Hypothetical question regarding CF and a cure.

Faust

New member
Ok, just for the sake of discussion, what length would you go for to cure yourself of CF, and be 100% free of the disease and be "normal"? Let's also say that if you are in pretty bad shape now, or even post transplant and know you have general limited time with your new lungs, you making any of these very unpleasant choices would result in you being totally healthy, with no effects from how you used to be. This discussion is relavant to the given perspective that you won't have much longer to live (maybe say 5 years?) if you decide to do nothing and keep living with the CF, so keep that in mind.


Would you be willing to say have one of your arms fully removed? What about both arms? How about a leg? Both legs? How about your senses? What sense would you be willing to lose in order to live a full healthy life CF free? Sight? Hearing? (taste seems too easy to choose, so i left that out). What about killing someone who was a total piece of crap that say has killed someone else or abuses children/women/animals etc (with the assumption that you wouldn't get caught, and the person was REAL horrible in every way, and an oxygen thief to everyone else). What about snorting a 20 foot long line of fire ants? What about killing a beloved pet? How about never being able to talk/communicate/see your family and beloved friends/loved ones ever again (like a witness protection program).


Let the imaginations run wild. Remember, this is just hypothetical, noone should be judged for what they say or propose, it's just an internet version of sitting at a bar with some friends and playing a big "What would ya do/What if" game/discussion. So offer up what you think would be the step right below what you know you wouldnt/couldnt do to live a long healthy life CF free, and would be EXTREMELEY hard for you to do.


I personally could/would get rid of my hearing, and I think I would fully be able to kill someone if they were a totally horrible human being who has no respect for others and has abused a ton of people - especially the truely innocent. I could probably spend 10 years in prison doing hard time if it meant I would be 100% healthy and CF free with no record when I got out. I would be willing to be shot at close range with a large caliber firearm (barring any organs being hit) many times. I could personally lose my left hand, or maybe even my right arm, but I draw the line at both arms. I dont think i'd want to lose a leg because that truely screws with your mobility. I'd lose an eye.


Anyways i'm tired, but the idea of hearing what you guys would be able to do, and what you wouldnt be willing to do, in order to live a long CF free healthy life would be good discussion. Anyways, offer up your ideas (yes i'm a morbid person).
 

Allie

New member
This is easier because I'm not answering it for myself. But I'd kill someone to cure Ry of it. Especially if it were some Neo-nazi jerk that needed to die anyhow. Not a problem at all, and I don't normally consider myself capable of murder.

I'd rather lose hearing than sight, because I like to read so much, but I'd lose sight if I had to.
 

Lilith

New member
Hmmm...if it came down to something like leaving my boyfriend to save myself, I say screw that. I'd rather live as long as I could with him. As for something I wouldn't want to loose but could live without, I'd give up drawing for the rest of my life. And for an artist, that's a hard thing to do, but I would if it meant I could get married and breathe freely.
 

JazzysMom

New member
I dont think I could committ any horrific crime like murder. I dont have it in me to do tho I support the death penalty & feel certain peoples punishment should be that depending on the crime. I guess I feel like I would be sacrificing my morals to get rid of my CF & in many ways that is worse than the physical problems of CF. I dont know about losing limbs. I would probably give up my sight before my hearing. I love music (dance, play & listen) to lose that. Although not being able to see my daughter grow up or how beautiful she would look on her wedding day would also be a big sacrifice? I want to say that I would stick with having CF. I guess I say that because it is hypothetical!
 

Rokiss12

New member
i agree with Meghan almost 100%

at this point in my life, i ask myself 'why not me?' instead of 'why me?'. i think i was given this disease for a reason, and because someone knew i could handle it.

i ask myself EVERYDAY 'if there was a cure today, would you like to be cured?' and my answer right now is possibly, but right now, no.

i can't imagine my life with out CF, and knowing myself, if i were cured, i would forget about my life with CF completely.

there are days, weeks even, though, when i'd say i could kill to get rid of this disease. so im still on the fence about everything (what else is new for me :p)

but i like to think 'im young, i've got time to figure this out'

you people should see my diary (yes, i keep a diary, at 16), i've dedicated pages upon pages to this topic! lol

hope this is making sense
<3Kate
 

Rokiss12

New member
i agree with Meghan almost 100%

at this point in my life, i ask myself 'why not me?' instead of 'why me?'. i think i was given this disease for a reason, and because someone knew i could handle it.

i ask myself EVERYDAY 'if there was a cure today, would you like to be cured?' and my answer right now is possibly, but right now, no.

i can't imagine my life with out CF, and knowing myself, if i were cured, i would forget about my life with CF completely.

there are days, weeks even, though, when i'd say i could kill to get rid of this disease. so im still on the fence about everything (what else is new for me :p)

but i like to think 'im young, i've got time to figure this out'

you people should see my diary (yes, i keep a diary, at 16), i've dedicated pages upon pages to this topic! lol

hope this is making sense
<3Kate
 
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65rosessamurai

Guest
Maybe I'm already on the verge of a 100% cure of CF..I already sacrificed living in the best darn country in the world!!! And, I gave up Aikido, a sacrifice made from a serious shoulder injury that wasn't even inflicted by an Aikido injury!

I don't see the significance in getting 100% cured by taking a bullet at close range!! Standard ballistics: what goes in, comes out bigger!! Small entry hole, large exit hole...got the picture?? After hearing a few stories from my brother-in-law, it is not depicted like in the movies!!

Anyway, this was somewhat a tough question, I've seen enough challenges with my scruples to wonder how much further I'd be willing to go! Hypothetically, I'd also be willing to take a life of a person who's already been proven to be a menace to society. Though if doing somethng like that was by taking on a mission, in which if I succeded; I'd be cured 100%, or died trying; either way, I'd be cured in the end, eh?!
 
6

65rosessamurai

Guest
Maybe I'm already on the verge of a 100% cure of CF..I already sacrificed living in the best darn country in the world!!! And, I gave up Aikido, a sacrifice made from a serious shoulder injury that wasn't even inflicted by an Aikido injury!

I don't see the significance in getting 100% cured by taking a bullet at close range!! Standard ballistics: what goes in, comes out bigger!! Small entry hole, large exit hole...got the picture?? After hearing a few stories from my brother-in-law, it is not depicted like in the movies!!

Anyway, this was somewhat a tough question, I've seen enough challenges with my scruples to wonder how much further I'd be willing to go! Hypothetically, I'd also be willing to take a life of a person who's already been proven to be a menace to society. Though if doing somethng like that was by taking on a mission, in which if I succeded; I'd be cured 100%, or died trying; either way, I'd be cured in the end, eh?!
 

Emily65Roses

New member
Maybe one arm. Probably not both. Don't know about legs. I love sign language, but I also would really miss music, so I'm not sure I'd be willing to lose my hearing. And I don't wish to be blind. I could probably kill someone, but only if it was a really POS person like a rapist or child molester or something. That ants thing sounds gross, but maybe. I don't currently have any pets, and if I did, I wouldn't kill one for my health. As for not being able to talk to or see my family or friends (I include Mike in both of hose categories), what's the point of living if I can't be with them? So no on that too.

Basically I know how to live with CF. It's always getting worse, but I'm used to this, so I wouldn't rather have to start over with something else.
 

Emily65Roses

New member
Maybe one arm. Probably not both. Don't know about legs. I love sign language, but I also would really miss music, so I'm not sure I'd be willing to lose my hearing. And I don't wish to be blind. I could probably kill someone, but only if it was a really POS person like a rapist or child molester or something. That ants thing sounds gross, but maybe. I don't currently have any pets, and if I did, I wouldn't kill one for my health. As for not being able to talk to or see my family or friends (I include Mike in both of hose categories), what's the point of living if I can't be with them? So no on that too.

Basically I know how to live with CF. It's always getting worse, but I'm used to this, so I wouldn't rather have to start over with something else.
 

Curley444

New member
I'd keep my CF, because I feel that I'm a better person because of it. Every day I see people taking everything they have for granted, and it makes me sick. CF has made me really appreciate life and everything about it, good or bad. I'm trying not to be cheesy, but I think people like us who are made to suffer have a deeper understanding of what life is all about: enjoying the time we have here.
 

Curley444

New member
I'd keep my CF, because I feel that I'm a better person because of it. Every day I see people taking everything they have for granted, and it makes me sick. CF has made me really appreciate life and everything about it, good or bad. I'm trying not to be cheesy, but I think people like us who are made to suffer have a deeper understanding of what life is all about: enjoying the time we have here.
 

thelizardqueen

New member
I'd keep my CF. CF has made me the person I am today. It has made me the compasionate, sensitive person that I am. I am sympathetic to people with different conditions, I empathize with people with health problems, and understand what they are going through to some extent. I live life as if it were my last day on earth and not take things for granted, because I know that I may not be around 5-10 years from now.
 

thelizardqueen

New member
I'd keep my CF. CF has made me the person I am today. It has made me the compasionate, sensitive person that I am. I am sympathetic to people with different conditions, I empathize with people with health problems, and understand what they are going through to some extent. I live life as if it were my last day on earth and not take things for granted, because I know that I may not be around 5-10 years from now.
 

anonymous

New member
I'd lose some toes maybe. I dont think I could kill anyone, though, Allie, I see your point, it would be entirely different if it were for someone else and not myself. I definitely couldn't kill a beloved pet!!!! Hearing, sight and even taste for goodness sakes would be awful! I love the taste of so many things....

Yah, I think toes is about it. And not all of them.

Caitlin
22 w/CF, b. cepacia
 

anonymous

New member
I'd lose some toes maybe. I dont think I could kill anyone, though, Allie, I see your point, it would be entirely different if it were for someone else and not myself. I definitely couldn't kill a beloved pet!!!! Hearing, sight and even taste for goodness sakes would be awful! I love the taste of so many things....

Yah, I think toes is about it. And not all of them.

Caitlin
22 w/CF, b. cepacia
 
I

IG

Guest
"Blindness cuts you off from things; deafness cuts you off from people." - Helen Keller

For the Deaf community maybe losing hearing isn't quite as bad as what it is outside the Deaf community... nobody can really know what it's like to say 'well I could do without hearing' until they actually experience it. Pure h*ll, I have to say. Four, almost 5 years with a majority of my hearing gone due to Vanco makes me really really wish that this hadn't happened to me. Hearing the leaves swaying in a gentle breeze, a wind chime, or somebody calling your name in a crowd, hearing anything in a crowd really will be something that I can never do again, unless they come up with some radical treatment. It feels as if you're missing a vital part of yourself you never realized you had by losing your hearing. So I guess the summary of this is chose wisely, you never know what you have until it's gone.

If I had to do anything to cure this disease? Perhaps I would kill somebody, depends on who, where, when, and how. Most likely I wouldn't. Give up somebody I love? There are not many that I love so no. Give my life up for a cure, yes. If somebody came up to me showed me proof that they had the cure and to give it to everybody I had to prostitute myself just once, perhaps. Beg, borrow, steal, plead. Yes. There are a lot of things I would do for a cure, not for me though, because so many of the ones that I love are affected by this damnable disease, and if it isn't worth it for me, it's worth it for them.
 
I

IG

Guest
"Blindness cuts you off from things; deafness cuts you off from people." - Helen Keller

For the Deaf community maybe losing hearing isn't quite as bad as what it is outside the Deaf community... nobody can really know what it's like to say 'well I could do without hearing' until they actually experience it. Pure h*ll, I have to say. Four, almost 5 years with a majority of my hearing gone due to Vanco makes me really really wish that this hadn't happened to me. Hearing the leaves swaying in a gentle breeze, a wind chime, or somebody calling your name in a crowd, hearing anything in a crowd really will be something that I can never do again, unless they come up with some radical treatment. It feels as if you're missing a vital part of yourself you never realized you had by losing your hearing. So I guess the summary of this is chose wisely, you never know what you have until it's gone.

If I had to do anything to cure this disease? Perhaps I would kill somebody, depends on who, where, when, and how. Most likely I wouldn't. Give up somebody I love? There are not many that I love so no. Give my life up for a cure, yes. If somebody came up to me showed me proof that they had the cure and to give it to everybody I had to prostitute myself just once, perhaps. Beg, borrow, steal, plead. Yes. There are a lot of things I would do for a cure, not for me though, because so many of the ones that I love are affected by this damnable disease, and if it isn't worth it for me, it's worth it for them.
 
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