I have a question

[karismom]

THAT IS SO WEIRD!!! Because if he does NOT have CF where did the inclination for him to say he does and then for Alexa to HAVE it come from!!! Ask him if he was sweat tested. How old is he now??? This IS crazy!

Keep us posted!!!


peace.

lisa <img src="i/expressions/rose.gif" border="0">

 

[karismom]

THAT IS SO WEIRD!!! Because if he does NOT have CF where did the inclination for him to say he does and then for Alexa to HAVE it come from!!! Ask him if he was sweat tested. How old is he now??? This IS crazy!

Keep us posted!!!


peace.

lisa <img src="i/expressions/rose.gif" border="0">

 

[karismom]

THAT IS SO WEIRD!!! Because if he does NOT have CF where did the inclination for him to say he does and then for Alexa to HAVE it come from!!! Ask him if he was sweat tested. How old is he now??? This IS crazy!

Keep us posted!!!


peace.

lisa <img src="i/expressions/rose.gif" border="0">

 

[karismom]

THAT IS SO WEIRD!!! Because if he does NOT have CF where did the inclination for him to say he does and then for Alexa to HAVE it come from!!! Ask him if he was sweat tested. How old is he now??? This IS crazy!

Keep us posted!!!


peace.

lisa <img src="i/expressions/rose.gif" border="0">

 

[nicole781]

he says that he remembers gettig sweat tests when he was little, but I have no idea what the results are with that. his mom says that he was seen by some cf doctor, but i never hear of any therapy that he did. One of the other strange things about this is I was talking to her about how when alexa gets older we'll be getting her a vest, and she was like, well, hopefully she wont need one. I said that she would even if lung involvment isn't really there, b/c it would help bring up mucous . She wrote me an email saying that she hoped i didn't think that they thought that wasn't important, but that not all people with cf show lung involvment until much later (like alexa's father)
If he did have cf, why wouldn't she know more about preventative care? I just feel like something doesn't add up, but I dont want to come off as a know-it-all to her, but i just dont get it!

 

[nicole781]

he says that he remembers gettig sweat tests when he was little, but I have no idea what the results are with that. his mom says that he was seen by some cf doctor, but i never hear of any therapy that he did. One of the other strange things about this is I was talking to her about how when alexa gets older we'll be getting her a vest, and she was like, well, hopefully she wont need one. I said that she would even if lung involvment isn't really there, b/c it would help bring up mucous . She wrote me an email saying that she hoped i didn't think that they thought that wasn't important, but that not all people with cf show lung involvment until much later (like alexa's father)
If he did have cf, why wouldn't she know more about preventative care? I just feel like something doesn't add up, but I dont want to come off as a know-it-all to her, but i just dont get it!

 

[nicole781]

he says that he remembers gettig sweat tests when he was little, but I have no idea what the results are with that. his mom says that he was seen by some cf doctor, but i never hear of any therapy that he did. One of the other strange things about this is I was talking to her about how when alexa gets older we'll be getting her a vest, and she was like, well, hopefully she wont need one. I said that she would even if lung involvment isn't really there, b/c it would help bring up mucous . She wrote me an email saying that she hoped i didn't think that they thought that wasn't important, but that not all people with cf show lung involvment until much later (like alexa's father)
If he did have cf, why wouldn't she know more about preventative care? I just feel like something doesn't add up, but I dont want to come off as a know-it-all to her, but i just dont get it!

 

[nicole781]

he says that he remembers gettig sweat tests when he was little, but I have no idea what the results are with that. his mom says that he was seen by some cf doctor, but i never hear of any therapy that he did. One of the other strange things about this is I was talking to her about how when alexa gets older we'll be getting her a vest, and she was like, well, hopefully she wont need one. I said that she would even if lung involvment isn't really there, b/c it would help bring up mucous . She wrote me an email saying that she hoped i didn't think that they thought that wasn't important, but that not all people with cf show lung involvment until much later (like alexa's father)
If he did have cf, why wouldn't she know more about preventative care? I just feel like something doesn't add up, but I dont want to come off as a know-it-all to her, but i just dont get it!

 

[nicole781]

he says that he remembers gettig sweat tests when he was little, but I have no idea what the results are with that. his mom says that he was seen by some cf doctor, but i never hear of any therapy that he did. One of the other strange things about this is I was talking to her about how when alexa gets older we'll be getting her a vest, and she was like, well, hopefully she wont need one. I said that she would even if lung involvment isn't really there, b/c it would help bring up mucous . She wrote me an email saying that she hoped i didn't think that they thought that wasn't important, but that not all people with cf show lung involvment until much later (like alexa's father)
If he did have cf, why wouldn't she know more about preventative care? I just feel like something doesn't add up, but I dont want to come off as a know-it-all to her, but i just dont get it!

 

[nicole781]

he says that he remembers gettig sweat tests when he was little, but I have no idea what the results are with that. his mom says that he was seen by some cf doctor, but i never hear of any therapy that he did. One of the other strange things about this is I was talking to her about how when alexa gets older we'll be getting her a vest, and she was like, well, hopefully she wont need one. I said that she would even if lung involvment isn't really there, b/c it would help bring up mucous . She wrote me an email saying that she hoped i didn't think that they thought that wasn't important, but that not all people with cf show lung involvment until much later (like alexa's father)
If he did have cf, why wouldn't she know more about preventative care? I just feel like something doesn't add up, but I dont want to come off as a know-it-all to her, but i just dont get it!

 

[thefrogprincess]

Very weird! This doesn't add up at all. I would encourage him to get genetic testing. If he was supposed to have been diagnosed BEFORE the CF gene was found then he won't even know what mutations he might have.

When my DH and I went to a geneticist to get him tested, they guy said that he has seen a few cases where on a genetic level a person had CF but showed no symptoms what-so-ever. But this is a pretty rare scenerio.

 

[thefrogprincess]

Very weird! This doesn't add up at all. I would encourage him to get genetic testing. If he was supposed to have been diagnosed BEFORE the CF gene was found then he won't even know what mutations he might have.

When my DH and I went to a geneticist to get him tested, they guy said that he has seen a few cases where on a genetic level a person had CF but showed no symptoms what-so-ever. But this is a pretty rare scenerio.

 

[thefrogprincess]

Very weird! This doesn't add up at all. I would encourage him to get genetic testing. If he was supposed to have been diagnosed BEFORE the CF gene was found then he won't even know what mutations he might have.

When my DH and I went to a geneticist to get him tested, they guy said that he has seen a few cases where on a genetic level a person had CF but showed no symptoms what-so-ever. But this is a pretty rare scenerio.

 

[thefrogprincess]

Very weird! This doesn't add up at all. I would encourage him to get genetic testing. If he was supposed to have been diagnosed BEFORE the CF gene was found then he won't even know what mutations he might have.

When my DH and I went to a geneticist to get him tested, they guy said that he has seen a few cases where on a genetic level a person had CF but showed no symptoms what-so-ever. But this is a pretty rare scenerio.

 

[thefrogprincess]

Very weird! This doesn't add up at all. I would encourage him to get genetic testing. If he was supposed to have been diagnosed BEFORE the CF gene was found then he won't even know what mutations he might have.

When my DH and I went to a geneticist to get him tested, they guy said that he has seen a few cases where on a genetic level a person had CF but showed no symptoms what-so-ever. But this is a pretty rare scenerio.

 

[thefrogprincess]

Very weird! This doesn't add up at all. I would encourage him to get genetic testing. If he was supposed to have been diagnosed BEFORE the CF gene was found then he won't even know what mutations he might have.

When my DH and I went to a geneticist to get him tested, they guy said that he has seen a few cases where on a genetic level a person had CF but showed no symptoms what-so-ever. But this is a pretty rare scenerio.

 

[TonyaH]

You are right..this is baffling! It must be very difficult for you to be facing this disease head on right off the bat with your new little one, and see your boyfriends mom seem so nonchalent about the whole thing.

Perhaps you could talk with your boyfriend and explain your confusion. He will certainly understand your need to clarify all of this newfound knowledge about CF and the affect is has on him as well as Alexa. Maybe he needs to understand the issues of cross contamination between him and the baby. Maybe if he realizes how important keeping himself healthy is for Alexa, he will get involved with a CF center that will offer you more answers about his diagnosis and status of health. (And it goes both ways...Alexa's disease could affect his health and this is a good time to begin seeing a specialist, if indeed he does have CF and is not a carrier.) In any case, I would be a little nervous about him being around the baby without knowing if their are certain precautions that should be taken to keep them both healthy. Good luck to you and your family!

 

[TonyaH]

You are right..this is baffling! It must be very difficult for you to be facing this disease head on right off the bat with your new little one, and see your boyfriends mom seem so nonchalent about the whole thing.

Perhaps you could talk with your boyfriend and explain your confusion. He will certainly understand your need to clarify all of this newfound knowledge about CF and the affect is has on him as well as Alexa. Maybe he needs to understand the issues of cross contamination between him and the baby. Maybe if he realizes how important keeping himself healthy is for Alexa, he will get involved with a CF center that will offer you more answers about his diagnosis and status of health. (And it goes both ways...Alexa's disease could affect his health and this is a good time to begin seeing a specialist, if indeed he does have CF and is not a carrier.) In any case, I would be a little nervous about him being around the baby without knowing if their are certain precautions that should be taken to keep them both healthy. Good luck to you and your family!

 

[TonyaH]

You are right..this is baffling! It must be very difficult for you to be facing this disease head on right off the bat with your new little one, and see your boyfriends mom seem so nonchalent about the whole thing.

Perhaps you could talk with your boyfriend and explain your confusion. He will certainly understand your need to clarify all of this newfound knowledge about CF and the affect is has on him as well as Alexa. Maybe he needs to understand the issues of cross contamination between him and the baby. Maybe if he realizes how important keeping himself healthy is for Alexa, he will get involved with a CF center that will offer you more answers about his diagnosis and status of health. (And it goes both ways...Alexa's disease could affect his health and this is a good time to begin seeing a specialist, if indeed he does have CF and is not a carrier.) In any case, I would be a little nervous about him being around the baby without knowing if their are certain precautions that should be taken to keep them both healthy. Good luck to you and your family!

 

[TonyaH]

You are right..this is baffling! It must be very difficult for you to be facing this disease head on right off the bat with your new little one, and see your boyfriends mom seem so nonchalent about the whole thing.

Perhaps you could talk with your boyfriend and explain your confusion. He will certainly understand your need to clarify all of this newfound knowledge about CF and the affect is has on him as well as Alexa. Maybe he needs to understand the issues of cross contamination between him and the baby. Maybe if he realizes how important keeping himself healthy is for Alexa, he will get involved with a CF center that will offer you more answers about his diagnosis and status of health. (And it goes both ways...Alexa's disease could affect his health and this is a good time to begin seeing a specialist, if indeed he does have CF and is not a carrier.) In any case, I would be a little nervous about him being around the baby without knowing if their are certain precautions that should be taken to keep them both healthy. Good luck to you and your family!