BleedOrange1968
New member
I am f508 and 3272-26a>g. How do I know if mine is gating and what class I'm in?? Darryl 44 dx 24
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I am f508 and 3272-26a>g. How do I know if mine is gating and what class I'm in?? Darryl 44 dx 24
- Thread starter BleedOrange1968
- Start date
BleedOrange1968
New member
I am f508 and 3272-26a>g. How do I know if mine is gating and what class I'm in?? Darryl 44 dx 24
BleedOrange1968
New member
I am f508 and 3272-26a>g. How do I know if mine is gating and what class I'm in?? Darryl 44 dx 24
Thanks havoc! Would be nice to talk to one of the geneticists
Thanks havoc! Would be nice to talk to one of the geneticists
BleedOrange1968
New member
I am f508 and 3272-26a>g. How do I know if mine is gating and what class I'm in?? Darryl 44 dx 24
Thanks havoc! Would be nice to talk to one of the geneticists
Thanks havoc! Would be nice to talk to one of the geneticists
I am f508 and 3272-26a>g. How do I know if mine is gating and what class I'm in?? Darryl 44 dx 24
Ask your doctor to write you a prescription for it and test it out. Your mutation is probably too rare for them to run a clinical trial on and if your doctor writes you a prescription then your insurance company will probably pay for it. Some other people on this site have been doing that exact same thing with some pretty positive results!
Ask your doctor to write you a prescription for it and test it out. Your mutation is probably too rare for them to run a clinical trial on and if your doctor writes you a prescription then your insurance company will probably pay for it. Some other people on this site have been doing that exact same thing with some pretty positive results!
I am f508 and 3272-26a>g. How do I know if mine is gating and what class I'm in?? Darryl 44 dx 24
Ask your doctor to write you a prescription for it and test it out. Your mutation is probably too rare for them to run a clinical trial on and if your doctor writes you a prescription then your insurance company will probably pay for it. Some other people on this site have been doing that exact same thing with some pretty positive results!
Ask your doctor to write you a prescription for it and test it out. Your mutation is probably too rare for them to run a clinical trial on and if your doctor writes you a prescription then your insurance company will probably pay for it. Some other people on this site have been doing that exact same thing with some pretty positive results!
BleedOrange1968
New member
I am f508 and 3272-26a>g. How do I know if mine is gating and what class I'm in?? Darryl 44 dx 24
What does the script need to say Anomie?
What does the script need to say Anomie?
BleedOrange1968
New member
I am f508 and 3272-26a>g. How do I know if mine is gating and what class I'm in?? Darryl 44 dx 24
What does the script need to say Anomie?
What does the script need to say Anomie?
Incomudrox
New member
I am f508 and 3272-26a>g. How do I know if mine is gating and what class I'm in?? Darryl 44 dx 24
I bet it would say something like...
"kalydeco (ivacaftor) 150mg BID dispense 60."
I bet it would say something like...
"kalydeco (ivacaftor) 150mg BID dispense 60."
Incomudrox
New member
I am f508 and 3272-26a>g. How do I know if mine is gating and what class I'm in?? Darryl 44 dx 24
I bet it would say something like...
"kalydeco (ivacaftor) 150mg BID dispense 60."
I bet it would say something like...
"kalydeco (ivacaftor) 150mg BID dispense 60."
I am f508 and 3272-26a>g. How do I know if mine is gating and what class I'm in?? Darryl 44 dx 24
Yep just make sure your insurance will cover the prescription before you get it filled or you're gonna have to take out a second mortgage on your house to pay for a one month supply.
Yep just make sure your insurance will cover the prescription before you get it filled or you're gonna have to take out a second mortgage on your house to pay for a one month supply.
I am f508 and 3272-26a>g. How do I know if mine is gating and what class I'm in?? Darryl 44 dx 24
Yep just make sure your insurance will cover the prescription before you get it filled or you're gonna have to take out a second mortgage on your house to pay for a one month supply.
Yep just make sure your insurance will cover the prescription before you get it filled or you're gonna have to take out a second mortgage on your house to pay for a one month supply.
E
ElenaFalcon
Guest
I am f508 and 3272-26a>g. How do I know if mine is gating and what class I'm in?? Darryl 44 dx 24
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<div class="MessageText_Container">Havoc, hi. I know that you are not an expert in rare mutations, but possibly you can help with understanding of my 1yr daughter's mutation -p.Phe1078Ile (c.3232t>a) in exon 20 cftr.Is it in gating class? The 2nd mutation is df508 - located in exon 11. Appreciate your thoughts very much.
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<div class="MessageText_Container">Havoc, hi. I know that you are not an expert in rare mutations, but possibly you can help with understanding of my 1yr daughter's mutation -p.Phe1078Ile (c.3232t>a) in exon 20 cftr.Is it in gating class? The 2nd mutation is df508 - located in exon 11. Appreciate your thoughts very much.
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E
ElenaFalcon
Guest
I am f508 and 3272-26a>g. How do I know if mine is gating and what class I'm in?? Darryl 44 dx 24
<table class="MessageTable" border="0" cellspacing="0" cellpadding="0">
<tbody>
<tr>
<td class="MessageTable_RightCell" valign="top" width="99%">
<div class="MessageText_Container">Havoc, hi. I know that you are not an expert in rare mutations, but possibly you can help with understanding of my 1yr daughter's mutation -p.Phe1078Ile (c.3232t>a) in exon 20 cftr.Is it in gating class? The 2nd mutation is df508 - located in exon 11. Appreciate your thoughts very much.
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<td class="MessageTable_Toolbar" colspan="2"></td>
</tr>
</tbody>
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<table class="MessageTable" border="0" cellspacing="0" cellpadding="0">
<tbody>
<tr>
<td class="MessageTable_RightCell" valign="top" width="99%">
<div class="MessageText_Container">Havoc, hi. I know that you are not an expert in rare mutations, but possibly you can help with understanding of my 1yr daughter's mutation -p.Phe1078Ile (c.3232t>a) in exon 20 cftr.Is it in gating class? The 2nd mutation is df508 - located in exon 11. Appreciate your thoughts very much.
</td>
</tr>
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<td class="MessageTable_Toolbar" colspan="2"></td>
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I am f508 and 3272-26a>g. How do I know if mine is gating and what class I'm in?? Darryl 44 dx 24
Unfortunately, I am not familiar with that mutation and I could not find much about it online either. I assume you are wondering if your daughter could take Kalydeco. As I understand it, Kalydeco isn't approved for children under age 6.
Unfortunately, I am not familiar with that mutation and I could not find much about it online either. I assume you are wondering if your daughter could take Kalydeco. As I understand it, Kalydeco isn't approved for children under age 6.
I am f508 and 3272-26a>g. How do I know if mine is gating and what class I'm in?? Darryl 44 dx 24
Unfortunately, I am not familiar with that mutation and I could not find much about it online either. I assume you are wondering if your daughter could take Kalydeco. As I understand it, Kalydeco isn't approved for children under age 6.
Unfortunately, I am not familiar with that mutation and I could not find much about it online either. I assume you are wondering if your daughter could take Kalydeco. As I understand it, Kalydeco isn't approved for children under age 6.