I am excluded from using Azithromycin

Jem · Jan 13, 2007

If you do have your MAC treated the drug regime is a long one. Three different oral antibiotics for at least 18 months. Azithromycin is one option to use for one of the three drugs in the treatment cocktail. Whether to treat or not depends on if the MAC is affecting your lung function. The first two times I underwent the long term treatments I experienced no side effects but the last time, several years back, I was nauseous and weak through the entire treatment. I also experienced joint pain in my hands, elbows and ankles which completely disappeared 4 months after I finished my course of treatment. I feel perfectly fine now and I hope to remain so for a very long time to come.<img src="i/expressions/face-icon-small-smile.gif" border="0">

Kelly posted some great web links for you to check out.
I did have problems opening them so try this link:

<a target=_blank class=ftalternatingbarlinklarge href="http://ntminfo.org/">http://ntminfo.org/</a>
Good luck to you, Craig.

WadesMom · Jul 29, 2007

Dear Craig,

I just found this site because my son is in the hospital for a "tune up" and they found backholder cepacia. I was surfing to find some info on it. The reason I had to write to you is that my son is 14 years old and he weighs 88 pounds. He still wears a little boys size 10 and is just skin and bones and always struggling to get enough calories in even with a G-tube. I saw your picture today and my spirits raised you look normal. You look like a tall healthy guy and it is the best thing I have ever seen on a CF site. I don't want my son to grow for vanities sake I want him to have bigger lungs so he has more lung capacity and at his current size he looks like an 8 year old. I read some of your postings and I will pray for you. I hope you live a very long happy life. You have raised this mom's spirit.

Susan mom of Wade 14 years old with CF

WadesMom · Jul 29, 2007

Dear Craig,

I just found this site because my son is in the hospital for a "tune up" and they found backholder cepacia. I was surfing to find some info on it. The reason I had to write to you is that my son is 14 years old and he weighs 88 pounds. He still wears a little boys size 10 and is just skin and bones and always struggling to get enough calories in even with a G-tube. I saw your picture today and my spirits raised you look normal. You look like a tall healthy guy and it is the best thing I have ever seen on a CF site. I don't want my son to grow for vanities sake I want him to have bigger lungs so he has more lung capacity and at his current size he looks like an 8 year old. I read some of your postings and I will pray for you. I hope you live a very long happy life. You have raised this mom's spirit.

Susan mom of Wade 14 years old with CF

WadesMom · Jul 29, 2007

Dear Craig,

I just found this site because my son is in the hospital for a "tune up" and they found backholder cepacia. I was surfing to find some info on it. The reason I had to write to you is that my son is 14 years old and he weighs 88 pounds. He still wears a little boys size 10 and is just skin and bones and always struggling to get enough calories in even with a G-tube. I saw your picture today and my spirits raised you look normal. You look like a tall healthy guy and it is the best thing I have ever seen on a CF site. I don't want my son to grow for vanities sake I want him to have bigger lungs so he has more lung capacity and at his current size he looks like an 8 year old. I read some of your postings and I will pray for you. I hope you live a very long happy life. You have raised this mom's spirit.

Susan mom of Wade 14 years old with CF

WadesMom · Jul 29, 2007

Dear Craig,

I just found this site because my son is in the hospital for a "tune up" and they found backholder cepacia. I was surfing to find some info on it. The reason I had to write to you is that my son is 14 years old and he weighs 88 pounds. He still wears a little boys size 10 and is just skin and bones and always struggling to get enough calories in even with a G-tube. I saw your picture today and my spirits raised you look normal. You look like a tall healthy guy and it is the best thing I have ever seen on a CF site. I don't want my son to grow for vanities sake I want him to have bigger lungs so he has more lung capacity and at his current size he looks like an 8 year old. I read some of your postings and I will pray for you. I hope you live a very long happy life. You have raised this mom's spirit.

Susan mom of Wade 14 years old with CF

WadesMom · Jul 29, 2007

Dear Craig,

I just found this site because my son is in the hospital for a "tune up" and they found backholder cepacia. I was surfing to find some info on it. The reason I had to write to you is that my son is 14 years old and he weighs 88 pounds. He still wears a little boys size 10 and is just skin and bones and always struggling to get enough calories in even with a G-tube. I saw your picture today and my spirits raised you look normal. You look like a tall healthy guy and it is the best thing I have ever seen on a CF site. I don't want my son to grow for vanities sake I want him to have bigger lungs so he has more lung capacity and at his current size he looks like an 8 year old. I read some of your postings and I will pray for you. I hope you live a very long happy life. You have raised this mom's spirit.

Susan mom of Wade 14 years old with CF

Emily65Roses · Jul 29, 2007