HTS and Hospitalizations

Solo

New member
Katie, I have not been in the hospital since I began using HTS. Granted, I only started when I was released in April. I don't foresee myself going back in the hospital for quite some time. Using it 2x a day does a fantastic job clearing me up, I hardly ever cough, well not at all like I used to, but there are times when I bring up some mucus, but it is usually from clearing my throat, opposed to coughing. I personally think HTS is the best innovation to come along for CF, I think if you do it regularly, it has the potency of Tobi without the harmful side effects of an antibiotic.
 

Solo

New member
Katie, I have not been in the hospital since I began using HTS. Granted, I only started when I was released in April. I don't foresee myself going back in the hospital for quite some time. Using it 2x a day does a fantastic job clearing me up, I hardly ever cough, well not at all like I used to, but there are times when I bring up some mucus, but it is usually from clearing my throat, opposed to coughing. I personally think HTS is the best innovation to come along for CF, I think if you do it regularly, it has the potency of Tobi without the harmful side effects of an antibiotic.
 

Solo

New member
Katie, I have not been in the hospital since I began using HTS. Granted, I only started when I was released in April. I don't foresee myself going back in the hospital for quite some time. Using it 2x a day does a fantastic job clearing me up, I hardly ever cough, well not at all like I used to, but there are times when I bring up some mucus, but it is usually from clearing my throat, opposed to coughing. I personally think HTS is the best innovation to come along for CF, I think if you do it regularly, it has the potency of Tobi without the harmful side effects of an antibiotic.
 

Solo

New member
Katie, I have not been in the hospital since I began using HTS. Granted, I only started when I was released in April. I don't foresee myself going back in the hospital for quite some time. Using it 2x a day does a fantastic job clearing me up, I hardly ever cough, well not at all like I used to, but there are times when I bring up some mucus, but it is usually from clearing my throat, opposed to coughing. I personally think HTS is the best innovation to come along for CF, I think if you do it regularly, it has the potency of Tobi without the harmful side effects of an antibiotic.
 

Solo

New member
Katie, I have not been in the hospital since I began using HTS. Granted, I only started when I was released in April. I don't foresee myself going back in the hospital for quite some time. Using it 2x a day does a fantastic job clearing me up, I hardly ever cough, well not at all like I used to, but there are times when I bring up some mucus, but it is usually from clearing my throat, opposed to coughing. I personally think HTS is the best innovation to come along for CF, I think if you do it regularly, it has the potency of Tobi without the harmful side effects of an antibiotic.
 

kitomd21

New member
Yea! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'm with you on the antibiotics, Shane. Tobi scares me because I know one of the side effects can be kidney failure. We've used it in veterinary medicine for certain strains of pseudomonas in relation to ear infections. We have to monitor kidney function while using it and I'm assuming its the same in the human world! Ellie was on IV Tobi at 2 weeks old because she cultured gram negative bacteria. The doctor jumped on her treatment by using Tobi before the completed culture results..."just in case." He was stunned that she could've cultured pseudomonas at such a young age - it was unheard of. At any rate, the gram neg bacteria wasn't pseudo afterall - thank God! <img src="i/expressions/face-icon-small-smile.gif" border="0"> What I've heard thus far is very encouraging regarding HTS, thank you.
 

kitomd21

New member
Yea! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'm with you on the antibiotics, Shane. Tobi scares me because I know one of the side effects can be kidney failure. We've used it in veterinary medicine for certain strains of pseudomonas in relation to ear infections. We have to monitor kidney function while using it and I'm assuming its the same in the human world! Ellie was on IV Tobi at 2 weeks old because she cultured gram negative bacteria. The doctor jumped on her treatment by using Tobi before the completed culture results..."just in case." He was stunned that she could've cultured pseudomonas at such a young age - it was unheard of. At any rate, the gram neg bacteria wasn't pseudo afterall - thank God! <img src="i/expressions/face-icon-small-smile.gif" border="0"> What I've heard thus far is very encouraging regarding HTS, thank you.
 

kitomd21

New member
Yea! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'm with you on the antibiotics, Shane. Tobi scares me because I know one of the side effects can be kidney failure. We've used it in veterinary medicine for certain strains of pseudomonas in relation to ear infections. We have to monitor kidney function while using it and I'm assuming its the same in the human world! Ellie was on IV Tobi at 2 weeks old because she cultured gram negative bacteria. The doctor jumped on her treatment by using Tobi before the completed culture results..."just in case." He was stunned that she could've cultured pseudomonas at such a young age - it was unheard of. At any rate, the gram neg bacteria wasn't pseudo afterall - thank God! <img src="i/expressions/face-icon-small-smile.gif" border="0"> What I've heard thus far is very encouraging regarding HTS, thank you.
 

kitomd21

New member
Yea! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'm with you on the antibiotics, Shane. Tobi scares me because I know one of the side effects can be kidney failure. We've used it in veterinary medicine for certain strains of pseudomonas in relation to ear infections. We have to monitor kidney function while using it and I'm assuming its the same in the human world! Ellie was on IV Tobi at 2 weeks old because she cultured gram negative bacteria. The doctor jumped on her treatment by using Tobi before the completed culture results..."just in case." He was stunned that she could've cultured pseudomonas at such a young age - it was unheard of. At any rate, the gram neg bacteria wasn't pseudo afterall - thank God! <img src="i/expressions/face-icon-small-smile.gif" border="0"> What I've heard thus far is very encouraging regarding HTS, thank you.
 

kitomd21

New member
Yea! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'm with you on the antibiotics, Shane. Tobi scares me because I know one of the side effects can be kidney failure. We've used it in veterinary medicine for certain strains of pseudomonas in relation to ear infections. We have to monitor kidney function while using it and I'm assuming its the same in the human world! Ellie was on IV Tobi at 2 weeks old because she cultured gram negative bacteria. The doctor jumped on her treatment by using Tobi before the completed culture results..."just in case." He was stunned that she could've cultured pseudomonas at such a young age - it was unheard of. At any rate, the gram neg bacteria wasn't pseudo afterall - thank God! <img src="i/expressions/face-icon-small-smile.gif" border="0"> What I've heard thus far is very encouraging regarding HTS, thank you.
 

Nightwriter

New member
Katie, I also find HTS fantastic. Of course when you do lots of things, like I do, it's hard to point to any one thing. But even so, many mornings I think I have no congestion, but after the HTS and the Flutter, so much mucus comes up which would have just sat in my lungs causing problems.

The reason that I believe HTS works is, because after starting to treat the asthma component of CF eleven years ago, I've never been on IV meds again. Just inhaled Tobi/ Colistin occasionally for a really severe infection. But a few years ago, I had a relapse when my entire neighborhood was on fire (I live in California) and my house filled with smoke. And it smelled of smoke for months. I started getting a lot of exacerbations with more frequent Tobi inhalation, my PFT's started dropping and I had drug resistance to almost everything.

I knew I had to add something to my routine to break out of this horrible cycle. Smoke is about the worst trigger for raising inflamation in the lungs. So about 2 years ago or so, I added HTS and tumeric (curcumin) capsules and NAC capsules -- all of which are currently being studied by the Cystic Fibrosis Foundation. And they do caution people from trying tumeric and NAC until testing is finished. However I didn't want to wait years, I take prudent amounts, and I only buy supplements that are standardized (to avoid risk of contaminants.)

But since adding the HTS and these supplements I have not been on any antibiotics at all (over 2 years). And I had several cultures that didn't pick up the usual pseudomonas which was really shocking. I have had one culture recently pick up pseudomonas and staph, but the bugs don't seem to be bothering me. But I do believe the amount of bugs might have been reduced and that's why a couple of cultures hadn't picked them up. But best of all, because I was able to stay off antibiotics, all the drug sensitivies returned. And my PFT's went back up to where they were prior to the fire (actually a little higher).

A word about the supplements though. I have no idea if they are appropriate for kids or anyone else for that matter. And I only mentioned them because I started them at the same time I started HTS.

I think HTS is another tool that can really help and as long as you can keep adding things to keep your daughter healthy, there is always reason to be optimistic.
 

Nightwriter

New member
Katie, I also find HTS fantastic. Of course when you do lots of things, like I do, it's hard to point to any one thing. But even so, many mornings I think I have no congestion, but after the HTS and the Flutter, so much mucus comes up which would have just sat in my lungs causing problems.

The reason that I believe HTS works is, because after starting to treat the asthma component of CF eleven years ago, I've never been on IV meds again. Just inhaled Tobi/ Colistin occasionally for a really severe infection. But a few years ago, I had a relapse when my entire neighborhood was on fire (I live in California) and my house filled with smoke. And it smelled of smoke for months. I started getting a lot of exacerbations with more frequent Tobi inhalation, my PFT's started dropping and I had drug resistance to almost everything.

I knew I had to add something to my routine to break out of this horrible cycle. Smoke is about the worst trigger for raising inflamation in the lungs. So about 2 years ago or so, I added HTS and tumeric (curcumin) capsules and NAC capsules -- all of which are currently being studied by the Cystic Fibrosis Foundation. And they do caution people from trying tumeric and NAC until testing is finished. However I didn't want to wait years, I take prudent amounts, and I only buy supplements that are standardized (to avoid risk of contaminants.)

But since adding the HTS and these supplements I have not been on any antibiotics at all (over 2 years). And I had several cultures that didn't pick up the usual pseudomonas which was really shocking. I have had one culture recently pick up pseudomonas and staph, but the bugs don't seem to be bothering me. But I do believe the amount of bugs might have been reduced and that's why a couple of cultures hadn't picked them up. But best of all, because I was able to stay off antibiotics, all the drug sensitivies returned. And my PFT's went back up to where they were prior to the fire (actually a little higher).

A word about the supplements though. I have no idea if they are appropriate for kids or anyone else for that matter. And I only mentioned them because I started them at the same time I started HTS.

I think HTS is another tool that can really help and as long as you can keep adding things to keep your daughter healthy, there is always reason to be optimistic.
 

Nightwriter

New member
Katie, I also find HTS fantastic. Of course when you do lots of things, like I do, it's hard to point to any one thing. But even so, many mornings I think I have no congestion, but after the HTS and the Flutter, so much mucus comes up which would have just sat in my lungs causing problems.

The reason that I believe HTS works is, because after starting to treat the asthma component of CF eleven years ago, I've never been on IV meds again. Just inhaled Tobi/ Colistin occasionally for a really severe infection. But a few years ago, I had a relapse when my entire neighborhood was on fire (I live in California) and my house filled with smoke. And it smelled of smoke for months. I started getting a lot of exacerbations with more frequent Tobi inhalation, my PFT's started dropping and I had drug resistance to almost everything.

I knew I had to add something to my routine to break out of this horrible cycle. Smoke is about the worst trigger for raising inflamation in the lungs. So about 2 years ago or so, I added HTS and tumeric (curcumin) capsules and NAC capsules -- all of which are currently being studied by the Cystic Fibrosis Foundation. And they do caution people from trying tumeric and NAC until testing is finished. However I didn't want to wait years, I take prudent amounts, and I only buy supplements that are standardized (to avoid risk of contaminants.)

But since adding the HTS and these supplements I have not been on any antibiotics at all (over 2 years). And I had several cultures that didn't pick up the usual pseudomonas which was really shocking. I have had one culture recently pick up pseudomonas and staph, but the bugs don't seem to be bothering me. But I do believe the amount of bugs might have been reduced and that's why a couple of cultures hadn't picked them up. But best of all, because I was able to stay off antibiotics, all the drug sensitivies returned. And my PFT's went back up to where they were prior to the fire (actually a little higher).

A word about the supplements though. I have no idea if they are appropriate for kids or anyone else for that matter. And I only mentioned them because I started them at the same time I started HTS.

I think HTS is another tool that can really help and as long as you can keep adding things to keep your daughter healthy, there is always reason to be optimistic.
 

Nightwriter

New member
Katie, I also find HTS fantastic. Of course when you do lots of things, like I do, it's hard to point to any one thing. But even so, many mornings I think I have no congestion, but after the HTS and the Flutter, so much mucus comes up which would have just sat in my lungs causing problems.

The reason that I believe HTS works is, because after starting to treat the asthma component of CF eleven years ago, I've never been on IV meds again. Just inhaled Tobi/ Colistin occasionally for a really severe infection. But a few years ago, I had a relapse when my entire neighborhood was on fire (I live in California) and my house filled with smoke. And it smelled of smoke for months. I started getting a lot of exacerbations with more frequent Tobi inhalation, my PFT's started dropping and I had drug resistance to almost everything.

I knew I had to add something to my routine to break out of this horrible cycle. Smoke is about the worst trigger for raising inflamation in the lungs. So about 2 years ago or so, I added HTS and tumeric (curcumin) capsules and NAC capsules -- all of which are currently being studied by the Cystic Fibrosis Foundation. And they do caution people from trying tumeric and NAC until testing is finished. However I didn't want to wait years, I take prudent amounts, and I only buy supplements that are standardized (to avoid risk of contaminants.)

But since adding the HTS and these supplements I have not been on any antibiotics at all (over 2 years). And I had several cultures that didn't pick up the usual pseudomonas which was really shocking. I have had one culture recently pick up pseudomonas and staph, but the bugs don't seem to be bothering me. But I do believe the amount of bugs might have been reduced and that's why a couple of cultures hadn't picked them up. But best of all, because I was able to stay off antibiotics, all the drug sensitivies returned. And my PFT's went back up to where they were prior to the fire (actually a little higher).

A word about the supplements though. I have no idea if they are appropriate for kids or anyone else for that matter. And I only mentioned them because I started them at the same time I started HTS.

I think HTS is another tool that can really help and as long as you can keep adding things to keep your daughter healthy, there is always reason to be optimistic.
 

Nightwriter

New member
Katie, I also find HTS fantastic. Of course when you do lots of things, like I do, it's hard to point to any one thing. But even so, many mornings I think I have no congestion, but after the HTS and the Flutter, so much mucus comes up which would have just sat in my lungs causing problems.
<br />
<br />The reason that I believe HTS works is, because after starting to treat the asthma component of CF eleven years ago, I've never been on IV meds again. Just inhaled Tobi/ Colistin occasionally for a really severe infection. But a few years ago, I had a relapse when my entire neighborhood was on fire (I live in California) and my house filled with smoke. And it smelled of smoke for months. I started getting a lot of exacerbations with more frequent Tobi inhalation, my PFT's started dropping and I had drug resistance to almost everything.
<br />
<br />I knew I had to add something to my routine to break out of this horrible cycle. Smoke is about the worst trigger for raising inflamation in the lungs. So about 2 years ago or so, I added HTS and tumeric (curcumin) capsules and NAC capsules -- all of which are currently being studied by the Cystic Fibrosis Foundation. And they do caution people from trying tumeric and NAC until testing is finished. However I didn't want to wait years, I take prudent amounts, and I only buy supplements that are standardized (to avoid risk of contaminants.)
<br />
<br />But since adding the HTS and these supplements I have not been on any antibiotics at all (over 2 years). And I had several cultures that didn't pick up the usual pseudomonas which was really shocking. I have had one culture recently pick up pseudomonas and staph, but the bugs don't seem to be bothering me. But I do believe the amount of bugs might have been reduced and that's why a couple of cultures hadn't picked them up. But best of all, because I was able to stay off antibiotics, all the drug sensitivies returned. And my PFT's went back up to where they were prior to the fire (actually a little higher).
<br />
<br />A word about the supplements though. I have no idea if they are appropriate for kids or anyone else for that matter. And I only mentioned them because I started them at the same time I started HTS.
<br />
<br />I think HTS is another tool that can really help and as long as you can keep adding things to keep your daughter healthy, there is always reason to be optimistic.
 

ladybug

New member
I'm on HS 7% and have recently upped it to twice a day when I had a cold.

I cough all the time since being on it. Day, Night, always. I don't know if its the cold (I didn't seem to cough as much on it once a day for the past few years) or what, but its getting tons of gunk up.... Now I feel it when I DON'T do a treatment of it... I don't seem to cough as much that day!
 

ladybug

New member
I'm on HS 7% and have recently upped it to twice a day when I had a cold.

I cough all the time since being on it. Day, Night, always. I don't know if its the cold (I didn't seem to cough as much on it once a day for the past few years) or what, but its getting tons of gunk up.... Now I feel it when I DON'T do a treatment of it... I don't seem to cough as much that day!
 

ladybug

New member
I'm on HS 7% and have recently upped it to twice a day when I had a cold.

I cough all the time since being on it. Day, Night, always. I don't know if its the cold (I didn't seem to cough as much on it once a day for the past few years) or what, but its getting tons of gunk up.... Now I feel it when I DON'T do a treatment of it... I don't seem to cough as much that day!
 

ladybug

New member
I'm on HS 7% and have recently upped it to twice a day when I had a cold.

I cough all the time since being on it. Day, Night, always. I don't know if its the cold (I didn't seem to cough as much on it once a day for the past few years) or what, but its getting tons of gunk up.... Now I feel it when I DON'T do a treatment of it... I don't seem to cough as much that day!
 

ladybug

New member
I'm on HS 7% and have recently upped it to twice a day when I had a cold.
<br />
<br />I cough all the time since being on it. Day, Night, always. I don't know if its the cold (I didn't seem to cough as much on it once a day for the past few years) or what, but its getting tons of gunk up.... Now I feel it when I DON'T do a treatment of it... I don't seem to cough as much that day!
<br />
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