Hi-
I am a CF/Lung transplant patient and I have never attended a support group affiliated with any center. I heard in some instances these meetings between CF patients are discouraged these days.
ALso, not really been involved with much online support either. How do you all feel about sites like these- are they beneficial to you or do you feel more of a disconnect or more fustrated because their is that lack of face to face connection? Just wondering your thoughts on the advantages/ disadavantages of spaces like these.
I would really like to know what you have to say-- especially since it may be harder for people with CF to get together b/c of bacterial contagion etc in contrast to individuals with other illnesses who do not have this complication... Thanks.
I am a CF/Lung transplant patient and I have never attended a support group affiliated with any center. I heard in some instances these meetings between CF patients are discouraged these days.
ALso, not really been involved with much online support either. How do you all feel about sites like these- are they beneficial to you or do you feel more of a disconnect or more fustrated because their is that lack of face to face connection? Just wondering your thoughts on the advantages/ disadavantages of spaces like these.
I would really like to know what you have to say-- especially since it may be harder for people with CF to get together b/c of bacterial contagion etc in contrast to individuals with other illnesses who do not have this complication... Thanks.