CFers are born with normal lungs. With thick sticky mucus, increased infection, eventually the lungs will become affected. CF is a progresive disease. The other thing to consider is most regular doctors don't know what to listen for when listening so someone's lungs -- heck the stethoscope was invented over a hundred YEARS ago -- I can't tell you the number of times DS has been to the peds doctor and I'm told "his lungs are clear" -- later to find he's got bronchitis or an upper respiratory virus by his CF doctor.
DS had a ravenous appetite prior to being diagnosed. I remember yanking the bottle out of his mouth the first time I fed him, asking DH, how much are babies supposed to eat, I didn't think their tummies could hold this much food.
DS's sweat test was a normal 32, so I can understand questioning the diagnosis. For months, DH and I continued with CPT & nebs 4 times a day, enzymes, antibiotics, bile salts, vitamins -- all the while saying "If someone comes back eventually and tells us they made a mistake, at least he'll have very health lungs" Diagnosis hit home when he cultured pseudomonas.
DS had a ravenous appetite prior to being diagnosed. I remember yanking the bottle out of his mouth the first time I fed him, asking DH, how much are babies supposed to eat, I didn't think their tummies could hold this much food.
DS's sweat test was a normal 32, so I can understand questioning the diagnosis. For months, DH and I continued with CPT & nebs 4 times a day, enzymes, antibiotics, bile salts, vitamins -- all the while saying "If someone comes back eventually and tells us they made a mistake, at least he'll have very health lungs" Diagnosis hit home when he cultured pseudomonas.