I live in Europe - How can I get Kalydeco without the G551D mutation?

N

nocode

New member
I live in the Netherlands, and I will ask my doctor about it, but I don´t think he will prescribe it. Does anyone in Europe take Kalydeco off label? My mutations are: R334W and N1303K. Any help will be greatly appreciated. I also have some savings but I think the price must be off the roof. Thanks!
 
S

Swedishstar84

Banned
Hi i'm fr.o.m. Europe as well ( Sweden ) . And i know My doc told me it is 7-8 ppl that have the Gene to try kalydeco. But i dont have that Gene . I know we got it here and think ppl that need it have tried it hopefully. /marie
 
G

gunelle

Guest
Hi, I live in Spain, here they are trying dd508d. I have one copy of d508d so I do not qualify. Hopefully soon they'll start trying on all mutations...
 
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