I"M Marty

[JustDucky]

I

I am sorry about the diagnosis but at least now you know what is causing you to be so sick. Now you can get the right treatment and hopefully, things will turn around for you. I was also a late diagnosis at around 34, I knew something was very wrong and I was right. I have been on aggressive treatment since then and my lung infections have gotten a bit better, I used to be in the hospital about every 2 to 3 months, now it is more like every 6. One thing you should do is to go to a CF center. Not sure where in CT you are, there is Hartford and Yale off the top of my head. The center will monitor your lungs routinely and treat your infections and deal with nutrition issues as well. It will be overwhelming, I am not going to lie to you.
As far as having kids, your doctor can test you for that.
Also, I think it is great that a doc helped you out like that, not many would pay for genetic testing out of his or her pocket. Amazing. Sounds like a great doc.
Hang in there, ask alot of questions.
Hugs, Jenn

 

[JustDucky]

I

I am sorry about the diagnosis but at least now you know what is causing you to be so sick. Now you can get the right treatment and hopefully, things will turn around for you. I was also a late diagnosis at around 34, I knew something was very wrong and I was right. I have been on aggressive treatment since then and my lung infections have gotten a bit better, I used to be in the hospital about every 2 to 3 months, now it is more like every 6. One thing you should do is to go to a CF center. Not sure where in CT you are, there is Hartford and Yale off the top of my head. The center will monitor your lungs routinely and treat your infections and deal with nutrition issues as well. It will be overwhelming, I am not going to lie to you.
As far as having kids, your doctor can test you for that.
Also, I think it is great that a doc helped you out like that, not many would pay for genetic testing out of his or her pocket. Amazing. Sounds like a great doc.
Hang in there, ask alot of questions.
Hugs, Jenn

 

[JustDucky]

I

I am sorry about the diagnosis but at least now you know what is causing you to be so sick. Now you can get the right treatment and hopefully, things will turn around for you. I was also a late diagnosis at around 34, I knew something was very wrong and I was right. I have been on aggressive treatment since then and my lung infections have gotten a bit better, I used to be in the hospital about every 2 to 3 months, now it is more like every 6. One thing you should do is to go to a CF center. Not sure where in CT you are, there is Hartford and Yale off the top of my head. The center will monitor your lungs routinely and treat your infections and deal with nutrition issues as well. It will be overwhelming, I am not going to lie to you.
As far as having kids, your doctor can test you for that.
Also, I think it is great that a doc helped you out like that, not many would pay for genetic testing out of his or her pocket. Amazing. Sounds like a great doc.
Hang in there, ask alot of questions.
Hugs, Jenn

 

[JustDucky]

I

I am sorry about the diagnosis but at least now you know what is causing you to be so sick. Now you can get the right treatment and hopefully, things will turn around for you. I was also a late diagnosis at around 34, I knew something was very wrong and I was right. I have been on aggressive treatment since then and my lung infections have gotten a bit better, I used to be in the hospital about every 2 to 3 months, now it is more like every 6. One thing you should do is to go to a CF center. Not sure where in CT you are, there is Hartford and Yale off the top of my head. The center will monitor your lungs routinely and treat your infections and deal with nutrition issues as well. It will be overwhelming, I am not going to lie to you.
As far as having kids, your doctor can test you for that.
Also, I think it is great that a doc helped you out like that, not many would pay for genetic testing out of his or her pocket. Amazing. Sounds like a great doc.
Hang in there, ask alot of questions.
Hugs, Jenn

 

[JustDucky]

I

I am sorry about the diagnosis but at least now you know what is causing you to be so sick. Now you can get the right treatment and hopefully, things will turn around for you. I was also a late diagnosis at around 34, I knew something was very wrong and I was right. I have been on aggressive treatment since then and my lung infections have gotten a bit better, I used to be in the hospital about every 2 to 3 months, now it is more like every 6. One thing you should do is to go to a CF center. Not sure where in CT you are, there is Hartford and Yale off the top of my head. The center will monitor your lungs routinely and treat your infections and deal with nutrition issues as well. It will be overwhelming, I am not going to lie to you.
<br />As far as having kids, your doctor can test you for that.
<br />Also, I think it is great that a doc helped you out like that, not many would pay for genetic testing out of his or her pocket. Amazing. Sounds like a great doc.
<br />Hang in there, ask alot of questions.
<br />Hugs, Jenn

 

[hmw]

I

Yes, as JustDucky stated, CCMC/Hartford Hospital and Yale are the two centers here in CT- which one have you been to? I take Emily to CCMC in Hartford; I don't have experience with the adult side of things up here but love the pediatric clinic.

What mutations do you have? Have you had a sweat test? I wish the very best as you get started on treatment that will hopefully make a big difference in your quality of life after so much time sick the last several years.

 

[hmw]

I

Yes, as JustDucky stated, CCMC/Hartford Hospital and Yale are the two centers here in CT- which one have you been to? I take Emily to CCMC in Hartford; I don't have experience with the adult side of things up here but love the pediatric clinic.

What mutations do you have? Have you had a sweat test? I wish the very best as you get started on treatment that will hopefully make a big difference in your quality of life after so much time sick the last several years.

 

[hmw]

I

Yes, as JustDucky stated, CCMC/Hartford Hospital and Yale are the two centers here in CT- which one have you been to? I take Emily to CCMC in Hartford; I don't have experience with the adult side of things up here but love the pediatric clinic.

What mutations do you have? Have you had a sweat test? I wish the very best as you get started on treatment that will hopefully make a big difference in your quality of life after so much time sick the last several years.

 

[hmw]

I

Yes, as JustDucky stated, CCMC/Hartford Hospital and Yale are the two centers here in CT- which one have you been to? I take Emily to CCMC in Hartford; I don't have experience with the adult side of things up here but love the pediatric clinic.

What mutations do you have? Have you had a sweat test? I wish the very best as you get started on treatment that will hopefully make a big difference in your quality of life after so much time sick the last several years.

 

[hmw]

I

Yes, as JustDucky stated, CCMC/Hartford Hospital and Yale are the two centers here in CT- which one have you been to? I take Emily to CCMC in Hartford; I don't have experience with the adult side of things up here but love the pediatric clinic.
<br />
<br />What mutations do you have? Have you had a sweat test? I wish the very best as you get started on treatment that will hopefully make a big difference in your quality of life after so much time sick the last several years.

 

[randomgirl]

I

Psssh I wouldn't worry if I were you. You got diagnosed at 44? That's awesome! That means that you lived freakin 44 years without taking so much medicine and therapy and all that other junk so I would think you're in pretty good shape.<img src="i/expressions/face-icon-small-smile.gif" border="0"> Alot of us can't live even month without our meds. No worries Marty

 

[randomgirl]

I

Psssh I wouldn't worry if I were you. You got diagnosed at 44? That's awesome! That means that you lived freakin 44 years without taking so much medicine and therapy and all that other junk so I would think you're in pretty good shape.<img src="i/expressions/face-icon-small-smile.gif" border="0"> Alot of us can't live even month without our meds. No worries Marty

 

[randomgirl]

I

Psssh I wouldn't worry if I were you. You got diagnosed at 44? That's awesome! That means that you lived freakin 44 years without taking so much medicine and therapy and all that other junk so I would think you're in pretty good shape.<img src="i/expressions/face-icon-small-smile.gif" border="0"> Alot of us can't live even month without our meds. No worries Marty

 

[randomgirl]

I

Psssh I wouldn't worry if I were you. You got diagnosed at 44? That's awesome! That means that you lived freakin 44 years without taking so much medicine and therapy and all that other junk so I would think you're in pretty good shape.<img src="i/expressions/face-icon-small-smile.gif" border="0"> Alot of us can't live even month without our meds. No worries Marty

 

[randomgirl]

I

Psssh I wouldn't worry if I were you. You got diagnosed at 44? That's awesome! That means that you lived freakin 44 years without taking so much medicine and therapy and all that other junk so I would think you're in pretty good shape.<img src="i/expressions/face-icon-small-smile.gif" border="0"> Alot of us can't live even month without our meds. No worries Marty

 

[lmattaway]

I

Welcome!

Try to take it one day at a time. There's a lot of information out there and it can be intimidating to sift through. CFF.org is a trustworthy site to start exploring (Cystic Fibrosis Foundation).

Ask as many questions as you need... the best thing you can do is to educate yourself. But don't feel like you have to understand it all at once. This forum is always here to help you out when you come across a new question or concern.

 

[lmattaway]

I

Welcome!

Try to take it one day at a time. There's a lot of information out there and it can be intimidating to sift through. CFF.org is a trustworthy site to start exploring (Cystic Fibrosis Foundation).

Ask as many questions as you need... the best thing you can do is to educate yourself. But don't feel like you have to understand it all at once. This forum is always here to help you out when you come across a new question or concern.

 

[lmattaway]

I

Welcome!

Try to take it one day at a time. There's a lot of information out there and it can be intimidating to sift through. CFF.org is a trustworthy site to start exploring (Cystic Fibrosis Foundation).

Ask as many questions as you need... the best thing you can do is to educate yourself. But don't feel like you have to understand it all at once. This forum is always here to help you out when you come across a new question or concern.

 

[lmattaway]

I

Welcome!

Try to take it one day at a time. There's a lot of information out there and it can be intimidating to sift through. CFF.org is a trustworthy site to start exploring (Cystic Fibrosis Foundation).

Ask as many questions as you need... the best thing you can do is to educate yourself. But don't feel like you have to understand it all at once. This forum is always here to help you out when you come across a new question or concern.

 

[lmattaway]

I

Welcome!
<br />
<br />Try to take it one day at a time. There's a lot of information out there and it can be intimidating to sift through. CFF.org is a trustworthy site to start exploring (Cystic Fibrosis Foundation).
<br />
<br />Ask as many questions as you need... the best thing you can do is to educate yourself. But don't feel like you have to understand it all at once. This forum is always here to help you out when you come across a new question or concern.