HS for kids

Rebjane

Super Moderator
I also asked our pulmo about HS. He did not want to put maggie on it yet til he saw more info about it. I don't think he puts his patients on it yet. However, I think the Cf doc at clinic that has adult patients uses it and they benefit from it.
 

anonymous

New member
my son is 9 and the does not have a cough or any lung congestion, but the first few times he did it, he had to constantly stop to cough up stuff in tissues. But after 2 days, didn't get anything from it, so we ended up stopping it, and have done it a few time since. The doc agrees that it is probably best used this way. Not needed all the time, and could just irritate if done everyday.
 

anonymous

New member
my son is 9 and the does not have a cough or any lung congestion, but the first few times he did it, he had to constantly stop to cough up stuff in tissues. But after 2 days, didn't get anything from it, so we ended up stopping it, and have done it a few time since. The doc agrees that it is probably best used this way. Not needed all the time, and could just irritate if done everyday.
 

anonymous

New member
my son is 9 and the does not have a cough or any lung congestion, but the first few times he did it, he had to constantly stop to cough up stuff in tissues. But after 2 days, didn't get anything from it, so we ended up stopping it, and have done it a few time since. The doc agrees that it is probably best used this way. Not needed all the time, and could just irritate if done everyday.
 

sweetwhite30

New member
We asked isaiahs c.f doctor about it and he said he wants to see more studies done first so we agreed and he really well no lung issues now anyway so we will do the waiting game but i am always reading...
 

sweetwhite30

New member
We asked isaiahs c.f doctor about it and he said he wants to see more studies done first so we agreed and he really well no lung issues now anyway so we will do the waiting game but i am always reading...
 

sweetwhite30

New member
We asked isaiahs c.f doctor about it and he said he wants to see more studies done first so we agreed and he really well no lung issues now anyway so we will do the waiting game but i am always reading...
 

ReneeP

New member
Our dr put both my girls on it about 6 months ago. She wanted to take them off Mucomyst and do HS instead. Both girls also do Pulmozyme. Initially I cooperated and bought the HS (most insurance companies will not pay for it yet). We used it but I could tell no difference after a couple of months. Neither of my girls ever cough anyway so I suppose there just isn't anything for them to cough up. So, last month when they ran out of HS, I just switched them back to the Mucomyst. I haven't told the dr yet. I am waiting till our next visit in a few weeks. Honestly, it was a struggle for me to pay for it for both the girls. It's not very expensive, but when you start adding all the prescription copays for the girls we are already around $400.00 on a good month (and that's just prescriptions copays, not dr visits or anything else), so the added cost is hard. If I saw a benefit, I'd do it, but there was no difference that I could tell.

Edited to add: I just re-read your question and wanted to add that yes, they still had to take the albuterol. It was mixed in with the HS.
Also, my girls are 7 & 11 (will be 12 next month).

Good Luck with whatever you decide to do.
 

ReneeP

New member
Our dr put both my girls on it about 6 months ago. She wanted to take them off Mucomyst and do HS instead. Both girls also do Pulmozyme. Initially I cooperated and bought the HS (most insurance companies will not pay for it yet). We used it but I could tell no difference after a couple of months. Neither of my girls ever cough anyway so I suppose there just isn't anything for them to cough up. So, last month when they ran out of HS, I just switched them back to the Mucomyst. I haven't told the dr yet. I am waiting till our next visit in a few weeks. Honestly, it was a struggle for me to pay for it for both the girls. It's not very expensive, but when you start adding all the prescription copays for the girls we are already around $400.00 on a good month (and that's just prescriptions copays, not dr visits or anything else), so the added cost is hard. If I saw a benefit, I'd do it, but there was no difference that I could tell.

Edited to add: I just re-read your question and wanted to add that yes, they still had to take the albuterol. It was mixed in with the HS.
Also, my girls are 7 & 11 (will be 12 next month).

Good Luck with whatever you decide to do.
 

ReneeP

New member
Our dr put both my girls on it about 6 months ago. She wanted to take them off Mucomyst and do HS instead. Both girls also do Pulmozyme. Initially I cooperated and bought the HS (most insurance companies will not pay for it yet). We used it but I could tell no difference after a couple of months. Neither of my girls ever cough anyway so I suppose there just isn't anything for them to cough up. So, last month when they ran out of HS, I just switched them back to the Mucomyst. I haven't told the dr yet. I am waiting till our next visit in a few weeks. Honestly, it was a struggle for me to pay for it for both the girls. It's not very expensive, but when you start adding all the prescription copays for the girls we are already around $400.00 on a good month (and that's just prescriptions copays, not dr visits or anything else), so the added cost is hard. If I saw a benefit, I'd do it, but there was no difference that I could tell.

Edited to add: I just re-read your question and wanted to add that yes, they still had to take the albuterol. It was mixed in with the HS.
Also, my girls are 7 & 11 (will be 12 next month).

Good Luck with whatever you decide to do.
 
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