Hypertonic Saline Use for Infant

K

kaylee04cassidy08

Guest
My daughter is 18 months and in the HS study. I am positive that she has the 7% solution and not the placebo. It does not take a rocket scientist to figure that out. Anyways, HS seems to be irritating at first, but after a while it calms down. I think the possible benefits of HS outweigh any risks and therefore I felt comfortable putting her on it. She has been on it for 6 months and is doing great. She got over several colds without abx which I attribute to the HS. She is on abx now with staph, but there were only a minor # of colonies - probably would have been many more if not for the HS thinning her mucus.

As always, do what you think is best. I will tell you though -- the hesitation you may feel because everything is "normal" right now and you want to keep it that way as long as possible ie: why do treatments when you aren't having problems? -- well, I fought that as well, but have found that the more I do to prevent infection, the better I feel. At least when Cassidy cultured staph the first time, I could say to myself - I did all I could. You know? Yuo just have to realize that all of these things - as heartbreaking as they are at first - become routine. It is just another part of the routine.

No matter what you decide - it is the best choice for you and your child.

Hugs to you.
 
K

kaylee04cassidy08

Guest
My daughter is 18 months and in the HS study. I am positive that she has the 7% solution and not the placebo. It does not take a rocket scientist to figure that out. Anyways, HS seems to be irritating at first, but after a while it calms down. I think the possible benefits of HS outweigh any risks and therefore I felt comfortable putting her on it. She has been on it for 6 months and is doing great. She got over several colds without abx which I attribute to the HS. She is on abx now with staph, but there were only a minor # of colonies - probably would have been many more if not for the HS thinning her mucus.

As always, do what you think is best. I will tell you though -- the hesitation you may feel because everything is "normal" right now and you want to keep it that way as long as possible ie: why do treatments when you aren't having problems? -- well, I fought that as well, but have found that the more I do to prevent infection, the better I feel. At least when Cassidy cultured staph the first time, I could say to myself - I did all I could. You know? Yuo just have to realize that all of these things - as heartbreaking as they are at first - become routine. It is just another part of the routine.

No matter what you decide - it is the best choice for you and your child.

Hugs to you.
 
K

kaylee04cassidy08

Guest
My daughter is 18 months and in the HS study. I am positive that she has the 7% solution and not the placebo. It does not take a rocket scientist to figure that out. Anyways, HS seems to be irritating at first, but after a while it calms down. I think the possible benefits of HS outweigh any risks and therefore I felt comfortable putting her on it. She has been on it for 6 months and is doing great. She got over several colds without abx which I attribute to the HS. She is on abx now with staph, but there were only a minor # of colonies - probably would have been many more if not for the HS thinning her mucus.

As always, do what you think is best. I will tell you though -- the hesitation you may feel because everything is "normal" right now and you want to keep it that way as long as possible ie: why do treatments when you aren't having problems? -- well, I fought that as well, but have found that the more I do to prevent infection, the better I feel. At least when Cassidy cultured staph the first time, I could say to myself - I did all I could. You know? Yuo just have to realize that all of these things - as heartbreaking as they are at first - become routine. It is just another part of the routine.

No matter what you decide - it is the best choice for you and your child.

Hugs to you.
 
K

kaylee04cassidy08

Guest
My daughter is 18 months and in the HS study. I am positive that she has the 7% solution and not the placebo. It does not take a rocket scientist to figure that out. Anyways, HS seems to be irritating at first, but after a while it calms down. I think the possible benefits of HS outweigh any risks and therefore I felt comfortable putting her on it. She has been on it for 6 months and is doing great. She got over several colds without abx which I attribute to the HS. She is on abx now with staph, but there were only a minor # of colonies - probably would have been many more if not for the HS thinning her mucus.

As always, do what you think is best. I will tell you though -- the hesitation you may feel because everything is "normal" right now and you want to keep it that way as long as possible ie: why do treatments when you aren't having problems? -- well, I fought that as well, but have found that the more I do to prevent infection, the better I feel. At least when Cassidy cultured staph the first time, I could say to myself - I did all I could. You know? Yuo just have to realize that all of these things - as heartbreaking as they are at first - become routine. It is just another part of the routine.

No matter what you decide - it is the best choice for you and your child.

Hugs to you.
 
K

kaylee04cassidy08

Guest
My daughter is 18 months and in the HS study. I am positive that she has the 7% solution and not the placebo. It does not take a rocket scientist to figure that out. Anyways, HS seems to be irritating at first, but after a while it calms down. I think the possible benefits of HS outweigh any risks and therefore I felt comfortable putting her on it. She has been on it for 6 months and is doing great. She got over several colds without abx which I attribute to the HS. She is on abx now with staph, but there were only a minor # of colonies - probably would have been many more if not for the HS thinning her mucus.
<br />
<br />As always, do what you think is best. I will tell you though -- the hesitation you may feel because everything is "normal" right now and you want to keep it that way as long as possible ie: why do treatments when you aren't having problems? -- well, I fought that as well, but have found that the more I do to prevent infection, the better I feel. At least when Cassidy cultured staph the first time, I could say to myself - I did all I could. You know? Yuo just have to realize that all of these things - as heartbreaking as they are at first - become routine. It is just another part of the routine.
<br />
<br /> No matter what you decide - it is the best choice for you and your child.
<br />
<br />Hugs to you.
 
M

Mommafirst

Guest
My daughter is turning 4 and is not using HS. She does use pulmozyme and I feel it is helpful for getting her past some of the colds she has. She usually has pretty clear lungs, but a bronch done in July showed a lot of CF-type mucous in there despite "sounding clear".

I definitely plan to discuss HS at her annual visit. I do think we will start it sooner rather than later, but based on her history up till now, I'm not sure its time yet.
 
M

Mommafirst

Guest
My daughter is turning 4 and is not using HS. She does use pulmozyme and I feel it is helpful for getting her past some of the colds she has. She usually has pretty clear lungs, but a bronch done in July showed a lot of CF-type mucous in there despite "sounding clear".

I definitely plan to discuss HS at her annual visit. I do think we will start it sooner rather than later, but based on her history up till now, I'm not sure its time yet.
 
M

Mommafirst

Guest
My daughter is turning 4 and is not using HS. She does use pulmozyme and I feel it is helpful for getting her past some of the colds she has. She usually has pretty clear lungs, but a bronch done in July showed a lot of CF-type mucous in there despite "sounding clear".

I definitely plan to discuss HS at her annual visit. I do think we will start it sooner rather than later, but based on her history up till now, I'm not sure its time yet.
 
M

Mommafirst

Guest
My daughter is turning 4 and is not using HS. She does use pulmozyme and I feel it is helpful for getting her past some of the colds she has. She usually has pretty clear lungs, but a bronch done in July showed a lot of CF-type mucous in there despite "sounding clear".

I definitely plan to discuss HS at her annual visit. I do think we will start it sooner rather than later, but based on her history up till now, I'm not sure its time yet.
 
M

Mommafirst

Guest
My daughter is turning 4 and is not using HS. She does use pulmozyme and I feel it is helpful for getting her past some of the colds she has. She usually has pretty clear lungs, but a bronch done in July showed a lot of CF-type mucous in there despite "sounding clear".
<br />
<br />I definitely plan to discuss HS at her annual visit. I do think we will start it sooner rather than later, but based on her history up till now, I'm not sure its time yet.
 
M

mariahsmommy

New member
My daughter is scheduled to start the ISIS trial in December. I am so excited but a little nervous because she is going to have the Infant PFT done where they put her to sleep with chloral hydrate and assess her lung function. I really hope she can tolerate the hypertonic saline because I think it will be very beneficial in preventing lung damage with bacteria.
 
M

mariahsmommy

New member
My daughter is scheduled to start the ISIS trial in December. I am so excited but a little nervous because she is going to have the Infant PFT done where they put her to sleep with chloral hydrate and assess her lung function. I really hope she can tolerate the hypertonic saline because I think it will be very beneficial in preventing lung damage with bacteria.
 
M

mariahsmommy

New member
My daughter is scheduled to start the ISIS trial in December. I am so excited but a little nervous because she is going to have the Infant PFT done where they put her to sleep with chloral hydrate and assess her lung function. I really hope she can tolerate the hypertonic saline because I think it will be very beneficial in preventing lung damage with bacteria.
 
M

mariahsmommy

New member
My daughter is scheduled to start the ISIS trial in December. I am so excited but a little nervous because she is going to have the Infant PFT done where they put her to sleep with chloral hydrate and assess her lung function. I really hope she can tolerate the hypertonic saline because I think it will be very beneficial in preventing lung damage with bacteria.
 
M

mariahsmommy

New member
My daughter is scheduled to start the ISIS trial in December. I am so excited but a little nervous because she is going to have the Infant PFT done where they put her to sleep with chloral hydrate and assess her lung function. I really hope she can tolerate the hypertonic saline because I think it will be very beneficial in preventing lung damage with bacteria.
 
A

ashmomo

New member
My daughter is 6 mos old and has been using HS 7% since about 3 mos old. She started on 3% but that was too hard to get or something...so after she came home form the hospital and we ran out of that they put her on HS 7% and we mix it with sodium chloride .9%. So really, I don't know the difference with out it and she doesn't seem to mind it. Her nebs put her to sleep if I do her percussions at the same time. BUT she has had lung issues since just after birth.

My 4 year old has only been on Pulmozyme since about 2 years old. but no lung issues with her for the most part.
 
A

ashmomo

New member
My daughter is 6 mos old and has been using HS 7% since about 3 mos old. She started on 3% but that was too hard to get or something...so after she came home form the hospital and we ran out of that they put her on HS 7% and we mix it with sodium chloride .9%. So really, I don't know the difference with out it and she doesn't seem to mind it. Her nebs put her to sleep if I do her percussions at the same time. BUT she has had lung issues since just after birth.

My 4 year old has only been on Pulmozyme since about 2 years old. but no lung issues with her for the most part.
 
A

ashmomo

New member
My daughter is 6 mos old and has been using HS 7% since about 3 mos old. She started on 3% but that was too hard to get or something...so after she came home form the hospital and we ran out of that they put her on HS 7% and we mix it with sodium chloride .9%. So really, I don't know the difference with out it and she doesn't seem to mind it. Her nebs put her to sleep if I do her percussions at the same time. BUT she has had lung issues since just after birth.

My 4 year old has only been on Pulmozyme since about 2 years old. but no lung issues with her for the most part.
 
A

ashmomo

New member
My daughter is 6 mos old and has been using HS 7% since about 3 mos old. She started on 3% but that was too hard to get or something...so after she came home form the hospital and we ran out of that they put her on HS 7% and we mix it with sodium chloride .9%. So really, I don't know the difference with out it and she doesn't seem to mind it. Her nebs put her to sleep if I do her percussions at the same time. BUT she has had lung issues since just after birth.

My 4 year old has only been on Pulmozyme since about 2 years old. but no lung issues with her for the most part.
 
A

ashmomo

New member
My daughter is 6 mos old and has been using HS 7% since about 3 mos old. She started on 3% but that was too hard to get or something...so after she came home form the hospital and we ran out of that they put her on HS 7% and we mix it with sodium chloride .9%. So really, I don't know the difference with out it and she doesn't seem to mind it. Her nebs put her to sleep if I do her percussions at the same time. BUT she has had lung issues since just after birth.
<br />
<br />My 4 year old has only been on Pulmozyme since about 2 years old. but no lung issues with her for the most part.
 
You must log in or register to reply here.
Top