I want to thank you all.

[Ratatosk]

All the sweat test did for us was to add confusion and make us question DS' diagnosis.

His first blood test(s) were inconclusive because the didn't get a good enough sample. Then we got a postive result from a blood test the attending NICU physician at the local hospital had ordered and THEN a normal 32 for a sweat test result. So we always questioned at first if he really DID have CF.

 

[Ratatosk]

All the sweat test did for us was to add confusion and make us question DS' diagnosis.

His first blood test(s) were inconclusive because the didn't get a good enough sample. Then we got a postive result from a blood test the attending NICU physician at the local hospital had ordered and THEN a normal 32 for a sweat test result. So we always questioned at first if he really DID have CF.

 

[Ratatosk]

All the sweat test did for us was to add confusion and make us question DS' diagnosis.

His first blood test(s) were inconclusive because the didn't get a good enough sample. Then we got a postive result from a blood test the attending NICU physician at the local hospital had ordered and THEN a normal 32 for a sweat test result. So we always questioned at first if he really DID have CF.

 

[Ratatosk]

All the sweat test did for us was to add confusion and make us question DS' diagnosis.

His first blood test(s) were inconclusive because the didn't get a good enough sample. Then we got a postive result from a blood test the attending NICU physician at the local hospital had ordered and THEN a normal 32 for a sweat test result. So we always questioned at first if he really DID have CF.

 

[Ratatosk]

All the sweat test did for us was to add confusion and make us question DS' diagnosis.
<br />
<br />His first blood test(s) were inconclusive because the didn't get a good enough sample. Then we got a postive result from a blood test the attending NICU physician at the local hospital had ordered and THEN a normal 32 for a sweat test result. So we always questioned at first if he really DID have CF.

 

[hmw]

Let me tell you, if it ever turns out that my son has CF (and I pray he does not), it will turn out that all his sweat tests did was waste a lot of time and give us false hope and I won't be very happy about it. We are having to go through a whole lot of additional testing to try and determine his true status... it's a real pain.

I truly hope your dd does not have cf, but her symptoms are very concerning and I hope she gets the thorough (not a panel) genetic test so you can be certain either way.

eta> but please do not feel embarrassed about having come here! we are here for support and will be very happy for you and your dd if it's proven she does not have cf (we just want to be sure they have done all that is necessary to really prove it- too many here have been through a long painful process trying to get an accurate dx only to find out yrs down the road their child really did have cf.)

 

[hmw]

Let me tell you, if it ever turns out that my son has CF (and I pray he does not), it will turn out that all his sweat tests did was waste a lot of time and give us false hope and I won't be very happy about it. We are having to go through a whole lot of additional testing to try and determine his true status... it's a real pain.

I truly hope your dd does not have cf, but her symptoms are very concerning and I hope she gets the thorough (not a panel) genetic test so you can be certain either way.

eta> but please do not feel embarrassed about having come here! we are here for support and will be very happy for you and your dd if it's proven she does not have cf (we just want to be sure they have done all that is necessary to really prove it- too many here have been through a long painful process trying to get an accurate dx only to find out yrs down the road their child really did have cf.)

 

[hmw]

Let me tell you, if it ever turns out that my son has CF (and I pray he does not), it will turn out that all his sweat tests did was waste a lot of time and give us false hope and I won't be very happy about it. We are having to go through a whole lot of additional testing to try and determine his true status... it's a real pain.

I truly hope your dd does not have cf, but her symptoms are very concerning and I hope she gets the thorough (not a panel) genetic test so you can be certain either way.

eta> but please do not feel embarrassed about having come here! we are here for support and will be very happy for you and your dd if it's proven she does not have cf (we just want to be sure they have done all that is necessary to really prove it- too many here have been through a long painful process trying to get an accurate dx only to find out yrs down the road their child really did have cf.)

 

[hmw]

Let me tell you, if it ever turns out that my son has CF (and I pray he does not), it will turn out that all his sweat tests did was waste a lot of time and give us false hope and I won't be very happy about it. We are having to go through a whole lot of additional testing to try and determine his true status... it's a real pain.

I truly hope your dd does not have cf, but her symptoms are very concerning and I hope she gets the thorough (not a panel) genetic test so you can be certain either way.

eta> but please do not feel embarrassed about having come here! we are here for support and will be very happy for you and your dd if it's proven she does not have cf (we just want to be sure they have done all that is necessary to really prove it- too many here have been through a long painful process trying to get an accurate dx only to find out yrs down the road their child really did have cf.)

 

[hmw]

Let me tell you, if it ever turns out that my son has CF (and I pray he does not), it will turn out that all his sweat tests did was waste a lot of time and give us false hope and I won't be very happy about it. We are having to go through a whole lot of additional testing to try and determine his true status... it's a real pain.
<br />
<br />I truly hope your dd does not have cf, but her symptoms are very concerning and I hope she gets the thorough (not a panel) genetic test so you can be certain either way.
<br />
<br />eta> but please do not feel embarrassed about having come here! we are here for support and will be very happy for you and your dd if it's proven she does not have cf (we just want to be sure they have done all that is necessary to really prove it- too many here have been through a long painful process trying to get an accurate dx only to find out yrs down the road their child really did have cf.)