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grassisgreener

New member
I wonder if he is having sinus trouble? Here is a link to some good info on how CF affects sinuses:
<a target=_blank class=ftalternatingbarlinklarge href="http://cfcenter.stanford.edu/CFNews-Sinusitis.html
">http://cfcenter.stanford.edu/CFNews-Sinusitis.html
</a>
The short of it is that CF can cause really bad sinus infections/problems. My daughter 4.5 wcf just had sinus surgery, her infection was so terrible even after 6+ weeks of antibiotics that the ENT said it would never have gone away without surgery. She had been fighting head congestion/post nasal cough/choking on her post nasal drainage for months. Thankfully her lungs remained clear during all of that.

Hope your guy is feeling better soon!
 

grassisgreener

New member
I wonder if he is having sinus trouble? Here is a link to some good info on how CF affects sinuses:
<a target=_blank class=ftalternatingbarlinklarge href="http://cfcenter.stanford.edu/CFNews-Sinusitis.html
">http://cfcenter.stanford.edu/CFNews-Sinusitis.html
</a>
The short of it is that CF can cause really bad sinus infections/problems. My daughter 4.5 wcf just had sinus surgery, her infection was so terrible even after 6+ weeks of antibiotics that the ENT said it would never have gone away without surgery. She had been fighting head congestion/post nasal cough/choking on her post nasal drainage for months. Thankfully her lungs remained clear during all of that.

Hope your guy is feeling better soon!
 

grassisgreener

New member
I wonder if he is having sinus trouble? Here is a link to some good info on how CF affects sinuses:
<a target=_blank class=ftalternatingbarlinklarge href="http://cfcenter.stanford.edu/CFNews-Sinusitis.html
">http://cfcenter.stanford.edu/CFNews-Sinusitis.html
</a>
The short of it is that CF can cause really bad sinus infections/problems. My daughter 4.5 wcf just had sinus surgery, her infection was so terrible even after 6+ weeks of antibiotics that the ENT said it would never have gone away without surgery. She had been fighting head congestion/post nasal cough/choking on her post nasal drainage for months. Thankfully her lungs remained clear during all of that.

Hope your guy is feeling better soon!
 

grassisgreener

New member
I wonder if he is having sinus trouble? Here is a link to some good info on how CF affects sinuses:
<a target=_blank class=ftalternatingbarlinklarge href="http://cfcenter.stanford.edu/CFNews-Sinusitis.html
">http://cfcenter.stanford.edu/CFNews-Sinusitis.html
</a>
The short of it is that CF can cause really bad sinus infections/problems. My daughter 4.5 wcf just had sinus surgery, her infection was so terrible even after 6+ weeks of antibiotics that the ENT said it would never have gone away without surgery. She had been fighting head congestion/post nasal cough/choking on her post nasal drainage for months. Thankfully her lungs remained clear during all of that.

Hope your guy is feeling better soon!
 

grassisgreener

New member
I wonder if he is having sinus trouble? Here is a link to some good info on how CF affects sinuses:
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://cfcenter.stanford.edu/CFNews-Sinusitis.html
">http://cfcenter.stanford.edu/CFNews-Sinusitis.html
</a><br />
<br />The short of it is that CF can cause really bad sinus infections/problems. My daughter 4.5 wcf just had sinus surgery, her infection was so terrible even after 6+ weeks of antibiotics that the ENT said it would never have gone away without surgery. She had been fighting head congestion/post nasal cough/choking on her post nasal drainage for months. Thankfully her lungs remained clear during all of that.
<br />
<br />Hope your guy is feeling better soon!
 
T

TonyaH

Guest
Hi there, and welcome to the site!
I checked out the list of Cystic Fibrosis Foundation accredited CF care centers and did not see your center listed. Here is the link to the foundation:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/CareCenterNetwork/CFFoundation-accreditedCareCenters/index.cfm?state=AR
">http://www.cff.org/LivingWithC...rs/index.cfm?state=AR
</a>
The reason you want to see a CFF accredited center is that they recieve up-to-date research material, are involved in clinical trials, and also recieve funding from the CFF. Perhaps your center is new or not yet listed, but you may want to check it out. Just because a doctor is a pediatric pulmonologist, or even one that says they specialize in CF, does not mean their center is an accredited center.

Anyway, on to your little guy. I'm sorry Cameron is ill. Unexplained fevers are so frustrating! I would also suggest ruling out sinus issues. Also remember that sputum cultures are not always conclusive, especially if Cameron is having a throat swab done. Most four year olds are still being swabbed because they are unable to give a culture by coughing.

Please keep us posted!
 
T

TonyaH

Guest
Hi there, and welcome to the site!
I checked out the list of Cystic Fibrosis Foundation accredited CF care centers and did not see your center listed. Here is the link to the foundation:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/CareCenterNetwork/CFFoundation-accreditedCareCenters/index.cfm?state=AR
">http://www.cff.org/LivingWithC...rs/index.cfm?state=AR
</a>
The reason you want to see a CFF accredited center is that they recieve up-to-date research material, are involved in clinical trials, and also recieve funding from the CFF. Perhaps your center is new or not yet listed, but you may want to check it out. Just because a doctor is a pediatric pulmonologist, or even one that says they specialize in CF, does not mean their center is an accredited center.

Anyway, on to your little guy. I'm sorry Cameron is ill. Unexplained fevers are so frustrating! I would also suggest ruling out sinus issues. Also remember that sputum cultures are not always conclusive, especially if Cameron is having a throat swab done. Most four year olds are still being swabbed because they are unable to give a culture by coughing.

Please keep us posted!
 
T

TonyaH

Guest
Hi there, and welcome to the site!
I checked out the list of Cystic Fibrosis Foundation accredited CF care centers and did not see your center listed. Here is the link to the foundation:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/CareCenterNetwork/CFFoundation-accreditedCareCenters/index.cfm?state=AR
">http://www.cff.org/LivingWithC...rs/index.cfm?state=AR
</a>
The reason you want to see a CFF accredited center is that they recieve up-to-date research material, are involved in clinical trials, and also recieve funding from the CFF. Perhaps your center is new or not yet listed, but you may want to check it out. Just because a doctor is a pediatric pulmonologist, or even one that says they specialize in CF, does not mean their center is an accredited center.

Anyway, on to your little guy. I'm sorry Cameron is ill. Unexplained fevers are so frustrating! I would also suggest ruling out sinus issues. Also remember that sputum cultures are not always conclusive, especially if Cameron is having a throat swab done. Most four year olds are still being swabbed because they are unable to give a culture by coughing.

Please keep us posted!
 
T

TonyaH

Guest
Hi there, and welcome to the site!
I checked out the list of Cystic Fibrosis Foundation accredited CF care centers and did not see your center listed. Here is the link to the foundation:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/CareCenterNetwork/CFFoundation-accreditedCareCenters/index.cfm?state=AR
">http://www.cff.org/LivingWithC...rs/index.cfm?state=AR
</a>
The reason you want to see a CFF accredited center is that they recieve up-to-date research material, are involved in clinical trials, and also recieve funding from the CFF. Perhaps your center is new or not yet listed, but you may want to check it out. Just because a doctor is a pediatric pulmonologist, or even one that says they specialize in CF, does not mean their center is an accredited center.

Anyway, on to your little guy. I'm sorry Cameron is ill. Unexplained fevers are so frustrating! I would also suggest ruling out sinus issues. Also remember that sputum cultures are not always conclusive, especially if Cameron is having a throat swab done. Most four year olds are still being swabbed because they are unable to give a culture by coughing.

Please keep us posted!
 
T

TonyaH

Guest
Hi there, and welcome to the site!
<br />I checked out the list of Cystic Fibrosis Foundation accredited CF care centers and did not see your center listed. Here is the link to the foundation:
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/CareCenterNetwork/CFFoundation-accreditedCareCenters/index.cfm?state=AR
">http://www.cff.org/LivingWithC...rs/index.cfm?state=AR
</a><br />
<br />The reason you want to see a CFF accredited center is that they recieve up-to-date research material, are involved in clinical trials, and also recieve funding from the CFF. Perhaps your center is new or not yet listed, but you may want to check it out. Just because a doctor is a pediatric pulmonologist, or even one that says they specialize in CF, does not mean their center is an accredited center.
<br />
<br />Anyway, on to your little guy. I'm sorry Cameron is ill. Unexplained fevers are so frustrating! I would also suggest ruling out sinus issues. Also remember that sputum cultures are not always conclusive, especially if Cameron is having a throat swab done. Most four year olds are still being swabbed because they are unable to give a culture by coughing.
<br />
<br />Please keep us posted!
 
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