hypertonic saline

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carolyn

Guest
Hi I,m new to the forum, I have a 13 year old daughter with cf,we had her clinic visit today and I ask her doctor about hypertonic saline,I told her i would like to try it on my daughter, her doctor didn't know how to presribe it she called the pharmacy and they had never heard of it.Could someone please tell me about this new treatment?do you put it in pari lc.nebulizer?And how is the presription ordered? Are there different strenghes for it such as 7% or3%? Thanks,Carolyn
 
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thelizardqueen

New member
I sometimes dilute my nebulized meds with saline. Its 7%. I don't have a prescription for it though. My doc simply gives me stuff that she has on hand till my next visit.
 
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JennifersHope

New member
I was wondering if anyone with reactive airway disease and CF have tried the hypertonic saline???? I am so afraid to do it.. since that is what my CF clinic has used in the past to induce a sputum culture on me..but I coughed so hard for so long after.... So if anyone with asthma reactive airway disease has done this with success please let me know....

Thanks

Jennifer
 
L

Liza

New member
Hi, I asked the doc on call this weekend about it. (my daughter is currently in the hospital) He told me that they (the clinic docs) were going to be discussing it in a meeting this week but that as of yet there is no way to prescribe it. Because it needs to made up by a pharmacist/pharmacy and it had been made just for the study. He said right now that the pharmacy here (at Cook Children's Hospital in Ft.Worth, TX) did not know how to mix it up. So far that's all I know about what's going on with obtaining it here.

Liza
(Mom of 2teen girls w/CF)
 
B

Bill

New member
Hi: I can't give you everything you need, but offer this. My son, 46 with CF was not doing well this past October. I flew from VA to TX as soon as I could get a flight. Arrived on Sat. 10/22, was met at the airport by my son, who was using an IV while he was waiting for me. The next day, I admitted him to Methodist in Houston. Basically, his immediate problem was a reaction to a new med (Sosyn?). However, one of the first things they did was to start him on the Hypertonic. (?) I don't know how to spell worth a hute. They also stopped the new IV med. Withing 24 hours he was ready to leave the hospital and was discharged the next day 10/25. He was sent home with the understanding he was to continue to use the Hypertonic at home. Some, this particular med, he gets from CF pharmacy. It took a while to get it, and when he did, he didn't start using it right away. Reason: He thought it was TOO STRONG. Prior to his hospital discharge, his DR had ordered/suggested/recommended that his dosage be cut from 7 mg to 3. Which he is currently using. Results??? He is no worse, maybe better, not a drastic change. But, personnally, I hope he continues to try it and also, to strenghten the dosage, if he can. Hope this helps, some? Bill
 
B

Bill

New member
Hi: I can't give you everything you need, but offer this. My son, 46 with CF was not doing well this past October. I flew from VA to TX as soon as I could get a flight. Arrived on Sat. 10/22, was met at the airport by my son, who was using an IV while he was waiting for me. The next day, I admitted him to Methodist in Houston. Basically, his immediate problem was a reaction to a new med (Sosyn?). However, one of the first things they did was to start him on the Hypertonic. (?) I don't know how to spell worth a hute. They also stopped the new IV med. Withing 24 hours he was ready to leave the hospital and was discharged the next day 10/25. He was sent home with the understanding he was to continue to use the Hypertonic at home. Some, this particular med, he gets from CF pharmacy. It took a while to get it, and when he did, he didn't start using it right away. Reason: He thought it was TOO STRONG. Prior to his hospital discharge, his DR had ordered/suggested/recommended that his dosage be cut from 7 mg to 3. Which he is currently using. Results??? He is no worse, maybe better, not a drastic change. But, personnally, I hope he continues to try it and also, to strenghten the dosage, if he can. Hope this helps, some? Bill
 
I

IG

Guest
Jennifer the first time you used it did you use 3% or 7%?
Did you try diluting it yourself with pure water?

As for the other posts, when I was on hypertonic saline which was OVER 3 years ago I had no problems getting it. It was not mixed at a pharmacy and came in pre mixed vials. I think this is a bit ridiculous, I keep hearing about how people are having problems with getting hypertonic saline but my clinic had a ton of this stuff on hand, just like regular saline. There wasn't some special stock pile anywhere, and they weren't apart of a study so why is it so difficult to get ahold of any right now? The clinic I went to still had some on hand 6 months ago when I was there last, I use it as a nose spray [hurts like bloody heck, but it's kept my nose clean for a while] and all I do is ask for it.
 
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IG

Guest
Jennifer the first time you used it did you use 3% or 7%?
Did you try diluting it yourself with pure water?

As for the other posts, when I was on hypertonic saline which was OVER 3 years ago I had no problems getting it. It was not mixed at a pharmacy and came in pre mixed vials. I think this is a bit ridiculous, I keep hearing about how people are having problems with getting hypertonic saline but my clinic had a ton of this stuff on hand, just like regular saline. There wasn't some special stock pile anywhere, and they weren't apart of a study so why is it so difficult to get ahold of any right now? The clinic I went to still had some on hand 6 months ago when I was there last, I use it as a nose spray [hurts like bloody heck, but it's kept my nose clean for a while] and all I do is ask for it.
 
S

smbriggs

New member
I have been taking 3% sodium Chloride since June. I guess there is 7% but is hard to find. I love the 3%. I cough a lot while I am doing it but I feel so much better after my treatment. I also use the vest and I feel the 3% solution is more effective.<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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smbriggs

New member
I have been taking 3% sodium Chloride since June. I guess there is 7% but is hard to find. I love the 3%. I cough a lot while I am doing it but I feel so much better after my treatment. I also use the vest and I feel the 3% solution is more effective.<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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nycgirl

Guest
hi,
i just saw my doctor today. she is located in NYC at st. vincints hospital. my doctor orderdd it for me from the maryland cf pharmacy. because we live in the states, it is only offered 3% or 10%. but the studies were on 7% so you have to be a chemist and mis it for the right solution levels.
im sure the pharmacy can help.
good luck
 
N

nycgirl

Guest
hi,
i just saw my doctor today. she is located in NYC at st. vincints hospital. my doctor orderdd it for me from the maryland cf pharmacy. because we live in the states, it is only offered 3% or 10%. but the studies were on 7% so you have to be a chemist and mis it for the right solution levels.
im sure the pharmacy can help.
good luck
 
S

smbriggs

New member
When I was in th hospital, the pharmacy mixed up the right dose for me. I think I am going to revisit this with my doctor. I think he thinks I am on the higher % but my pharmacy does not always have a clue.
 
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smbriggs

New member
When I was in th hospital, the pharmacy mixed up the right dose for me. I think I am going to revisit this with my doctor. I think he thinks I am on the higher % but my pharmacy does not always have a clue.
 
A

anonymous

New member
I'm using it. Its not doing miracles here. I'm coughing alot, and I feel like my lungs are on fire or there are needles stuck in there. Its been 4 days and i can tell it sucks so far. Cant they bring out something of real importance for God's sake! The whole issue is overrated try it for urself...
 
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anonymous

New member
I'm using it. Its not doing miracles here. I'm coughing alot, and I feel like my lungs are on fire or there are needles stuck in there. Its been 4 days and i can tell it sucks so far. Cant they bring out something of real importance for God's sake! The whole issue is overrated try it for urself...
 
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