I need some serious opinions.

[anonymous]

well your Docktor if he was a docktor must do some restudding , because if you are nor a carrier of the cf gene there is no risk for you having a child that has cf. He might be a carrier aswell but for your grandchildren to be ill you child must have children with some one who also has the cf gene and this would be what 25 years from know well I am sure by then we already have a cure or tratment.If you are a carrier of the cf gene there is a 25 % risk of having a child with cf and 50% that you'll have a child that is a carrier and 25% chanse that he is healthy and not a carrier. In that case you would be able to do pgd, that's like ivf only that they check the embrio for cf before putting it back ito your uterus. A other option is cvs ,they take small sampele of the plasenta at week 10 to 12 and they check it for cf it dosen't hurt but it's alitelbit un plesent i did it yeasterday for a neurofibromatosis and there is a 50 50 risk so i am waiting now for the resault.
Go a find yourself a nother docktor there is a lot of info about pgd and cvs on the net but!!! if you dont have the gene forget about it go and get yourself pregnent .

Love
Channa

 

[anonymous]

First of all, your doctor sounds like an idiot. If you are NOT a carrier-there is NO WAY your child will be born with CF.

Two, you can report your doctor for refusing to test you. If his morals and eithics personally prohibit him from testing you he is required to refer you to someone who can test you-it's called part of the hipocratic oath they take when they become doctors.

My husband has CF and I have had the extended CF genetic testing panel. The "common" test usually tests 25-50 of the most frequent CF genes, but the extended panel covers 100+ of the most common CF mutations. We want children and I would have been outraged (as you do sound) to have my doctor tell me what yours said. Even if he really did feel that way, he should have just told you he wouldn't run the test for personal reasons and then refer you to somebody else.

It sounds like you are doing the right thing by starting with getting a new doctor, you could get in touch with a local CF doctor and see if they could recommend somebody to test you.

Best of luck with everything!

Julie

 

[wuffles]

What everyone else said! <img src="i/expressions/face-icon-small-smile.gif" border="0">

Just speaking of seriously misguided advice given by doctors, I was once questioned by a GP as to why I was taking the oral contraceptive pill. I looked at him strangely and said "most of the reasons it's made for" to which he replied "oh that's strange, because women with CF can't get pregnant." I felt like reporting him for that, so if I was given advice like you I'd be fuming!

 

[anonymous]

Like everyone else has said he shouldn't be giving any sort of advice on the matter as he obviously knows very little about CF.
My first born has CF and he is 20 months old, he is the best thing that has ever happened to me!
I just makes me so angry at people out there talking crap like that, and then some poor person actually might believe it.
I am pregnant again with our second child she doesn't have CF but is a carrier.
I won't be having any more children after this but I wouldn't change anything for the world, yes I would really like CF to cured tommorrow but in the meantime we are making the best of life and even living it better than a lot of people I know!
Rebekah
Mother to Matt 20mths w/CF

 

[anonymous]

My husband is a CF carrier and had a sister die in the '80s from CF. His daughter has CF. I have no family history of the disease, but you never know. We have discussed it and do not plan on getting genetic counseling prior to having children. We are both in the health care field and are well-informed of all the statistics, probabilities, etc. I hope that our children will not have CF, but we will deal with it when and if it comes. Both of us will do everything we can to help our children live life to the fullest no matter what ailments/predicaments we encounter. I hope no one makes a life decision based on the misinformed opinion of one person. The best thing you can do is educate yourself, follow your heart and make an informed decision. That advice holds true for any decision.