus (my meconium [baby's first bowel movement] was stuck in my intestines), and it was surgically removed when I was 2 days old. They pretty much knew from that. I then had sweat testing to confirm when I was 6 months. They only waited so long because this was in 1984, and back then you couldn't sweat test a child younger than 6 months. But, like I said, they pretty much assumed I had it from the age of 2 days.
My daughter when born had meconium ileus, her bowel had perforated and her stomach was filled up with the contents, she was operated on the same day and because of this they sweat tested her and 4 days later we were told she had c/f.
They would have also took blood from her to test what gene she she had as confirmation as well.
A good way to tell is to see what kind of bowel movements she has and is she salty when kissed, and does she get lung infections easily and is she putting on weight.
But its good to see that you are taking her to the docs to find out for sure.<img src="i/expressions/face-icon-small-smile.gif" border="0">
They would have also took blood from her to test what gene she she had as confirmation as well.
A good way to tell is to see what kind of bowel movements she has and is she salty when kissed, and does she get lung infections easily and is she putting on weight.
But its good to see that you are taking her to the docs to find out for sure.<img src="i/expressions/face-icon-small-smile.gif" border="0">
My daughter when born had meconium ileus, her bowel had perforated and her stomach was filled up with the contents, she was operated on the same day and because of this they sweat tested her and 4 days later we were told she had c/f.
They would have also took blood from her to test what gene she she had as confirmation as well.
A good way to tell is to see what kind of bowel movements she has and is she salty when kissed, and does she get lung infections easily and is she putting on weight.
But its good to see that you are taking her to the docs to find out for sure.<img src="i/expressions/face-icon-small-smile.gif" border="0">
They would have also took blood from her to test what gene she she had as confirmation as well.
A good way to tell is to see what kind of bowel movements she has and is she salty when kissed, and does she get lung infections easily and is she putting on weight.
But its good to see that you are taking her to the docs to find out for sure.<img src="i/expressions/face-icon-small-smile.gif" border="0">
My daughter when born had meconium ileus, her bowel had perforated and her stomach was filled up with the contents, she was operated on the same day and because of this they sweat tested her and 4 days later we were told she had c/f.
They would have also took blood from her to test what gene she she had as confirmation as well.
A good way to tell is to see what kind of bowel movements she has and is she salty when kissed, and does she get lung infections easily and is she putting on weight.
But its good to see that you are taking her to the docs to find out for sure.<img src="i/expressions/face-icon-small-smile.gif" border="0">
They would have also took blood from her to test what gene she she had as confirmation as well.
A good way to tell is to see what kind of bowel movements she has and is she salty when kissed, and does she get lung infections easily and is she putting on weight.
But its good to see that you are taking her to the docs to find out for sure.<img src="i/expressions/face-icon-small-smile.gif" border="0">
TCNJcystic
New member
I was diagnosed at age 4, and my physician decided out on a limb to have me sent for a sweat test because I was having irregular bowel movements, but none of the pulmonary symptoms. When the doc suggested the test, my mom asked her if it was because she had seen it on the family history, but the doc hadn't, and it was at that moment they both unofficially realized that was the problem.
TCNJcystic
New member
I was diagnosed at age 4, and my physician decided out on a limb to have me sent for a sweat test because I was having irregular bowel movements, but none of the pulmonary symptoms. When the doc suggested the test, my mom asked her if it was because she had seen it on the family history, but the doc hadn't, and it was at that moment they both unofficially realized that was the problem.