I salute you all

[Skye]

My 8-year old daughter is sick with pneumonia tonight. She doesn't have CF, I do. It is hard for me to conceptualize what my mom went through in the 70's trying to take care of me with the little information they had at the time. As I work to get her to take her liquid antibiotic, see the dark circles under her eyes, see her loss of energy, I guess I have a fraction of a glimpse of the life of a caregiver. She wanted to try my vest tonight, she thought it might feel good. I thought it is only reasonable to use the $15,000 equipment for such an occassion. She looked so helpless with that thing on, though she liked it. I wondered what battles you all have with trying to get your kids to do it daily, especially when they are well, or in their teen years. Anyway, if you don't get the thanks now for all your love, support, care, insitence, and worry; not to fear, they'll thank you when they are old enough to realize the love you poured into all of your persistance. Keep on keepin on, they already love you for it, they just don't know it yet! By the way, I am well and Summer is on her way<img src="">

I was thinking about it this morning and I wanted to add some of the special little things that Mom did that I still remember today:
Thanks mom for:
*giving me a lemon drop after mucomyst
*drawing a face on my nose plugs and naming them "sammy"
*buying me a special little purse with a necklace chain for me to put my enzymes in
*fighting the school to allow me to be responsible for taking my own enzymes instead of making a trip to the nurse any time we ate at school
*sharing CF with others in my life on a "need to know" basis so it was never my identity, never
* most of all for praying for me and with me and teaching me a faith and hope that overcomes everything this disease throws my way

Trust me, all you caregivers, empower them and they will be forever greatful<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Skye]

My 8-year old daughter is sick with pneumonia tonight. She doesn't have CF, I do. It is hard for me to conceptualize what my mom went through in the 70's trying to take care of me with the little information they had at the time. As I work to get her to take her liquid antibiotic, see the dark circles under her eyes, see her loss of energy, I guess I have a fraction of a glimpse of the life of a caregiver. She wanted to try my vest tonight, she thought it might feel good. I thought it is only reasonable to use the $15,000 equipment for such an occassion. She looked so helpless with that thing on, though she liked it. I wondered what battles you all have with trying to get your kids to do it daily, especially when they are well, or in their teen years. Anyway, if you don't get the thanks now for all your love, support, care, insitence, and worry; not to fear, they'll thank you when they are old enough to realize the love you poured into all of your persistance. Keep on keepin on, they already love you for it, they just don't know it yet! By the way, I am well and Summer is on her way<img src="">

I was thinking about it this morning and I wanted to add some of the special little things that Mom did that I still remember today:
Thanks mom for:
*giving me a lemon drop after mucomyst
*drawing a face on my nose plugs and naming them "sammy"
*buying me a special little purse with a necklace chain for me to put my enzymes in
*fighting the school to allow me to be responsible for taking my own enzymes instead of making a trip to the nurse any time we ate at school
*sharing CF with others in my life on a "need to know" basis so it was never my identity, never
* most of all for praying for me and with me and teaching me a faith and hope that overcomes everything this disease throws my way

Trust me, all you caregivers, empower them and they will be forever greatful<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Skye]

My 8-year old daughter is sick with pneumonia tonight. She doesn't have CF, I do. It is hard for me to conceptualize what my mom went through in the 70's trying to take care of me with the little information they had at the time. As I work to get her to take her liquid antibiotic, see the dark circles under her eyes, see her loss of energy, I guess I have a fraction of a glimpse of the life of a caregiver. She wanted to try my vest tonight, she thought it might feel good. I thought it is only reasonable to use the $15,000 equipment for such an occassion. She looked so helpless with that thing on, though she liked it. I wondered what battles you all have with trying to get your kids to do it daily, especially when they are well, or in their teen years. Anyway, if you don't get the thanks now for all your love, support, care, insitence, and worry; not to fear, they'll thank you when they are old enough to realize the love you poured into all of your persistance. Keep on keepin on, they already love you for it, they just don't know it yet! By the way, I am well and Summer is on her way<img src="">

I was thinking about it this morning and I wanted to add some of the special little things that Mom did that I still remember today:
Thanks mom for:
*giving me a lemon drop after mucomyst
*drawing a face on my nose plugs and naming them "sammy"
*buying me a special little purse with a necklace chain for me to put my enzymes in
*fighting the school to allow me to be responsible for taking my own enzymes instead of making a trip to the nurse any time we ate at school
*sharing CF with others in my life on a "need to know" basis so it was never my identity, never
* most of all for praying for me and with me and teaching me a faith and hope that overcomes everything this disease throws my way

Trust me, all you caregivers, empower them and they will be forever greatful<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Skye]

My 8-year old daughter is sick with pneumonia tonight. She doesn't have CF, I do. It is hard for me to conceptualize what my mom went through in the 70's trying to take care of me with the little information they had at the time. As I work to get her to take her liquid antibiotic, see the dark circles under her eyes, see her loss of energy, I guess I have a fraction of a glimpse of the life of a caregiver. She wanted to try my vest tonight, she thought it might feel good. I thought it is only reasonable to use the $15,000 equipment for such an occassion. She looked so helpless with that thing on, though she liked it. I wondered what battles you all have with trying to get your kids to do it daily, especially when they are well, or in their teen years. Anyway, if you don't get the thanks now for all your love, support, care, insitence, and worry; not to fear, they'll thank you when they are old enough to realize the love you poured into all of your persistance. Keep on keepin on, they already love you for it, they just don't know it yet! By the way, I am well and Summer is on her way<img src="">

I was thinking about it this morning and I wanted to add some of the special little things that Mom did that I still remember today:
Thanks mom for:
*giving me a lemon drop after mucomyst
*drawing a face on my nose plugs and naming them "sammy"
*buying me a special little purse with a necklace chain for me to put my enzymes in
*fighting the school to allow me to be responsible for taking my own enzymes instead of making a trip to the nurse any time we ate at school
*sharing CF with others in my life on a "need to know" basis so it was never my identity, never
* most of all for praying for me and with me and teaching me a faith and hope that overcomes everything this disease throws my way

Trust me, all you caregivers, empower them and they will be forever greatful<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Skye]

My 8-year old daughter is sick with pneumonia tonight. She doesn't have CF, I do. It is hard for me to conceptualize what my mom went through in the 70's trying to take care of me with the little information they had at the time. As I work to get her to take her liquid antibiotic, see the dark circles under her eyes, see her loss of energy, I guess I have a fraction of a glimpse of the life of a caregiver. She wanted to try my vest tonight, she thought it might feel good. I thought it is only reasonable to use the $15,000 equipment for such an occassion. She looked so helpless with that thing on, though she liked it. I wondered what battles you all have with trying to get your kids to do it daily, especially when they are well, or in their teen years. Anyway, if you don't get the thanks now for all your love, support, care, insitence, and worry; not to fear, they'll thank you when they are old enough to realize the love you poured into all of your persistance. Keep on keepin on, they already love you for it, they just don't know it yet! By the way, I am well and Summer is on her way<img src="">

I was thinking about it this morning and I wanted to add some of the special little things that Mom did that I still remember today:
Thanks mom for:
*giving me a lemon drop after mucomyst
*drawing a face on my nose plugs and naming them "sammy"
*buying me a special little purse with a necklace chain for me to put my enzymes in
*fighting the school to allow me to be responsible for taking my own enzymes instead of making a trip to the nurse any time we ate at school
*sharing CF with others in my life on a "need to know" basis so it was never my identity, never
* most of all for praying for me and with me and teaching me a faith and hope that overcomes everything this disease throws my way

Trust me, all you caregivers, empower them and they will be forever greatful<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[AbbysMama]

Wow, Skye.

I always wonder if I'm doing the right thing and if I will have a child who resents me when they are older because we started all of the preventative care when she was an infant...especially if she is asymptomatic until her much later years. Your post just made me totally boohoo. Thank you.

Em

 

[AbbysMama]

Wow, Skye.

I always wonder if I'm doing the right thing and if I will have a child who resents me when they are older because we started all of the preventative care when she was an infant...especially if she is asymptomatic until her much later years. Your post just made me totally boohoo. Thank you.

Em

 

[AbbysMama]

Wow, Skye.

I always wonder if I'm doing the right thing and if I will have a child who resents me when they are older because we started all of the preventative care when she was an infant...especially if she is asymptomatic until her much later years. Your post just made me totally boohoo. Thank you.

Em

 

[AbbysMama]

Wow, Skye.

I always wonder if I'm doing the right thing and if I will have a child who resents me when they are older because we started all of the preventative care when she was an infant...especially if she is asymptomatic until her much later years. Your post just made me totally boohoo. Thank you.

Em

 

[AbbysMama]

Wow, Skye.

I always wonder if I'm doing the right thing and if I will have a child who resents me when they are older because we started all of the preventative care when she was an infant...especially if she is asymptomatic until her much later years. Your post just made me totally boohoo. Thank you.

Em

 

[ktsmom]

Thanks very much for that. It can be a challenge sometimes and emotional as well. Especially when you get the "I hate you" speech from a 4 1/2 year old. <img src="i/expressions/face-icon-small-blush.gif" border="0"> But mostly I get lots of snuggles and lovin'. I am extremely grateful for the access to medicines, treatments, and technology and when I get blue I try to prop myself up with that.

I hope your daughter recovers quickly.

 

[ktsmom]

Thanks very much for that. It can be a challenge sometimes and emotional as well. Especially when you get the "I hate you" speech from a 4 1/2 year old. <img src="i/expressions/face-icon-small-blush.gif" border="0"> But mostly I get lots of snuggles and lovin'. I am extremely grateful for the access to medicines, treatments, and technology and when I get blue I try to prop myself up with that.

I hope your daughter recovers quickly.

 

[ktsmom]

Thanks very much for that. It can be a challenge sometimes and emotional as well. Especially when you get the "I hate you" speech from a 4 1/2 year old. <img src="i/expressions/face-icon-small-blush.gif" border="0"> But mostly I get lots of snuggles and lovin'. I am extremely grateful for the access to medicines, treatments, and technology and when I get blue I try to prop myself up with that.

I hope your daughter recovers quickly.

 

[ktsmom]

Thanks very much for that. It can be a challenge sometimes and emotional as well. Especially when you get the "I hate you" speech from a 4 1/2 year old. <img src="i/expressions/face-icon-small-blush.gif" border="0"> But mostly I get lots of snuggles and lovin'. I am extremely grateful for the access to medicines, treatments, and technology and when I get blue I try to prop myself up with that.

I hope your daughter recovers quickly.

 

[ktsmom]

Thanks very much for that. It can be a challenge sometimes and emotional as well. Especially when you get the "I hate you" speech from a 4 1/2 year old. <img src="i/expressions/face-icon-small-blush.gif" border="0"> But mostly I get lots of snuggles and lovin'. I am extremely grateful for the access to medicines, treatments, and technology and when I get blue I try to prop myself up with that.

I hope your daughter recovers quickly.

 

[TonyaH]

Hi Skye,

I can't believe that, after caring for your little girl, you would think to come here and give us moms a pep talk! That is extremely thoughtful of you.

CF or no Cf, it's hard to see our children sick. I hope you are able to maintain your own health while caring for your daughter, and that she is feeling better very soon. Sometimes I wonder if common illnesses are harder physically on people who don't experience them often. CFers bodies have a way of adjusting to a new normal...I'm sure this bout with pneumonia is very difficult on her. She is lucky to have such a loving mom!

 

[TonyaH]

Hi Skye,

I can't believe that, after caring for your little girl, you would think to come here and give us moms a pep talk! That is extremely thoughtful of you.

CF or no Cf, it's hard to see our children sick. I hope you are able to maintain your own health while caring for your daughter, and that she is feeling better very soon. Sometimes I wonder if common illnesses are harder physically on people who don't experience them often. CFers bodies have a way of adjusting to a new normal...I'm sure this bout with pneumonia is very difficult on her. She is lucky to have such a loving mom!

 

[TonyaH]

Hi Skye,

I can't believe that, after caring for your little girl, you would think to come here and give us moms a pep talk! That is extremely thoughtful of you.

CF or no Cf, it's hard to see our children sick. I hope you are able to maintain your own health while caring for your daughter, and that she is feeling better very soon. Sometimes I wonder if common illnesses are harder physically on people who don't experience them often. CFers bodies have a way of adjusting to a new normal...I'm sure this bout with pneumonia is very difficult on her. She is lucky to have such a loving mom!

 

[TonyaH]

Hi Skye,

I can't believe that, after caring for your little girl, you would think to come here and give us moms a pep talk! That is extremely thoughtful of you.

CF or no Cf, it's hard to see our children sick. I hope you are able to maintain your own health while caring for your daughter, and that she is feeling better very soon. Sometimes I wonder if common illnesses are harder physically on people who don't experience them often. CFers bodies have a way of adjusting to a new normal...I'm sure this bout with pneumonia is very difficult on her. She is lucky to have such a loving mom!

 

[TonyaH]

Hi Skye,

I can't believe that, after caring for your little girl, you would think to come here and give us moms a pep talk! That is extremely thoughtful of you.

CF or no Cf, it's hard to see our children sick. I hope you are able to maintain your own health while caring for your daughter, and that she is feeling better very soon. Sometimes I wonder if common illnesses are harder physically on people who don't experience them often. CFers bodies have a way of adjusting to a new normal...I'm sure this bout with pneumonia is very difficult on her. She is lucky to have such a loving mom!