I agree with Emily, I'd love to be in your position and would likely be thinking/acting the same way. I don't think there is anything wrong with it! Unfortunately it seems like some people will be offended no matter what is said, it's just the way they are. Don't take it too personally, I think most of us here understood what you were saying. I agree with Julie about having that bone test done...I'm only 22 and had never considered my bone density until last year when I fell off a rather short horse not going very fast and my elbow broke into 8 pieces! Now they did a bone density scan and said it came out normally...but I am taking calcium chews daily anyway. I don't want my bones breaking like a little old lady when I'm 30! Good luck with everything and I hope your health continues to be favorable!
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I hate CF and I want to complain (long tirade ensuing)
- Thread starter wanderlost
- Start date
wallflower
New member
wanderlost, I don't think there is anything wrong with your post. We are all different in how we relate to our cf.
I know it is a pain to go to the doctor 4x a year, but it can be easy to overlook our health and the last surprise you will ever want to get is that your pfts bombed and now your coming back every month (or plan on at least a week off work if you get stuck in the hospital). I schedule my appts as late in the day as possible, and when when I get a thumbs up from the doc, I go shopping as a reward <img src="i/expressions/face-icon-small-smile.gif" border="0">
As far as having social workers bug you, you don't have to put up with that. Tell your doctor that you don't want visits unless you ask for them - they have to get your doctors permission to talk to you in clinic. Surprise visits always make me crabby, and then my doctor suggests medication for my angry depression <img src="i/expressions/face-icon-small-shocked.gif" border="0"> ...sigh
Since joining this forum, I have learned so much not only about cf, but about myself. This site has been a HUGE motivation to me in staying healthy, and I hope you find it as helpful for yourself.
Barb 33 w/cf
I know it is a pain to go to the doctor 4x a year, but it can be easy to overlook our health and the last surprise you will ever want to get is that your pfts bombed and now your coming back every month (or plan on at least a week off work if you get stuck in the hospital). I schedule my appts as late in the day as possible, and when when I get a thumbs up from the doc, I go shopping as a reward <img src="i/expressions/face-icon-small-smile.gif" border="0">
As far as having social workers bug you, you don't have to put up with that. Tell your doctor that you don't want visits unless you ask for them - they have to get your doctors permission to talk to you in clinic. Surprise visits always make me crabby, and then my doctor suggests medication for my angry depression <img src="i/expressions/face-icon-small-shocked.gif" border="0"> ...sigh
Since joining this forum, I have learned so much not only about cf, but about myself. This site has been a HUGE motivation to me in staying healthy, and I hope you find it as helpful for yourself.
Barb 33 w/cf
You should not complain about the nurses giving you information and books like Go Lungs, Go!.... maybe you don't have to wear a mask, have a port-o-cath, or have to use a nebulizer, which you should be extremely grateful for!!!! But, there are some people out there that do have to experience these things.... such as the author of that book, if you hadn't actually had the time to read her bio before your rant. You would have a different perspective on things if you knew someone like Stephanie, and be more grateful for your health.... because unfortunately not all people with CF are as lucky as you!! <img src="i/expressions/face-icon-small-disgusted.gif" border="0">
ccflewallen
New member
By choosing to be "pro-active" you are going to be harrassed by doctors and nurses. Why you ask? Well you know as well as I do. MONEY of course. See with only 1 in about 2500 to 3000 people having CF, they have to compensate for lost potential profits. If there were five hundred thousand people with CF, you probably would not have this problem. I could be wrong, but I think we all know how the systems work in the great USA. MONEY MONEY and more MONEY. The love of which is the root of all evil.
Chris
26/male w/CF
Chris
26/male w/CF