I lost my friends

J

JazzysMom

New member
The best thing you could do is to join us. I know Graysons Nana had been coming here.

You do find out who you true friends are during this time. Sometimes its because they are selfish, sometimes because people just cant handle sickness & other times because they just dont get it.

We can do it all here <img src="i/expressions/face-icon-small-tongue.gif" border="0">

So please feel free to vent, cry, scream AND celebrate when the time comes. We will be right along side you.

If you would like to SPEAK to someone, I would be happy to talk to you. Send me a PM & I will give you my phone # or vice versa.

HUGS
 
J

JazzysMom

New member
The best thing you could do is to join us. I know Graysons Nana had been coming here.

You do find out who you true friends are during this time. Sometimes its because they are selfish, sometimes because people just cant handle sickness & other times because they just dont get it.

We can do it all here <img src="i/expressions/face-icon-small-tongue.gif" border="0">

So please feel free to vent, cry, scream AND celebrate when the time comes. We will be right along side you.

If you would like to SPEAK to someone, I would be happy to talk to you. Send me a PM & I will give you my phone # or vice versa.

HUGS
 
J

JazzysMom

New member
The best thing you could do is to join us. I know Graysons Nana had been coming here.

You do find out who you true friends are during this time. Sometimes its because they are selfish, sometimes because people just cant handle sickness & other times because they just dont get it.

We can do it all here <img src="i/expressions/face-icon-small-tongue.gif" border="0">

So please feel free to vent, cry, scream AND celebrate when the time comes. We will be right along side you.

If you would like to SPEAK to someone, I would be happy to talk to you. Send me a PM & I will give you my phone # or vice versa.

HUGS
 
J

JazzysMom

New member
The best thing you could do is to join us. I know Graysons Nana had been coming here.

You do find out who you true friends are during this time. Sometimes its because they are selfish, sometimes because people just cant handle sickness & other times because they just dont get it.

We can do it all here <img src="i/expressions/face-icon-small-tongue.gif" border="0">

So please feel free to vent, cry, scream AND celebrate when the time comes. We will be right along side you.

If you would like to SPEAK to someone, I would be happy to talk to you. Send me a PM & I will give you my phone # or vice versa.

HUGS
 
J

JazzysMom

New member
The best thing you could do is to join us. I know Graysons Nana had been coming here.
<br />
<br />You do find out who you true friends are during this time. Sometimes its because they are selfish, sometimes because people just cant handle sickness & other times because they just dont get it.
<br />
<br />We can do it all here <img src="i/expressions/face-icon-small-tongue.gif" border="0">
<br />
<br />So please feel free to vent, cry, scream AND celebrate when the time comes. We will be right along side you.
<br />
<br />If you would like to SPEAK to someone, I would be happy to talk to you. Send me a PM & I will give you my phone # or vice versa.
<br />
<br />HUGS
 
P

pjspiegle

New member
Ditto with all on finding out who your true friends are!

If it makes you feel any better, I believe I did have some "temper tantrums" about the hospitalizations, actually, I think I still do at times if I am honest, and I have been doing this for almost 15 years now, nobody will tell anyone right? Thats what the bathrooms are for,I suggest turning all the water on and letting it all out, then you can move forward again. Perhaps just knowing you aren't the only way feeling that way will make it better. There was nothing better than when another CF mom would be in the hospital and we could sit and have a pity party together, then pull ourselves back together and move on with it all.

What you are feeling is normal and you are not alone.

At least I don't feel as crazy knowing that others have similar feelings.

Patty
 
P

pjspiegle

New member
Ditto with all on finding out who your true friends are!

If it makes you feel any better, I believe I did have some "temper tantrums" about the hospitalizations, actually, I think I still do at times if I am honest, and I have been doing this for almost 15 years now, nobody will tell anyone right? Thats what the bathrooms are for,I suggest turning all the water on and letting it all out, then you can move forward again. Perhaps just knowing you aren't the only way feeling that way will make it better. There was nothing better than when another CF mom would be in the hospital and we could sit and have a pity party together, then pull ourselves back together and move on with it all.

What you are feeling is normal and you are not alone.

At least I don't feel as crazy knowing that others have similar feelings.

Patty
 
P

pjspiegle

New member
Ditto with all on finding out who your true friends are!

If it makes you feel any better, I believe I did have some "temper tantrums" about the hospitalizations, actually, I think I still do at times if I am honest, and I have been doing this for almost 15 years now, nobody will tell anyone right? Thats what the bathrooms are for,I suggest turning all the water on and letting it all out, then you can move forward again. Perhaps just knowing you aren't the only way feeling that way will make it better. There was nothing better than when another CF mom would be in the hospital and we could sit and have a pity party together, then pull ourselves back together and move on with it all.

What you are feeling is normal and you are not alone.

At least I don't feel as crazy knowing that others have similar feelings.

Patty
 
P

pjspiegle

New member
Ditto with all on finding out who your true friends are!

If it makes you feel any better, I believe I did have some "temper tantrums" about the hospitalizations, actually, I think I still do at times if I am honest, and I have been doing this for almost 15 years now, nobody will tell anyone right? Thats what the bathrooms are for,I suggest turning all the water on and letting it all out, then you can move forward again. Perhaps just knowing you aren't the only way feeling that way will make it better. There was nothing better than when another CF mom would be in the hospital and we could sit and have a pity party together, then pull ourselves back together and move on with it all.

What you are feeling is normal and you are not alone.

At least I don't feel as crazy knowing that others have similar feelings.

Patty
 
P

pjspiegle

New member
Ditto with all on finding out who your true friends are!
<br />
<br />If it makes you feel any better, I believe I did have some "temper tantrums" about the hospitalizations, actually, I think I still do at times if I am honest, and I have been doing this for almost 15 years now, nobody will tell anyone right? Thats what the bathrooms are for,I suggest turning all the water on and letting it all out, then you can move forward again. Perhaps just knowing you aren't the only way feeling that way will make it better. There was nothing better than when another CF mom would be in the hospital and we could sit and have a pity party together, then pull ourselves back together and move on with it all.
<br />
<br />What you are feeling is normal and you are not alone.
<br />
<br />At least I don't feel as crazy knowing that others have similar feelings.
<br />
<br />Patty
 
U

usedtobeinca

Guest
I agree with all that has been said here. You will find whole spectrum of how people react and/or ignore. We had the relatives who would call our home (90 miles from the hospital) and leave messages ripping us for not calling them back promptly (not bothering to call the cell phones we had with us in the hosp), the friends 15min away who 'really cared' but never once set foot in the hospital, and the acquaintences we hardly knew who visited and sent flowers - and everything in between!

We found the CF diagnosis to be a real shake-out of our friends. Some we hardly talk to any more while new friends who do 'get it' have come into our lives. Th more parents we chat with, the more it seems have stories of their own - which can make for therapeutic chit chat.

This site is also great, and while I mainly lurk here I get so much out of reading people's comments/experiences. You're in good hands here <img src="">
 
U

usedtobeinca

Guest
I agree with all that has been said here. You will find whole spectrum of how people react and/or ignore. We had the relatives who would call our home (90 miles from the hospital) and leave messages ripping us for not calling them back promptly (not bothering to call the cell phones we had with us in the hosp), the friends 15min away who 'really cared' but never once set foot in the hospital, and the acquaintences we hardly knew who visited and sent flowers - and everything in between!

We found the CF diagnosis to be a real shake-out of our friends. Some we hardly talk to any more while new friends who do 'get it' have come into our lives. Th more parents we chat with, the more it seems have stories of their own - which can make for therapeutic chit chat.

This site is also great, and while I mainly lurk here I get so much out of reading people's comments/experiences. You're in good hands here <img src="">
 
U

usedtobeinca

Guest
I agree with all that has been said here. You will find whole spectrum of how people react and/or ignore. We had the relatives who would call our home (90 miles from the hospital) and leave messages ripping us for not calling them back promptly (not bothering to call the cell phones we had with us in the hosp), the friends 15min away who 'really cared' but never once set foot in the hospital, and the acquaintences we hardly knew who visited and sent flowers - and everything in between!

We found the CF diagnosis to be a real shake-out of our friends. Some we hardly talk to any more while new friends who do 'get it' have come into our lives. Th more parents we chat with, the more it seems have stories of their own - which can make for therapeutic chit chat.

This site is also great, and while I mainly lurk here I get so much out of reading people's comments/experiences. You're in good hands here <img src="">
 
U

usedtobeinca

Guest
I agree with all that has been said here. You will find whole spectrum of how people react and/or ignore. We had the relatives who would call our home (90 miles from the hospital) and leave messages ripping us for not calling them back promptly (not bothering to call the cell phones we had with us in the hosp), the friends 15min away who 'really cared' but never once set foot in the hospital, and the acquaintences we hardly knew who visited and sent flowers - and everything in between!

We found the CF diagnosis to be a real shake-out of our friends. Some we hardly talk to any more while new friends who do 'get it' have come into our lives. Th more parents we chat with, the more it seems have stories of their own - which can make for therapeutic chit chat.

This site is also great, and while I mainly lurk here I get so much out of reading people's comments/experiences. You're in good hands here <img src="">
 
U

usedtobeinca

Guest
I agree with all that has been said here. You will find whole spectrum of how people react and/or ignore. We had the relatives who would call our home (90 miles from the hospital) and leave messages ripping us for not calling them back promptly (not bothering to call the cell phones we had with us in the hosp), the friends 15min away who 'really cared' but never once set foot in the hospital, and the acquaintences we hardly knew who visited and sent flowers - and everything in between!
<br />
<br />We found the CF diagnosis to be a real shake-out of our friends. Some we hardly talk to any more while new friends who do 'get it' have come into our lives. Th more parents we chat with, the more it seems have stories of their own - which can make for therapeutic chit chat.
<br />
<br />This site is also great, and while I mainly lurk here I get so much out of reading people's comments/experiences. You're in good hands here <img src="">
 
T

Tcole

New member
Well my one brother came once to the hospital while graycie was in for the 5 months. At our Thanksgiving family get together he never touched or talked to Graycie. That hurts me bad. My other brother lives close by our hospital and visited as much as he could. My close friends never came. Well i thought they were close. One friend kept saying she wanted to visit but her or the kids were sick. We were home 5 weeks and she just seen her in her carseat in my car. So far no visitors this hospital stay. Plus the nurse just told me they sent her stool off for labs and came back with some kind of flu virus. So thats another thing to worry about. We are doing an infant PFT's tomorrow. Then finish ABX and then home next week after 14 day of ABX.

I look at graycie and don't see a sick baby. I don't want to dwell on things that could happen. Im tired of friends and family looking at her like an outcast.

Man! Im home sick!
 
T

Tcole

New member
Well my one brother came once to the hospital while graycie was in for the 5 months. At our Thanksgiving family get together he never touched or talked to Graycie. That hurts me bad. My other brother lives close by our hospital and visited as much as he could. My close friends never came. Well i thought they were close. One friend kept saying she wanted to visit but her or the kids were sick. We were home 5 weeks and she just seen her in her carseat in my car. So far no visitors this hospital stay. Plus the nurse just told me they sent her stool off for labs and came back with some kind of flu virus. So thats another thing to worry about. We are doing an infant PFT's tomorrow. Then finish ABX and then home next week after 14 day of ABX.

I look at graycie and don't see a sick baby. I don't want to dwell on things that could happen. Im tired of friends and family looking at her like an outcast.

Man! Im home sick!
 
T

Tcole

New member
Well my one brother came once to the hospital while graycie was in for the 5 months. At our Thanksgiving family get together he never touched or talked to Graycie. That hurts me bad. My other brother lives close by our hospital and visited as much as he could. My close friends never came. Well i thought they were close. One friend kept saying she wanted to visit but her or the kids were sick. We were home 5 weeks and she just seen her in her carseat in my car. So far no visitors this hospital stay. Plus the nurse just told me they sent her stool off for labs and came back with some kind of flu virus. So thats another thing to worry about. We are doing an infant PFT's tomorrow. Then finish ABX and then home next week after 14 day of ABX.

I look at graycie and don't see a sick baby. I don't want to dwell on things that could happen. Im tired of friends and family looking at her like an outcast.

Man! Im home sick!
 
T

Tcole

New member
Well my one brother came once to the hospital while graycie was in for the 5 months. At our Thanksgiving family get together he never touched or talked to Graycie. That hurts me bad. My other brother lives close by our hospital and visited as much as he could. My close friends never came. Well i thought they were close. One friend kept saying she wanted to visit but her or the kids were sick. We were home 5 weeks and she just seen her in her carseat in my car. So far no visitors this hospital stay. Plus the nurse just told me they sent her stool off for labs and came back with some kind of flu virus. So thats another thing to worry about. We are doing an infant PFT's tomorrow. Then finish ABX and then home next week after 14 day of ABX.

I look at graycie and don't see a sick baby. I don't want to dwell on things that could happen. Im tired of friends and family looking at her like an outcast.

Man! Im home sick!
 
T

Tcole

New member
Well my one brother came once to the hospital while graycie was in for the 5 months. At our Thanksgiving family get together he never touched or talked to Graycie. That hurts me bad. My other brother lives close by our hospital and visited as much as he could. My close friends never came. Well i thought they were close. One friend kept saying she wanted to visit but her or the kids were sick. We were home 5 weeks and she just seen her in her carseat in my car. So far no visitors this hospital stay. Plus the nurse just told me they sent her stool off for labs and came back with some kind of flu virus. So thats another thing to worry about. We are doing an infant PFT's tomorrow. Then finish ABX and then home next week after 14 day of ABX.
<br />
<br />I look at graycie and don't see a sick baby. I don't want to dwell on things that could happen. Im tired of friends and family looking at her like an outcast.
<br />
<br />Man! Im home sick!
 
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