i have a loved one with CF

Z

zm814

New member
Hi, im new here and i really need some support.
I have someone in my life, a wonderfull person, who i love who has CF.
She was my highschool sweet heart and now we are engaged.
We are both 27 years old, and her living with cf has been a long hard journey for me too. Im just looking for some help and guidence from people who are also in my shoes, who know what its like to live with CF, not by physically having it but still having your life, views and pretty much everything effected by it. Im having a hard time dealing with a lot of things and do not handle it very good. anyone who wants to talk will help, thanks a lot.
also if anyone else wants to ask for there own advice please feel free. i know we all need some sort of help, or we wouldnt be here. thanks
 
Z

zm814

New member
Hi, im new here and i really need some support.
I have someone in my life, a wonderfull person, who i love who has CF.
She was my highschool sweet heart and now we are engaged.
We are both 27 years old, and her living with cf has been a long hard journey for me too. Im just looking for some help and guidence from people who are also in my shoes, who know what its like to live with CF, not by physically having it but still having your life, views and pretty much everything effected by it. Im having a hard time dealing with a lot of things and do not handle it very good. anyone who wants to talk will help, thanks a lot.
also if anyone else wants to ask for there own advice please feel free. i know we all need some sort of help, or we wouldnt be here. thanks
 
Z

zm814

New member
Hi, im new here and i really need some support.
<br />I have someone in my life, a wonderfull person, who i love who has CF.
<br />She was my highschool sweet heart and now we are engaged.
<br />We are both 27 years old, and her living with cf has been a long hard journey for me too. Im just looking for some help and guidence from people who are also in my shoes, who know what its like to live with CF, not by physically having it but still having your life, views and pretty much everything effected by it. Im having a hard time dealing with a lot of things and do not handle it very good. anyone who wants to talk will help, thanks a lot.
<br />also if anyone else wants to ask for there own advice please feel free. i know we all need some sort of help, or we wouldnt be here. thanks
<br />
 
L

Liza

New member
Welcome! You have come to a great place. I have just come across your post but wondered if you also posted in Partners if not you might want to. Many should see it here though.

I am a mom of two adult girls w/CF. I probably won't be of much help but maybe. Do you have more specific questions, concerns or situations that have come up that you are having difficulties with?

Since you were high school sweethearts and are now 27, I am sure you have witnessed the ups and downs of CF. The hospitalizations, treatments, daily routines that are so very important.

How is your fiance' doing?

If you don't get many responses here in the family section, try reposting in the adults or partners section.
 
L

Liza

New member
Welcome! You have come to a great place. I have just come across your post but wondered if you also posted in Partners if not you might want to. Many should see it here though.

I am a mom of two adult girls w/CF. I probably won't be of much help but maybe. Do you have more specific questions, concerns or situations that have come up that you are having difficulties with?

Since you were high school sweethearts and are now 27, I am sure you have witnessed the ups and downs of CF. The hospitalizations, treatments, daily routines that are so very important.

How is your fiance' doing?

If you don't get many responses here in the family section, try reposting in the adults or partners section.
 
L

Liza

New member
Welcome! You have come to a great place. I have just come across your post but wondered if you also posted in Partners if not you might want to. Many should see it here though.
<br />
<br />I am a mom of two adult girls w/CF. I probably won't be of much help but maybe. Do you have more specific questions, concerns or situations that have come up that you are having difficulties with?
<br />
<br />Since you were high school sweethearts and are now 27, I am sure you have witnessed the ups and downs of CF. The hospitalizations, treatments, daily routines that are so very important.
<br />
<br />How is your fiance' doing?
<br />
<br />If you don't get many responses here in the family section, try reposting in the adults or partners section.
<br />
<br />
 
N

NancyLKF

New member
Hi. Welcome to the site. I'm the mom of a child with CF. Being involved in the life and care of someone with CF is no easy task. It's difficult emotionally, mentally. And we, as parents, didn't get to choose whether or not CF was in our life, but you did. And that makes you one in a million - to decide to love someone enough that CF doesn't matter to you. But the presence of CF makes it tough to look at your future with fearless optimism. So one thing that has helped me to cope with the unknowns of CF, is that everyone's life has unknowns, CF or no CF. None of us knows what the future holds, how long we have here, or how heathy we will be. Living with CF throws some curve balls and is hard work, but it also makes you remember what is important. Hopefully, some other partners of CFers will respond with better advice, but I wish you the best.
 
N

NancyLKF

New member
Hi. Welcome to the site. I'm the mom of a child with CF. Being involved in the life and care of someone with CF is no easy task. It's difficult emotionally, mentally. And we, as parents, didn't get to choose whether or not CF was in our life, but you did. And that makes you one in a million - to decide to love someone enough that CF doesn't matter to you. But the presence of CF makes it tough to look at your future with fearless optimism. So one thing that has helped me to cope with the unknowns of CF, is that everyone's life has unknowns, CF or no CF. None of us knows what the future holds, how long we have here, or how heathy we will be. Living with CF throws some curve balls and is hard work, but it also makes you remember what is important. Hopefully, some other partners of CFers will respond with better advice, but I wish you the best.
 
N

NancyLKF

New member
Hi. Welcome to the site. I'm the mom of a child with CF. Being involved in the life and care of someone with CF is no easy task. It's difficult emotionally, mentally. And we, as parents, didn't get to choose whether or not CF was in our life, but you did. And that makes you one in a million - to decide to love someone enough that CF doesn't matter to you. But the presence of CF makes it tough to look at your future with fearless optimism. So one thing that has helped me to cope with the unknowns of CF, is that everyone's life has unknowns, CF or no CF. None of us knows what the future holds, how long we have here, or how heathy we will be. Living with CF throws some curve balls and is hard work, but it also makes you remember what is important. Hopefully, some other partners of CFers will respond with better advice, but I wish you the best.
 
A

AleksandraKaczynska

New member
I'm thankfull that there are people like you - who give and experience Love.
I'm a mom to Joanna with cf. Wish she'll find someone like you when she grows up.

Each day - I look at my girl and am happy that she is ... naughty, is a mischief... is ....here with us. _ something that most other parents forget to notice in everyday life.
Thank YOU zm814
 
A

AleksandraKaczynska

New member
I'm thankfull that there are people like you - who give and experience Love.
I'm a mom to Joanna with cf. Wish she'll find someone like you when she grows up.

Each day - I look at my girl and am happy that she is ... naughty, is a mischief... is ....here with us. _ something that most other parents forget to notice in everyday life.
Thank YOU zm814
 
A

AleksandraKaczynska

New member
I'm thankfull that there are people like you - who give and experience Love.
<br />I'm a mom to Joanna with cf. Wish she'll find someone like you when she grows up.
<br />
<br />Each day - I look at my girl and am happy that she is ... naughty, is a mischief... is ....here with us. _ something that most other parents forget to notice in everyday life.
<br />Thank YOU zm814
 
Z

zm814

New member
Thank you to everyone who wrote me back. I really appreciate it.
liza- i took your advice and posted in the other fourm, thanks.
I didnt chose to have cf in my life, i fell in love, but even knowing everything i know now and everything ive been through, i would never take that back. Its important for everyone to know, people with cf deserve EVERYTHING, all the love and companionship and families, marriage, children etc. that someone who isnt not sick does. I understand it takes a special kind of person to persue a relationship with someone with cf, knowing the possiable concequences. mostly, i guess thats what im struggling with. My finace has been having a bad year, and with me not being able to handle it the right ways i havnt been the help like i always wanted to be. Ive always wanted to just make her life easier. and nancy you bring up a good point, tomorrow isnt promised to anyone. But, at least if your lucky enough, and you wake up tomorrow, your life is going to be 10 times easier then someone battling cf, with all the pills, machines, treatments, meds, hospital visits, emergency room visits, overnight stays, stomach aches, coughing, etc etc etc .... im just struggling with dealing with it all now myself, ive been there for so long and i just want things to get better not worse.
there are a lot of good days, but it seems like the bad days have been out weighing good. Planing a wedding is stressfull enough, on top of her fulltime job as a peds nurse, she gets sick a lot and just adds to the stress we both go through.
I know that everyday we have together is a gift from god and i should make the best out of them, its just hard sometime to stay positive im just trying to build my confidence up to where it needs to be for marriage. Its what i want more the anything in the world, im sort of letting myself down not being able to be strong enough like i should be for us.
Any help and encouragment would be much appreciated.
Thanks again for the replies
also alexandrea, that helps a lot. (she will, bc she deserves it)
 
Z

zm814

New member
Thank you to everyone who wrote me back. I really appreciate it.
liza- i took your advice and posted in the other fourm, thanks.
I didnt chose to have cf in my life, i fell in love, but even knowing everything i know now and everything ive been through, i would never take that back. Its important for everyone to know, people with cf deserve EVERYTHING, all the love and companionship and families, marriage, children etc. that someone who isnt not sick does. I understand it takes a special kind of person to persue a relationship with someone with cf, knowing the possiable concequences. mostly, i guess thats what im struggling with. My finace has been having a bad year, and with me not being able to handle it the right ways i havnt been the help like i always wanted to be. Ive always wanted to just make her life easier. and nancy you bring up a good point, tomorrow isnt promised to anyone. But, at least if your lucky enough, and you wake up tomorrow, your life is going to be 10 times easier then someone battling cf, with all the pills, machines, treatments, meds, hospital visits, emergency room visits, overnight stays, stomach aches, coughing, etc etc etc .... im just struggling with dealing with it all now myself, ive been there for so long and i just want things to get better not worse.
there are a lot of good days, but it seems like the bad days have been out weighing good. Planing a wedding is stressfull enough, on top of her fulltime job as a peds nurse, she gets sick a lot and just adds to the stress we both go through.
I know that everyday we have together is a gift from god and i should make the best out of them, its just hard sometime to stay positive im just trying to build my confidence up to where it needs to be for marriage. Its what i want more the anything in the world, im sort of letting myself down not being able to be strong enough like i should be for us.
Any help and encouragment would be much appreciated.
Thanks again for the replies
also alexandrea, that helps a lot. (she will, bc she deserves it)
 
Z

zm814

New member
Thank you to everyone who wrote me back. I really appreciate it.
<br />liza- i took your advice and posted in the other fourm, thanks.
<br />I didnt chose to have cf in my life, i fell in love, but even knowing everything i know now and everything ive been through, i would never take that back. Its important for everyone to know, people with cf deserve EVERYTHING, all the love and companionship and families, marriage, children etc. that someone who isnt not sick does. I understand it takes a special kind of person to persue a relationship with someone with cf, knowing the possiable concequences. mostly, i guess thats what im struggling with. My finace has been having a bad year, and with me not being able to handle it the right ways i havnt been the help like i always wanted to be. Ive always wanted to just make her life easier. and nancy you bring up a good point, tomorrow isnt promised to anyone. But, at least if your lucky enough, and you wake up tomorrow, your life is going to be 10 times easier then someone battling cf, with all the pills, machines, treatments, meds, hospital visits, emergency room visits, overnight stays, stomach aches, coughing, etc etc etc .... im just struggling with dealing with it all now myself, ive been there for so long and i just want things to get better not worse.
<br />there are a lot of good days, but it seems like the bad days have been out weighing good. Planing a wedding is stressfull enough, on top of her fulltime job as a peds nurse, she gets sick a lot and just adds to the stress we both go through.
<br />I know that everyday we have together is a gift from god and i should make the best out of them, its just hard sometime to stay positive im just trying to build my confidence up to where it needs to be for marriage. Its what i want more the anything in the world, im sort of letting myself down not being able to be strong enough like i should be for us.
<br /> Any help and encouragment would be much appreciated.
<br /> Thanks again for the replies
<br />also alexandrea, that helps a lot. (she will, bc she deserves it)
 
J

JORDYSMOM

New member
Try to remember this: It's okay to have periods where you're not "handling" it well. It's a lot to handle, and we all go through those times when we just wish it wasn't part of our lives.

As long as you always do your best, you're doing all that you can do.

Stacey
 
J

JORDYSMOM

New member
Try to remember this: It's okay to have periods where you're not "handling" it well. It's a lot to handle, and we all go through those times when we just wish it wasn't part of our lives.

As long as you always do your best, you're doing all that you can do.

Stacey
 
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