JohnnaMarie
New member
Hello :
I am 26/f/cf and have just got the test results back that my husband does not carry the cf gene!!! We used A**** Genetics to test his blood sample. They tested for tons and tons of the differant gene mutations. That was the biggest thing for us that when we got our news back that we could be confident that the testing was very thorough. We were not even gonna take the chance until we found out for sure. We have been married for three years and are thinking that we want to have one child maybe two if I can stay healthy.
My PFTs have been above 100 percent most of my life... My worst part of CF for me has been my guts. My younger brother has CF too. When I was little i was not diagnosed till i was 5 years old. That was when my little brother was born. He had the bowel that was broken when he was born. The doctors thought that I could have CF too since he obviously had it. So, my intestines got really messed up because for so long I was untreated. I had the typical distended abdomen when I was young and was really skinny.
For the last couple of years my last doc put me on lots of laxitives instead of taking me off my Creons...they were making my guts move slower and slower...and all the laxitives ...they were dehydrating me and making me feel so sick. I was just recently taken off of my digestive enzymes. Without the enzymes in me my guts have started working again on their own! And no laxitives yes!! I have a new doctor and she is awesome!! There was a couple of months that I was really wondering if I was gonna get any better tho. I had tons of burning in my guts. I guess I had some sort of a withdrawl from all the laxitives and my guts had to learn to move on their own again. I had been overmedicated by my last doctor and he had been doing it to me for years. I wish i would have known sooner.. Now, I seem to be doing alot better. I feel alot better now!
Now that I think I might be able to get along without all those laxitives because I am not on the Creons we have been thinking that this may be a good time to get me to my healthiest so that I can have a healthy pregnancy..or the healthiest one I can have.
Is there anyone else out there that has pfts like mine ? It would be great to talk to someone that might have some advice...or to hear how their pregnancy went for them. Or if anyone has any questions for me.... I am just kindda anxious because I never thought I could have kids....and now there is that hope because I have read how so many ladies have had children .. I am kindda worried about the possibility of becoming diabetic during pregnancy. I am fine now with my blood sugar...just have the fear of the unknown.
<img src="i/expressions/heart.gif" border="0"> johnna
I am 26/f/cf and have just got the test results back that my husband does not carry the cf gene!!! We used A**** Genetics to test his blood sample. They tested for tons and tons of the differant gene mutations. That was the biggest thing for us that when we got our news back that we could be confident that the testing was very thorough. We were not even gonna take the chance until we found out for sure. We have been married for three years and are thinking that we want to have one child maybe two if I can stay healthy.
My PFTs have been above 100 percent most of my life... My worst part of CF for me has been my guts. My younger brother has CF too. When I was little i was not diagnosed till i was 5 years old. That was when my little brother was born. He had the bowel that was broken when he was born. The doctors thought that I could have CF too since he obviously had it. So, my intestines got really messed up because for so long I was untreated. I had the typical distended abdomen when I was young and was really skinny.
For the last couple of years my last doc put me on lots of laxitives instead of taking me off my Creons...they were making my guts move slower and slower...and all the laxitives ...they were dehydrating me and making me feel so sick. I was just recently taken off of my digestive enzymes. Without the enzymes in me my guts have started working again on their own! And no laxitives yes!! I have a new doctor and she is awesome!! There was a couple of months that I was really wondering if I was gonna get any better tho. I had tons of burning in my guts. I guess I had some sort of a withdrawl from all the laxitives and my guts had to learn to move on their own again. I had been overmedicated by my last doctor and he had been doing it to me for years. I wish i would have known sooner.. Now, I seem to be doing alot better. I feel alot better now!
Now that I think I might be able to get along without all those laxitives because I am not on the Creons we have been thinking that this may be a good time to get me to my healthiest so that I can have a healthy pregnancy..or the healthiest one I can have.
Is there anyone else out there that has pfts like mine ? It would be great to talk to someone that might have some advice...or to hear how their pregnancy went for them. Or if anyone has any questions for me.... I am just kindda anxious because I never thought I could have kids....and now there is that hope because I have read how so many ladies have had children .. I am kindda worried about the possibility of becoming diabetic during pregnancy. I am fine now with my blood sugar...just have the fear of the unknown.
<img src="i/expressions/heart.gif" border="0"> johnna