Hypertonic Saline

C

creation301

New member
We had an appointment today. Our daughter has used pulmozyme for about the last two years. She is too young to test for pft's but she continues to retract a bit. The dr. wants her to stop the pulmozyme and start Hypertonic Saline. She doesn't really cough that much with her treatments, so his thought was that maybe HS would get things moving.

What is the youngest age that anyone has known it to be used? I know that a lot of the adults use it and say that it makes a big difference, how will I know if it is working with her? I am ready to try something new, but a little nerveous at the same time. She has done well the last few months and I just want it to continue or get better.

If anyone has any input or is using HS with smaller children please let me know how it is going. Or if any of the adult have any words of wisdom I would be grateful.

Thank you- Tiffany
 
C

creation301

New member
We had an appointment today. Our daughter has used pulmozyme for about the last two years. She is too young to test for pft's but she continues to retract a bit. The dr. wants her to stop the pulmozyme and start Hypertonic Saline. She doesn't really cough that much with her treatments, so his thought was that maybe HS would get things moving.

What is the youngest age that anyone has known it to be used? I know that a lot of the adults use it and say that it makes a big difference, how will I know if it is working with her? I am ready to try something new, but a little nerveous at the same time. She has done well the last few months and I just want it to continue or get better.

If anyone has any input or is using HS with smaller children please let me know how it is going. Or if any of the adult have any words of wisdom I would be grateful.

Thank you- Tiffany
 
C

creation301

New member
We had an appointment today. Our daughter has used pulmozyme for about the last two years. She is too young to test for pft's but she continues to retract a bit. The dr. wants her to stop the pulmozyme and start Hypertonic Saline. She doesn't really cough that much with her treatments, so his thought was that maybe HS would get things moving.

What is the youngest age that anyone has known it to be used? I know that a lot of the adults use it and say that it makes a big difference, how will I know if it is working with her? I am ready to try something new, but a little nerveous at the same time. She has done well the last few months and I just want it to continue or get better.

If anyone has any input or is using HS with smaller children please let me know how it is going. Or if any of the adult have any words of wisdom I would be grateful.

Thank you- Tiffany
 
F

fourkidsmom

New member
Tiffany

My son started HS about a week ago. He just turned 6 in March. He has NEVER coughed anything up and two days after using he coughed up mucus!! I was like-- wow-its working.....

Fourkidsmom
 
F

fourkidsmom

New member
Tiffany

My son started HS about a week ago. He just turned 6 in March. He has NEVER coughed anything up and two days after using he coughed up mucus!! I was like-- wow-its working.....

Fourkidsmom
 
F

fourkidsmom

New member
Tiffany

My son started HS about a week ago. He just turned 6 in March. He has NEVER coughed anything up and two days after using he coughed up mucus!! I was like-- wow-its working.....

Fourkidsmom
 
S

sdelorenzo

Guest
My daughter started hypertonic saline when she turned four. My son will be starting it this month soon and he is still three.
Sharon, mom of Sophia, 5 and Jack, 3 both with cf
 
S

sdelorenzo

Guest
My daughter started hypertonic saline when she turned four. My son will be starting it this month soon and he is still three.
Sharon, mom of Sophia, 5 and Jack, 3 both with cf
 
S

sdelorenzo

Guest
My daughter started hypertonic saline when she turned four. My son will be starting it this month soon and he is still three.
Sharon, mom of Sophia, 5 and Jack, 3 both with cf
 
R

Rebjane

Super Moderator
My daughter recently started HTS, she was 4 and a few months. When she first started using it she coughed ALOT. She was also sick at the time though. Now she only coughs a little bit when she starts it. SHe does not do PFT's yet so it's hard to say if it's helping but i did notice she seemed to have a better appetite since we started it. We go to clinic in June so it'll be interesting to see what her weight is. She started the HTS in march. i think maggie actually like the HTS cause it's salty. Also, she's only had one cold since she started it before that it was a cold every 3 weeks(could be a coincidence or the time of year, winter) So far we like HTS.
 
R

Rebjane

Super Moderator
My daughter recently started HTS, she was 4 and a few months. When she first started using it she coughed ALOT. She was also sick at the time though. Now she only coughs a little bit when she starts it. SHe does not do PFT's yet so it's hard to say if it's helping but i did notice she seemed to have a better appetite since we started it. We go to clinic in June so it'll be interesting to see what her weight is. She started the HTS in march. i think maggie actually like the HTS cause it's salty. Also, she's only had one cold since she started it before that it was a cold every 3 weeks(could be a coincidence or the time of year, winter) So far we like HTS.
 
R

Rebjane

Super Moderator
My daughter recently started HTS, she was 4 and a few months. When she first started using it she coughed ALOT. She was also sick at the time though. Now she only coughs a little bit when she starts it. SHe does not do PFT's yet so it's hard to say if it's helping but i did notice she seemed to have a better appetite since we started it. We go to clinic in June so it'll be interesting to see what her weight is. She started the HTS in march. i think maggie actually like the HTS cause it's salty. Also, she's only had one cold since she started it before that it was a cold every 3 weeks(could be a coincidence or the time of year, winter) So far we like HTS.
 
H

hbendz

New member
My 8 month old daughter just had an Infant PFT last week. At the same time, they gave her HTS to see how she would tolerate it. She did great. So, we will be starting HTS. She has been on Pulmozyme since she was 3 weeks old. Pulmozyme and HTS do work on two different things going on in the lungs. I don't understand why doctors are doing either/or in so many situations. Maggie-Faye is on Albuteral, Pulmozyme, Augmentin and now HTS. Her lungs have one area that looks "odd" that showed up in a CT scan, that is why she is on Augmentin. However, her lungs are clear. Thank, God.

Holly Bendz
Mother to Maggie-Faye
Diagnosed prior to birth
 
H

hbendz

New member
My 8 month old daughter just had an Infant PFT last week. At the same time, they gave her HTS to see how she would tolerate it. She did great. So, we will be starting HTS. She has been on Pulmozyme since she was 3 weeks old. Pulmozyme and HTS do work on two different things going on in the lungs. I don't understand why doctors are doing either/or in so many situations. Maggie-Faye is on Albuteral, Pulmozyme, Augmentin and now HTS. Her lungs have one area that looks "odd" that showed up in a CT scan, that is why she is on Augmentin. However, her lungs are clear. Thank, God.

Holly Bendz
Mother to Maggie-Faye
Diagnosed prior to birth
 
H

hbendz

New member
My 8 month old daughter just had an Infant PFT last week. At the same time, they gave her HTS to see how she would tolerate it. She did great. So, we will be starting HTS. She has been on Pulmozyme since she was 3 weeks old. Pulmozyme and HTS do work on two different things going on in the lungs. I don't understand why doctors are doing either/or in so many situations. Maggie-Faye is on Albuteral, Pulmozyme, Augmentin and now HTS. Her lungs have one area that looks "odd" that showed up in a CT scan, that is why she is on Augmentin. However, her lungs are clear. Thank, God.

Holly Bendz
Mother to Maggie-Faye
Diagnosed prior to birth
 
R

Rebjane

Super Moderator
Holly,

that picture you have is so beautiful! Is that your Maggie? I love those thighs! She looks so chubby, good job !
 
R

Rebjane

Super Moderator
Holly,

that picture you have is so beautiful! Is that your Maggie? I love those thighs! She looks so chubby, good job !
 
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