Hypertonic Saline and young children

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anonymous

New member
I was curious if anyone with a young child has tried the hypertonic saline neb? My daughter is only 3 but I was going to ask her doc at the next clinic visit if she would benefit from it. is it something you use every day or just when you are sick? I know before the article came out about the hypertonic saline , her doc said it can be irritating to mucous membranes. Does it help get rid of the actual bacteria or just the mucous in the lungs?

TIA
Rebecca(mom to Sammy 7 no CF and MAggie 3 with CF)
 
A

anonymous

New member
I was curious if anyone with a young child has tried the hypertonic saline neb? My daughter is only 3 but I was going to ask her doc at the next clinic visit if she would benefit from it. is it something you use every day or just when you are sick? I know before the article came out about the hypertonic saline , her doc said it can be irritating to mucous membranes. Does it help get rid of the actual bacteria or just the mucous in the lungs?

TIA
Rebecca(mom to Sammy 7 no CF and MAggie 3 with CF)
 
A

anonymous

New member
I asked our doc a couple of weeks ago about it. he said if you gave this treatment to your child they would hate you for the rest of your life. Evidently, it works by really irritating the lungs forcing cough spells. He said he had even seen blood spit up with patients who were sick.

I would be intersted in seeing other comments though.
 
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anonymous

New member
I asked our doc a couple of weeks ago about it. he said if you gave this treatment to your child they would hate you for the rest of your life. Evidently, it works by really irritating the lungs forcing cough spells. He said he had even seen blood spit up with patients who were sick.

I would be intersted in seeing other comments though.
 
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anonymous

New member
I wonder if it irritates the lungs so much, would it cause inflammation as well, which is already a component of CF.

Rebecca
 
A

anonymous

New member
I wonder if it irritates the lungs so much, would it cause inflammation as well, which is already a component of CF.

Rebecca
 
C

cfmomma

New member
my son just got out of the hospital for a tune up and he tried hypertonic saline for the first time. He had no problem with it at all. The RT was wonderful and sat with him during the whole treatment, he did the vest at the same time. The RT did say that for some kids it will irritate the lungs and cause them to start wheezing, but they follow with an albuterol treatment if necessary. I would give it try because it definitly helped my son cough up a bunch of gunk and his pft's are better than ever. He only used it in the hospital when his lungs were gunky ( I don't know if gunk is a word but you get the point) The doctor said it loosened everything up and inhibited bacteria, not killed bacteria.
 
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cfmomma

New member
my son just got out of the hospital for a tune up and he tried hypertonic saline for the first time. He had no problem with it at all. The RT was wonderful and sat with him during the whole treatment, he did the vest at the same time. The RT did say that for some kids it will irritate the lungs and cause them to start wheezing, but they follow with an albuterol treatment if necessary. I would give it try because it definitly helped my son cough up a bunch of gunk and his pft's are better than ever. He only used it in the hospital when his lungs were gunky ( I don't know if gunk is a word but you get the point) The doctor said it loosened everything up and inhibited bacteria, not killed bacteria.
 
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cfmomma

New member
He's doing great!! However, he has been the biggest brat since we got home. He got spoiled by everyone while he was in the hospital and now expects to be treated that way at home. He's making me crazy, but at least he feels good!
 
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cfmomma

New member
He's doing great!! However, he has been the biggest brat since we got home. He got spoiled by everyone while he was in the hospital and now expects to be treated that way at home. He's making me crazy, but at least he feels good!
 
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anonymous

New member
My four-year old daughter started it two month ago. No problems. She actually seems to like it better than some of her other treatments.
Sharon, mom of Sophia, 4 and Jack, 2 both with cf
 
A

anonymous

New member
My four-year old daughter started it two month ago. No problems. She actually seems to like it better than some of her other treatments.
Sharon, mom of Sophia, 4 and Jack, 2 both with cf
 
A

anonymous

New member
I'm planning to ask about hypertonic saline at our next appointment also. DS will be three this summer. Other than a bout of bronchitis at 3 months, he's mainly had sinus type issues -- sinus infections, so I was surprised his local doctor wanted him on pulmozyme. He's been on it for 6-7 months and I can't see a difference and really question his need to be on it. Some may say, well, it doesn't hurt, but I can't help but think that HS might be a better alternative at this point. Guess I'll see what they say at CF clinic next month.

Liza
 
A

anonymous

New member
I'm planning to ask about hypertonic saline at our next appointment also. DS will be three this summer. Other than a bout of bronchitis at 3 months, he's mainly had sinus type issues -- sinus infections, so I was surprised his local doctor wanted him on pulmozyme. He's been on it for 6-7 months and I can't see a difference and really question his need to be on it. Some may say, well, it doesn't hurt, but I can't help but think that HS might be a better alternative at this point. Guess I'll see what they say at CF clinic next month.

Liza
 
A

anonymous

New member
My 4 yr old daughter has been on it for almost a month now. She does albuterol before the saline to prevent the wheezing. This should be normal procedure for any child on it. It doesn't seem to irritate her at all. She's currently on the 3% but we go back next month to try her on the 7%. I have heard nothing but good things about it.
 
A

anonymous

New member
My 4 yr old daughter has been on it for almost a month now. She does albuterol before the saline to prevent the wheezing. This should be normal procedure for any child on it. It doesn't seem to irritate her at all. She's currently on the 3% but we go back next month to try her on the 7%. I have heard nothing but good things about it.
 
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anonymous

New member
You can find some info on this in the TLC Webcast on CFF.org

To the above poster, the are no "normal procedures" or standard procedures for people with CF, they should all be treated on a case by case basis as their needs are different depending on how they are affected by the disease....
 
A

anonymous

New member
You can find some info on this in the TLC Webcast on CFF.org

To the above poster, the are no "normal procedures" or standard procedures for people with CF, they should all be treated on a case by case basis as their needs are different depending on how they are affected by the disease....
 
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