Katie, I also find HTS fantastic. Of course when you do lots of things, like I do, it's hard to point to any one thing. But even so, many mornings I think I have no congestion, but after the HTS and the Flutter, so much mucus comes up which would have just sat in my lungs causing problems.
The reason that I believe HTS works is, because after starting to treat the asthma component of CF eleven years ago, I've never been on IV meds again. Just inhaled Tobi/ Colistin occasionally for a really severe infection. But a few years ago, I had a relapse when my entire neighborhood was on fire (I live in California) and my house filled with smoke. And it smelled of smoke for months. I started getting a lot of exacerbations with more frequent Tobi inhalation, my PFT's started dropping and I had drug resistance to almost everything.
I knew I had to add something to my routine to break out of this horrible cycle. Smoke is about the worst trigger for raising inflamation in the lungs. So about 2 years ago or so, I added HTS and tumeric (curcumin) capsules and NAC capsules -- all of which are currently being studied by the Cystic Fibrosis Foundation. And they do caution people from trying tumeric and NAC until testing is finished. However I didn't want to wait years, I take prudent amounts, and I only buy supplements that are standardized (to avoid risk of contaminants.)
But since adding the HTS and these supplements I have not been on any antibiotics at all (over 2 years). And I had several cultures that didn't pick up the usual pseudomonas which was really shocking. I have had one culture recently pick up pseudomonas and staph, but the bugs don't seem to be bothering me. But I do believe the amount of bugs might have been reduced and that's why a couple of cultures hadn't picked them up. But best of all, because I was able to stay off antibiotics, all the drug sensitivies returned. And my PFT's went back up to where they were prior to the fire (actually a little higher).
A word about the supplements though. I have no idea if they are appropriate for kids or anyone else for that matter. And I only mentioned them because I started them at the same time I started HTS.
I think HTS is another tool that can really help and as long as you can keep adding things to keep your daughter healthy, there is always reason to be optimistic.