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Hypertonic Saline and young children
- Thread starter anonymous
- Start date
fourkidsmom
New member
You know I am really curious as to why our doc's haven't put our son on the saline. They haven't even mentioned it. He has had a history of wheezing, bronchial spasms, so maybe that is why? He actually has went to the emergency room 4 times because of not being able to breath, his chest caves in and his lips turn blue-. Scares the s**t out of you! Now they give us racephineprine to have him breath to help get that under control. Thats when they put him on the pulmicort, but never really said anything about asthma. I guess it is still an unknown of why he does that, so with that being siad I guess the saline kind of scares me.
Angie
Step mom to Brittany 14 no cf
Mom to Tyler 12 no cf, cf carrier
Mom to Brady 4 with cf (5 on 3/14/01!!!!!!!!)
Mom to Taylor 3 no cf, but chromosome 9q 21.2 q 22.1 deletion
Angie
Step mom to Brittany 14 no cf
Mom to Tyler 12 no cf, cf carrier
Mom to Brady 4 with cf (5 on 3/14/01!!!!!!!!)
Mom to Taylor 3 no cf, but chromosome 9q 21.2 q 22.1 deletion
I asked my daughter's Cf doc about the Hypertonic saline. He did not want to try it yet. I guess there is a conference in October they go to so he wanted to wait til then. My daughter aslo sees a doc several hours away that is much more research orieted. The next time we see him I'll address it then, again.
Rebecca(mom to sammy 7 no Cf and maggie 3 with CF)
Rebecca(mom to sammy 7 no Cf and maggie 3 with CF)
research shows that pulmozyme works more effectively than HS but it is very costly so some drs/ insurnace companies will fob you off. If your child is on it and are doing well i wouldnt take her off it. We all swallow around 1 pint of Mucus a day ...when you cough and then swallow thats the mucus coming up. Mucus has a great role to play and is needed(thats everyone not just Cfers) with Cf the mucus is thicker and stickier and harder to swallow. therefore it gets stuck and gets infected. With pulmozyme (DNASE) its breaks down the dna in the mucus and thins it out so that the pwcf can swallow the mucus more easliy. You can talk to some adults wcf who state that if they come of the Dnase after a few days they start to notice it. HS is a much cheaper form and for some its great..but if you are on Pulm. i would keep on it as research shows that currently(thats not to say in the future) its the best thing.
The youngest child in the trial was 6 years old so maybe this would be why not all doctors are prescribing it to the young ones. I personally think it is probably a good idea for young CFers who might show signs of wheezing etc to try the 3% solution. Anything to help with extra mucous clearance muct be a good thing. I am going to ask about it at our next CF clinic.
I heard the complete opposite - -that HS was better than pulmozyme and it's actually the saline in the pulmozyme solution that gets stuff moving. As far as appropriate ages for HS -- DS is on tobi and pulmozyme as well as a number of other drugs and all the product literatures says no studies have been done on children under the age of 6 -- DS is only 2 1/2 and has been on pulmozyme for 6 months, tobi for two years.