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Hypertonic Saline, did my reasearch ...
- Thread starter Kelli
- Start date
Ditto to starting off with the 3% -- I think that's probably what they had in mind anyway - our clinic it is standard to try the 3% in clinic, then use it for 3 months at home, then move up to 7% -- so yes, I think it's normal for everyone to try it out in clinic or in hospital first.
Our pharmacy with pre mix it to 7% or give us the 3% & 10% for us to mix at home, either way it is the normal copay amount.
I also want to comment on Marjolein's post about coughing is the whole idea behind H-Saline.... a small correction here as I understand it: yes coughing is a side effect and something that is usually a welcome side effect for those with CF, <u>but the primary purpose of doing H-Saline is to hydrate the lungs </u>(draw more water to the lining, so the cilia can more easily move the mucus up....then you can cough it out)
Our pharmacy with pre mix it to 7% or give us the 3% & 10% for us to mix at home, either way it is the normal copay amount.
I also want to comment on Marjolein's post about coughing is the whole idea behind H-Saline.... a small correction here as I understand it: yes coughing is a side effect and something that is usually a welcome side effect for those with CF, <u>but the primary purpose of doing H-Saline is to hydrate the lungs </u>(draw more water to the lining, so the cilia can more easily move the mucus up....then you can cough it out)
Ditto to starting off with the 3% -- I think that's probably what they had in mind anyway - our clinic it is standard to try the 3% in clinic, then use it for 3 months at home, then move up to 7% -- so yes, I think it's normal for everyone to try it out in clinic or in hospital first.
Our pharmacy with pre mix it to 7% or give us the 3% & 10% for us to mix at home, either way it is the normal copay amount.
I also want to comment on Marjolein's post about coughing is the whole idea behind H-Saline.... a small correction here as I understand it: yes coughing is a side effect and something that is usually a welcome side effect for those with CF, <u>but the primary purpose of doing H-Saline is to hydrate the lungs </u>(draw more water to the lining, so the cilia can more easily move the mucus up....then you can cough it out)
Our pharmacy with pre mix it to 7% or give us the 3% & 10% for us to mix at home, either way it is the normal copay amount.
I also want to comment on Marjolein's post about coughing is the whole idea behind H-Saline.... a small correction here as I understand it: yes coughing is a side effect and something that is usually a welcome side effect for those with CF, <u>but the primary purpose of doing H-Saline is to hydrate the lungs </u>(draw more water to the lining, so the cilia can more easily move the mucus up....then you can cough it out)
Ditto to starting off with the 3% -- I think that's probably what they had in mind anyway - our clinic it is standard to try the 3% in clinic, then use it for 3 months at home, then move up to 7% -- so yes, I think it's normal for everyone to try it out in clinic or in hospital first.
Our pharmacy with pre mix it to 7% or give us the 3% & 10% for us to mix at home, either way it is the normal copay amount.
I also want to comment on Marjolein's post about coughing is the whole idea behind H-Saline.... a small correction here as I understand it: yes coughing is a side effect and something that is usually a welcome side effect for those with CF, <u>but the primary purpose of doing H-Saline is to hydrate the lungs </u>(draw more water to the lining, so the cilia can more easily move the mucus up....then you can cough it out)
Our pharmacy with pre mix it to 7% or give us the 3% & 10% for us to mix at home, either way it is the normal copay amount.
I also want to comment on Marjolein's post about coughing is the whole idea behind H-Saline.... a small correction here as I understand it: yes coughing is a side effect and something that is usually a welcome side effect for those with CF, <u>but the primary purpose of doing H-Saline is to hydrate the lungs </u>(draw more water to the lining, so the cilia can more easily move the mucus up....then you can cough it out)
onlyoneloveinmylife
New member
if 7% percent is too strong for you might i suggest trying 5%?
i do 5 sometimes cause 7 can be too strong.
to get 5% you to 5ml 3% + 2ml 10%. and neb 4ml of it.
i do 5 sometimes cause 7 can be too strong.
to get 5% you to 5ml 3% + 2ml 10%. and neb 4ml of it.
onlyoneloveinmylife
New member
if 7% percent is too strong for you might i suggest trying 5%?
i do 5 sometimes cause 7 can be too strong.
to get 5% you to 5ml 3% + 2ml 10%. and neb 4ml of it.
i do 5 sometimes cause 7 can be too strong.
to get 5% you to 5ml 3% + 2ml 10%. and neb 4ml of it.
onlyoneloveinmylife
New member
if 7% percent is too strong for you might i suggest trying 5%?
i do 5 sometimes cause 7 can be too strong.
to get 5% you to 5ml 3% + 2ml 10%. and neb 4ml of it.
i do 5 sometimes cause 7 can be too strong.
to get 5% you to 5ml 3% + 2ml 10%. and neb 4ml of it.
NathanWind
New member
I had years where hemoptasis was my biggest problem - I'd cough up a lot of blood w/o any underlying lung infection. My doc prescribed Amicar and it did a lot of good. I started 7% hypertonic about 5 months ago and it has been 4 months since my last bout of hemoptasis. My doc is a big believer that clear airways reduce hemoptasis - that even if otherwise undetectable, lung infections are generally the cause. In fact, she doesn't like for me to stop my treatments or PT unless I am coughing up blood, not just streaking.
So, my point is that I'd strongly encourage you to work this in as you can tolerate it. It's tough at first and I dove in head first with the 7%. It's made a real difference for me and continues to do so.
So, my point is that I'd strongly encourage you to work this in as you can tolerate it. It's tough at first and I dove in head first with the 7%. It's made a real difference for me and continues to do so.
NathanWind
New member
I had years where hemoptasis was my biggest problem - I'd cough up a lot of blood w/o any underlying lung infection. My doc prescribed Amicar and it did a lot of good. I started 7% hypertonic about 5 months ago and it has been 4 months since my last bout of hemoptasis. My doc is a big believer that clear airways reduce hemoptasis - that even if otherwise undetectable, lung infections are generally the cause. In fact, she doesn't like for me to stop my treatments or PT unless I am coughing up blood, not just streaking.
So, my point is that I'd strongly encourage you to work this in as you can tolerate it. It's tough at first and I dove in head first with the 7%. It's made a real difference for me and continues to do so.
So, my point is that I'd strongly encourage you to work this in as you can tolerate it. It's tough at first and I dove in head first with the 7%. It's made a real difference for me and continues to do so.
NathanWind
New member
I had years where hemoptasis was my biggest problem - I'd cough up a lot of blood w/o any underlying lung infection. My doc prescribed Amicar and it did a lot of good. I started 7% hypertonic about 5 months ago and it has been 4 months since my last bout of hemoptasis. My doc is a big believer that clear airways reduce hemoptasis - that even if otherwise undetectable, lung infections are generally the cause. In fact, she doesn't like for me to stop my treatments or PT unless I am coughing up blood, not just streaking.
So, my point is that I'd strongly encourage you to work this in as you can tolerate it. It's tough at first and I dove in head first with the 7%. It's made a real difference for me and continues to do so.
So, my point is that I'd strongly encourage you to work this in as you can tolerate it. It's tough at first and I dove in head first with the 7%. It's made a real difference for me and continues to do so.
I have a history of hemoptysis as well...lost a lung to it so my doctor was hesitant to begin HS but after reading on this forum that so many benefitted by it I wanted to try it and he was open to it.
I started HS one year ago and it has improved my lung function from an FEV 1 of 42 to 48 and that's with one lung. It truly helps with my airway clearance. I LOVE THIS STUFF!!!
I started with 3% and after several minutes I coughed up some foamy phlegm that was tinged red. I was scared so I stopped but tried again the next day and did not experience any problems. After a month I moved to 7%.
When you begin HS you do cough a lot but eventually it lessens greatly. The idea of HS is to draw water from your lung to help loosen the mucus making it easier to cough up. I do the HS and vest treatments together
I get mine directly from foundation care. They prepare the vials already premixed and sterile for whatever % you want up to 5ml each.
Cost is $36 for 60 vials, that's a one month's supply and includes free shipping. Check them out at foundcare.com -- 314.291.1122 (St Louis Area) 877.291.1122 (Toll Free) They have excellent service.
I am starting tobra this week and because I am getting it through foundation care they are giving me the eflow and now my HS for free as well as vitamins. You might want to check them out.
I started HS one year ago and it has improved my lung function from an FEV 1 of 42 to 48 and that's with one lung. It truly helps with my airway clearance. I LOVE THIS STUFF!!!
I started with 3% and after several minutes I coughed up some foamy phlegm that was tinged red. I was scared so I stopped but tried again the next day and did not experience any problems. After a month I moved to 7%.
When you begin HS you do cough a lot but eventually it lessens greatly. The idea of HS is to draw water from your lung to help loosen the mucus making it easier to cough up. I do the HS and vest treatments together
I get mine directly from foundation care. They prepare the vials already premixed and sterile for whatever % you want up to 5ml each.
Cost is $36 for 60 vials, that's a one month's supply and includes free shipping. Check them out at foundcare.com -- 314.291.1122 (St Louis Area) 877.291.1122 (Toll Free) They have excellent service.
I am starting tobra this week and because I am getting it through foundation care they are giving me the eflow and now my HS for free as well as vitamins. You might want to check them out.
I have a history of hemoptysis as well...lost a lung to it so my doctor was hesitant to begin HS but after reading on this forum that so many benefitted by it I wanted to try it and he was open to it.
I started HS one year ago and it has improved my lung function from an FEV 1 of 42 to 48 and that's with one lung. It truly helps with my airway clearance. I LOVE THIS STUFF!!!
I started with 3% and after several minutes I coughed up some foamy phlegm that was tinged red. I was scared so I stopped but tried again the next day and did not experience any problems. After a month I moved to 7%.
When you begin HS you do cough a lot but eventually it lessens greatly. The idea of HS is to draw water from your lung to help loosen the mucus making it easier to cough up. I do the HS and vest treatments together
I get mine directly from foundation care. They prepare the vials already premixed and sterile for whatever % you want up to 5ml each.
Cost is $36 for 60 vials, that's a one month's supply and includes free shipping. Check them out at foundcare.com -- 314.291.1122 (St Louis Area) 877.291.1122 (Toll Free) They have excellent service.
I am starting tobra this week and because I am getting it through foundation care they are giving me the eflow and now my HS for free as well as vitamins. You might want to check them out.
I started HS one year ago and it has improved my lung function from an FEV 1 of 42 to 48 and that's with one lung. It truly helps with my airway clearance. I LOVE THIS STUFF!!!
I started with 3% and after several minutes I coughed up some foamy phlegm that was tinged red. I was scared so I stopped but tried again the next day and did not experience any problems. After a month I moved to 7%.
When you begin HS you do cough a lot but eventually it lessens greatly. The idea of HS is to draw water from your lung to help loosen the mucus making it easier to cough up. I do the HS and vest treatments together
I get mine directly from foundation care. They prepare the vials already premixed and sterile for whatever % you want up to 5ml each.
Cost is $36 for 60 vials, that's a one month's supply and includes free shipping. Check them out at foundcare.com -- 314.291.1122 (St Louis Area) 877.291.1122 (Toll Free) They have excellent service.
I am starting tobra this week and because I am getting it through foundation care they are giving me the eflow and now my HS for free as well as vitamins. You might want to check them out.
I have a history of hemoptysis as well...lost a lung to it so my doctor was hesitant to begin HS but after reading on this forum that so many benefitted by it I wanted to try it and he was open to it.
I started HS one year ago and it has improved my lung function from an FEV 1 of 42 to 48 and that's with one lung. It truly helps with my airway clearance. I LOVE THIS STUFF!!!
I started with 3% and after several minutes I coughed up some foamy phlegm that was tinged red. I was scared so I stopped but tried again the next day and did not experience any problems. After a month I moved to 7%.
When you begin HS you do cough a lot but eventually it lessens greatly. The idea of HS is to draw water from your lung to help loosen the mucus making it easier to cough up. I do the HS and vest treatments together
I get mine directly from foundation care. They prepare the vials already premixed and sterile for whatever % you want up to 5ml each.
Cost is $36 for 60 vials, that's a one month's supply and includes free shipping. Check them out at foundcare.com -- 314.291.1122 (St Louis Area) 877.291.1122 (Toll Free) They have excellent service.
I am starting tobra this week and because I am getting it through foundation care they are giving me the eflow and now my HS for free as well as vitamins. You might want to check them out.
I started HS one year ago and it has improved my lung function from an FEV 1 of 42 to 48 and that's with one lung. It truly helps with my airway clearance. I LOVE THIS STUFF!!!
I started with 3% and after several minutes I coughed up some foamy phlegm that was tinged red. I was scared so I stopped but tried again the next day and did not experience any problems. After a month I moved to 7%.
When you begin HS you do cough a lot but eventually it lessens greatly. The idea of HS is to draw water from your lung to help loosen the mucus making it easier to cough up. I do the HS and vest treatments together
I get mine directly from foundation care. They prepare the vials already premixed and sterile for whatever % you want up to 5ml each.
Cost is $36 for 60 vials, that's a one month's supply and includes free shipping. Check them out at foundcare.com -- 314.291.1122 (St Louis Area) 877.291.1122 (Toll Free) They have excellent service.
I am starting tobra this week and because I am getting it through foundation care they are giving me the eflow and now my HS for free as well as vitamins. You might want to check them out.
my65roses4me
New member
Hi Kelli,
I have a huge prob with hemoptysis too. I have had my left upper lung removed because of hemoraging so bad.
They started me on HS in the hospital during one of my stays. It doesn't seem to aggrevate my hemoptysis at all. I was so reluctant to try it because of the fear of making the bleeding worse. But so far so good.
I would reccomend doing it in clinic or your next "tune-up" just so you have your Dr around, if for nothing else just for the peace of mind.
I would say dont be afraid to try it but I know that would be ridiculous to say, but it seems to be ok for me.
I hope it all goes well with you. If you have any questions please feel free to pm me. Good luck!
I have a huge prob with hemoptysis too. I have had my left upper lung removed because of hemoraging so bad.
They started me on HS in the hospital during one of my stays. It doesn't seem to aggrevate my hemoptysis at all. I was so reluctant to try it because of the fear of making the bleeding worse. But so far so good.
I would reccomend doing it in clinic or your next "tune-up" just so you have your Dr around, if for nothing else just for the peace of mind.
I would say dont be afraid to try it but I know that would be ridiculous to say, but it seems to be ok for me.
I hope it all goes well with you. If you have any questions please feel free to pm me. Good luck!
my65roses4me
New member
Hi Kelli,
I have a huge prob with hemoptysis too. I have had my left upper lung removed because of hemoraging so bad.
They started me on HS in the hospital during one of my stays. It doesn't seem to aggrevate my hemoptysis at all. I was so reluctant to try it because of the fear of making the bleeding worse. But so far so good.
I would reccomend doing it in clinic or your next "tune-up" just so you have your Dr around, if for nothing else just for the peace of mind.
I would say dont be afraid to try it but I know that would be ridiculous to say, but it seems to be ok for me.
I hope it all goes well with you. If you have any questions please feel free to pm me. Good luck!
I have a huge prob with hemoptysis too. I have had my left upper lung removed because of hemoraging so bad.
They started me on HS in the hospital during one of my stays. It doesn't seem to aggrevate my hemoptysis at all. I was so reluctant to try it because of the fear of making the bleeding worse. But so far so good.
I would reccomend doing it in clinic or your next "tune-up" just so you have your Dr around, if for nothing else just for the peace of mind.
I would say dont be afraid to try it but I know that would be ridiculous to say, but it seems to be ok for me.
I hope it all goes well with you. If you have any questions please feel free to pm me. Good luck!
my65roses4me
New member
Hi Kelli,
I have a huge prob with hemoptysis too. I have had my left upper lung removed because of hemoraging so bad.
They started me on HS in the hospital during one of my stays. It doesn't seem to aggrevate my hemoptysis at all. I was so reluctant to try it because of the fear of making the bleeding worse. But so far so good.
I would reccomend doing it in clinic or your next "tune-up" just so you have your Dr around, if for nothing else just for the peace of mind.
I would say dont be afraid to try it but I know that would be ridiculous to say, but it seems to be ok for me.
I hope it all goes well with you. If you have any questions please feel free to pm me. Good luck!
I have a huge prob with hemoptysis too. I have had my left upper lung removed because of hemoraging so bad.
They started me on HS in the hospital during one of my stays. It doesn't seem to aggrevate my hemoptysis at all. I was so reluctant to try it because of the fear of making the bleeding worse. But so far so good.
I would reccomend doing it in clinic or your next "tune-up" just so you have your Dr around, if for nothing else just for the peace of mind.
I would say dont be afraid to try it but I know that would be ridiculous to say, but it seems to be ok for me.
I hope it all goes well with you. If you have any questions please feel free to pm me. Good luck!