GrantsWife
New member
I guess I am a bit more nervous than usual being it is around Christmas. I know he will do good but I guess I just need to go where the worrying is understood and have encouragement. If I don't keep myself positive then how can I stay positive and encouraging for him. If he is nervous, I need to give him the support he deserves. Last time we went they did not make it aware to us that they had changed the PFT results to match how everyone else in the world was doing it. They said they changed it to be more of an accurate result and something about going by litres I believe. Anyway, you probably shouldn't ask me about it because it confused me and DH just as much as it does for you all. I have no way of explaining what they meant.
Anyway, the results were a shock to us at first. In the spring of this year his results were mid to high 60's which is good considering that they had dropped down to 43% from mid 70% the previous year and also having an exacerbation. This past time he went in, it was 53%. Our faces were just like <img src="i/expressions/face-icon-small-blush.gif" border="0"> how come the doctors are not worried. Usually if it drops below 10 % that means automatic put in the hospital. Plus I was nervous to hear such a low number after all the great progress he has made since last year. He hasn't had to be hospitalized in almost 2 years. Since we were concerned about the PFT's and how they measured up. The doctor showed us on the computer all of his results (which was awesome to see the progress) and all the things he has cultured.
She reassured us that had they been still totalling the PFT's the way they did before he still would have had a result in the mid 60's and this is why they were not concerned. Also, she showed us that he has not cultured anything since starting Tobramycin which was almost 2 years ago. I loved seeing that. I mean I am sure he still cultures like some bacteria but none of the major ones to be of concern like staph, pseudo, cepacia, etc. Now I didn't expect to be rambling on I just wanted to bring everyone up to the story. I guess I am just nervous seeing as it is near Christmas and also his PFT's being around only 50% scares me for him. If it gets lower, he could be in serious, serious danger right? We know that if he is below 30% he would be talking transplant. I don't want for him to be worried and hospitalized again. So I am just going to try and stay strong and encourage him to do the best he can today. Who knows maybe he will get better than 53%? That would be a great Christmas present.
I just wanted to give an update on hubby for all of you. Hoping you could wish him luck today. It would be appreciated. Hope all of you are staying strong and healthy for the holidays as well. Happy Holidays.
Anyway, the results were a shock to us at first. In the spring of this year his results were mid to high 60's which is good considering that they had dropped down to 43% from mid 70% the previous year and also having an exacerbation. This past time he went in, it was 53%. Our faces were just like <img src="i/expressions/face-icon-small-blush.gif" border="0"> how come the doctors are not worried. Usually if it drops below 10 % that means automatic put in the hospital. Plus I was nervous to hear such a low number after all the great progress he has made since last year. He hasn't had to be hospitalized in almost 2 years. Since we were concerned about the PFT's and how they measured up. The doctor showed us on the computer all of his results (which was awesome to see the progress) and all the things he has cultured.
She reassured us that had they been still totalling the PFT's the way they did before he still would have had a result in the mid 60's and this is why they were not concerned. Also, she showed us that he has not cultured anything since starting Tobramycin which was almost 2 years ago. I loved seeing that. I mean I am sure he still cultures like some bacteria but none of the major ones to be of concern like staph, pseudo, cepacia, etc. Now I didn't expect to be rambling on I just wanted to bring everyone up to the story. I guess I am just nervous seeing as it is near Christmas and also his PFT's being around only 50% scares me for him. If it gets lower, he could be in serious, serious danger right? We know that if he is below 30% he would be talking transplant. I don't want for him to be worried and hospitalized again. So I am just going to try and stay strong and encourage him to do the best he can today. Who knows maybe he will get better than 53%? That would be a great Christmas present.
I just wanted to give an update on hubby for all of you. Hoping you could wish him luck today. It would be appreciated. Hope all of you are staying strong and healthy for the holidays as well. Happy Holidays.