sunflower72
New member
The sweat test was very low - he tested at 6 and 7. Turns out he has a bad case of reflux. Thank you for all of your support!
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Sorry for the long post - please tell me I am worrying over nothing.
My son has not been tested for CF, and no doctor has ever suggested that he be tested. It has been nagging at me, though, since he was 12 months old. I know that PA does not screen for CF, but that many hospitals do. I have no idea if my son was screened. I have switched peds three times, and I have seen all the records. There are no screening test results. I asked the first two peds, and they both told me that no news is good news. My husband has CF in his family, but neither of us went for genetic testing. My OB thought we should just know - even if it would not change anything. Now I am starting to think she was right.
Most of the posts that I read talk about digestive issues. Can CF present with only breathing issues when the person is young?
I am worried b/c my son is almost five and very small (5th percentile). He started in the 95th percentile at birth. By 12 months I think he was in the 25th to 50th. He was in the 10th to 25th percentile at his 4 year checkup in January. He eats, although I would not say he is a great eater. Some days he eats a lot, and some days he does not. He drinks a lot - mostly water or grape juice diluted 50%. He also started having breathing problems when he was about 12 months. He gets pneumonia very easily and was officially diagnosed with asthma last year and has been on medications. He had been much better - until we hit the fall and he went back to school. He is on a lot of medications - 4 puffs of Qvar and 4-6 of Xopenex every day - and he is still having issues. He does not test positive for fall allergies, though, so the asthma specialist had his adenoids x-rayed. They are normal. So - if he "just" has asthma, why are the medications not working? Why is he worse than ever? And why is he still not growing much?
His bowel movements are fine, and he does not seem "salty". He had reflux as a baby and some stool issues - but he seems OK now. He is very pale and sweats a lot. I have a younger son also, and they sleep in the same room. My younger son does not sweat anywhere near as much as the older one at night or when running around. Also, the older one is always cold. My older son was anemic when he was a baby. The pediatrican just stopped testing him. I never said anything because the blood tests were such a nightmare and he seemed fine.
Would you be worried about CF? If so, it is easier for me to get tested to see if I am a carrier than to have my son tested? Can I do that privately?
Thank you for enduring my long late night post.
**********************************
Sorry for the long post - please tell me I am worrying over nothing.
My son has not been tested for CF, and no doctor has ever suggested that he be tested. It has been nagging at me, though, since he was 12 months old. I know that PA does not screen for CF, but that many hospitals do. I have no idea if my son was screened. I have switched peds three times, and I have seen all the records. There are no screening test results. I asked the first two peds, and they both told me that no news is good news. My husband has CF in his family, but neither of us went for genetic testing. My OB thought we should just know - even if it would not change anything. Now I am starting to think she was right.
Most of the posts that I read talk about digestive issues. Can CF present with only breathing issues when the person is young?
I am worried b/c my son is almost five and very small (5th percentile). He started in the 95th percentile at birth. By 12 months I think he was in the 25th to 50th. He was in the 10th to 25th percentile at his 4 year checkup in January. He eats, although I would not say he is a great eater. Some days he eats a lot, and some days he does not. He drinks a lot - mostly water or grape juice diluted 50%. He also started having breathing problems when he was about 12 months. He gets pneumonia very easily and was officially diagnosed with asthma last year and has been on medications. He had been much better - until we hit the fall and he went back to school. He is on a lot of medications - 4 puffs of Qvar and 4-6 of Xopenex every day - and he is still having issues. He does not test positive for fall allergies, though, so the asthma specialist had his adenoids x-rayed. They are normal. So - if he "just" has asthma, why are the medications not working? Why is he worse than ever? And why is he still not growing much?
His bowel movements are fine, and he does not seem "salty". He had reflux as a baby and some stool issues - but he seems OK now. He is very pale and sweats a lot. I have a younger son also, and they sleep in the same room. My younger son does not sweat anywhere near as much as the older one at night or when running around. Also, the older one is always cold. My older son was anemic when he was a baby. The pediatrican just stopped testing him. I never said anything because the blood tests were such a nightmare and he seemed fine.
Would you be worried about CF? If so, it is easier for me to get tested to see if I am a carrier than to have my son tested? Can I do that privately?
Thank you for enduring my long late night post.