husband with cf. Starting IVF

R

rvm1212

New member
HI!

My husband was diagnosed with cf 1.5 years ago at 35. (I posted sometimes in this forum, but haven´t post for a long time). His health is very good and we are thinking of having children with ivf. In fact we are starting it this week!!!!!.
I have taken the full ambry test and I am negative for cf mutations.
The test sais that the risk I am a carrier would be 1/2500. So I guess that the risk of having a child with cf is very low, but I am still worried. I cannot help wondering is that risk stimate is accurate since we don´t know yet how many cf mutation exists.
Do you think I am "overworried"? Have any of you have a child with cf after having a negative full ambry test?.
The ginecologist said we could use a donor so we wouldn´t have any risk, but we would prefer to use his sperm if the risk is low.
Sorry this is so long <img src="i/expressions/face-icon-small-smile.gif" border="0">. I am so excited of starting IVF!!!!.
 
R

rvm1212

New member
HI!

My husband was diagnosed with cf 1.5 years ago at 35. (I posted sometimes in this forum, but haven´t post for a long time). His health is very good and we are thinking of having children with ivf. In fact we are starting it this week!!!!!.
I have taken the full ambry test and I am negative for cf mutations.
The test sais that the risk I am a carrier would be 1/2500. So I guess that the risk of having a child with cf is very low, but I am still worried. I cannot help wondering is that risk stimate is accurate since we don´t know yet how many cf mutation exists.
Do you think I am "overworried"? Have any of you have a child with cf after having a negative full ambry test?.
The ginecologist said we could use a donor so we wouldn´t have any risk, but we would prefer to use his sperm if the risk is low.
Sorry this is so long <img src="i/expressions/face-icon-small-smile.gif" border="0">. I am so excited of starting IVF!!!!.
 
R

rvm1212

New member
HI!

My husband was diagnosed with cf 1.5 years ago at 35. (I posted sometimes in this forum, but haven´t post for a long time). His health is very good and we are thinking of having children with ivf. In fact we are starting it this week!!!!!.
I have taken the full ambry test and I am negative for cf mutations.
The test sais that the risk I am a carrier would be 1/2500. So I guess that the risk of having a child with cf is very low, but I am still worried. I cannot help wondering is that risk stimate is accurate since we don´t know yet how many cf mutation exists.
Do you think I am "overworried"? Have any of you have a child with cf after having a negative full ambry test?.
The ginecologist said we could use a donor so we wouldn´t have any risk, but we would prefer to use his sperm if the risk is low.
Sorry this is so long <img src="i/expressions/face-icon-small-smile.gif" border="0">. I am so excited of starting IVF!!!!.
 
R

rvm1212

New member
HI!

My husband was diagnosed with cf 1.5 years ago at 35. (I posted sometimes in this forum, but haven´t post for a long time). His health is very good and we are thinking of having children with ivf. In fact we are starting it this week!!!!!.
I have taken the full ambry test and I am negative for cf mutations.
The test sais that the risk I am a carrier would be 1/2500. So I guess that the risk of having a child with cf is very low, but I am still worried. I cannot help wondering is that risk stimate is accurate since we don´t know yet how many cf mutation exists.
Do you think I am "overworried"? Have any of you have a child with cf after having a negative full ambry test?.
The ginecologist said we could use a donor so we wouldn´t have any risk, but we would prefer to use his sperm if the risk is low.
Sorry this is so long <img src="i/expressions/face-icon-small-smile.gif" border="0">. I am so excited of starting IVF!!!!.
 
R

rvm1212

New member
HI!
<br />
<br />My husband was diagnosed with cf 1.5 years ago at 35. (I posted sometimes in this forum, but haven´t post for a long time). His health is very good and we are thinking of having children with ivf. In fact we are starting it this week!!!!!.
<br />I have taken the full ambry test and I am negative for cf mutations.
<br />The test sais that the risk I am a carrier would be 1/2500. So I guess that the risk of having a child with cf is very low, but I am still worried. I cannot help wondering is that risk stimate is accurate since we don´t know yet how many cf mutation exists.
<br />Do you think I am "overworried"? Have any of you have a child with cf after having a negative full ambry test?.
<br />The ginecologist said we could use a donor so we wouldn´t have any risk, but we would prefer to use his sperm if the risk is low.
<br />Sorry this is so long <img src="i/expressions/face-icon-small-smile.gif" border="0">. I am so excited of starting IVF!!!!.
 
M

mom2lillian

New member
You have done everything to be prepared that you can do. The chance that your child will have cf, at this point, is less than the chance of them having downs, syndrome x, or any of the other diseases that we worry about. Also, since your husband was diagnosed in his 30's and his health is very good I would assume it was due to infertility? I think it sounds like you have done your homework and preparation, IVF can be a nerve racking journey in and of itself so if I were you, having done your homework I would put the CF worry to the side. There is, of course, always a possibility and you could explore genetic testing during an amnio or once your child is born.

I too did IVF and I would recommend you visit www.ivfconnections.net/board to go to their forums and find others whom you will be cycling with, you will learn alot and can share your worries with others at the exact same stage as you. I still chat with a small group moms whom all had their babies within a month of me our daughter.

best of luck
 
M

mom2lillian

New member
You have done everything to be prepared that you can do. The chance that your child will have cf, at this point, is less than the chance of them having downs, syndrome x, or any of the other diseases that we worry about. Also, since your husband was diagnosed in his 30's and his health is very good I would assume it was due to infertility? I think it sounds like you have done your homework and preparation, IVF can be a nerve racking journey in and of itself so if I were you, having done your homework I would put the CF worry to the side. There is, of course, always a possibility and you could explore genetic testing during an amnio or once your child is born.

I too did IVF and I would recommend you visit www.ivfconnections.net/board to go to their forums and find others whom you will be cycling with, you will learn alot and can share your worries with others at the exact same stage as you. I still chat with a small group moms whom all had their babies within a month of me our daughter.

best of luck
 
M

mom2lillian

New member
You have done everything to be prepared that you can do. The chance that your child will have cf, at this point, is less than the chance of them having downs, syndrome x, or any of the other diseases that we worry about. Also, since your husband was diagnosed in his 30's and his health is very good I would assume it was due to infertility? I think it sounds like you have done your homework and preparation, IVF can be a nerve racking journey in and of itself so if I were you, having done your homework I would put the CF worry to the side. There is, of course, always a possibility and you could explore genetic testing during an amnio or once your child is born.

I too did IVF and I would recommend you visit www.ivfconnections.net/board to go to their forums and find others whom you will be cycling with, you will learn alot and can share your worries with others at the exact same stage as you. I still chat with a small group moms whom all had their babies within a month of me our daughter.

best of luck
 
M

mom2lillian

New member
You have done everything to be prepared that you can do. The chance that your child will have cf, at this point, is less than the chance of them having downs, syndrome x, or any of the other diseases that we worry about. Also, since your husband was diagnosed in his 30's and his health is very good I would assume it was due to infertility? I think it sounds like you have done your homework and preparation, IVF can be a nerve racking journey in and of itself so if I were you, having done your homework I would put the CF worry to the side. There is, of course, always a possibility and you could explore genetic testing during an amnio or once your child is born.

I too did IVF and I would recommend you visit www.ivfconnections.net/board to go to their forums and find others whom you will be cycling with, you will learn alot and can share your worries with others at the exact same stage as you. I still chat with a small group moms whom all had their babies within a month of me our daughter.

best of luck
 
M

mom2lillian

New member
You have done everything to be prepared that you can do. The chance that your child will have cf, at this point, is less than the chance of them having downs, syndrome x, or any of the other diseases that we worry about. Also, since your husband was diagnosed in his 30's and his health is very good I would assume it was due to infertility? I think it sounds like you have done your homework and preparation, IVF can be a nerve racking journey in and of itself so if I were you, having done your homework I would put the CF worry to the side. There is, of course, always a possibility and you could explore genetic testing during an amnio or once your child is born.
<br />
<br />I too did IVF and I would recommend you visit www.ivfconnections.net/board to go to their forums and find others whom you will be cycling with, you will learn alot and can share your worries with others at the exact same stage as you. I still chat with a small group moms whom all had their babies within a month of me our daughter.
<br />
<br />best of luck
 
J

julie

New member
I did the ambry test when there were about 1100 known mutations, and I had the same worries you do.

Your chances are VERY VERY low.

There area few other families going through IVF right now. Let me know if you are interested in checking them out, I'm trying to keep us all in touch with eachother <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
J

julie

New member
I did the ambry test when there were about 1100 known mutations, and I had the same worries you do.

Your chances are VERY VERY low.

There area few other families going through IVF right now. Let me know if you are interested in checking them out, I'm trying to keep us all in touch with eachother <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
J

julie

New member
I did the ambry test when there were about 1100 known mutations, and I had the same worries you do.

Your chances are VERY VERY low.

There area few other families going through IVF right now. Let me know if you are interested in checking them out, I'm trying to keep us all in touch with eachother <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
J

julie

New member
I did the ambry test when there were about 1100 known mutations, and I had the same worries you do.

Your chances are VERY VERY low.

There area few other families going through IVF right now. Let me know if you are interested in checking them out, I'm trying to keep us all in touch with eachother <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
J

julie

New member
I did the ambry test when there were about 1100 known mutations, and I had the same worries you do.
<br />
<br />Your chances are VERY VERY low.
<br />
<br />There area few other families going through IVF right now. Let me know if you are interested in checking them out, I'm trying to keep us all in touch with eachother <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
H

hopesiris

Guest
Are you going to be having a CVS to determine carrier status? Sorry I don't remember if you are over age 35. If you are having that done they can test for the known mutations at that time. As for the possibility of CF, you can check to see if your state mandates a test at birth. Even with mild CF I believe it would show as positive. Maybe that would help you relax. I wish you the best of luck and I hope you are preggers soon. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
H

hopesiris

Guest
Are you going to be having a CVS to determine carrier status? Sorry I don't remember if you are over age 35. If you are having that done they can test for the known mutations at that time. As for the possibility of CF, you can check to see if your state mandates a test at birth. Even with mild CF I believe it would show as positive. Maybe that would help you relax. I wish you the best of luck and I hope you are preggers soon. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
H

hopesiris

Guest
Are you going to be having a CVS to determine carrier status? Sorry I don't remember if you are over age 35. If you are having that done they can test for the known mutations at that time. As for the possibility of CF, you can check to see if your state mandates a test at birth. Even with mild CF I believe it would show as positive. Maybe that would help you relax. I wish you the best of luck and I hope you are preggers soon. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
H

hopesiris

Guest
Are you going to be having a CVS to determine carrier status? Sorry I don't remember if you are over age 35. If you are having that done they can test for the known mutations at that time. As for the possibility of CF, you can check to see if your state mandates a test at birth. Even with mild CF I believe it would show as positive. Maybe that would help you relax. I wish you the best of luck and I hope you are preggers soon. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
H

hopesiris

Guest
Are you going to be having a CVS to determine carrier status? Sorry I don't remember if you are over age 35. If you are having that done they can test for the known mutations at that time. As for the possibility of CF, you can check to see if your state mandates a test at birth. Even with mild CF I believe it would show as positive. Maybe that would help you relax. I wish you the best of luck and I hope you are preggers soon. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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