Hi and congratulations on getting listed! Not really what you wanted it to all boil down to, but you're listed so that is great. I don't have any advice for having drug resistant pseudo. Sorry. But look at it this way, if they didn't think you had a good chance of survival post transplant then they wouldn't list you.
My Anna had a double lung transplant on July 25, 2007 at Stanford. We, just the two of us, relocated to CA from Texas to wait back in Feb. of this year. Her beginning score was like 37, then went up to 40 by March, then went down to 38 just the week before she got her transplant.
UNOS is a fascinating site, give it a look. You can take a look at your particular centers data and see how many people are listed. No names of course, so you don't know which one you are exactly. We didn't find out about how much you can narrow things down until about 2 months or so before Anna actually got her call. I think if we'd had known about it earlier, it might have drove us nuts but then again, it was nice to see how things were moving along for people. Click on Data, if you are interested in exploring. You can narrow things down by allocation score, blood type, gender, disease, all sorts of things. Our only interest was where Anna was on the list so we always put in the score first, then blood type and sometimes gender just to see.
This is a great place to be. You'll get lots of support. We wouldn't have made it through the wait if it hadn't been for everyone here.