I want...

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saveferris2009

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jbrandonAW</b></i>

WOW those are some really good numbers. For those with numbers over 80 - what do you do the get them that high or keep them that high???
</end quote></div>



1. Being proactive... about everything

2. Educating myself on every single aspect of CF

3. Incredible care and dedication to my care by my parents growing up

4. Militant compliance to meds

5. Exercising (only recently, though...it gave me a nice FEV1 bump)

6. Sleeping enough

7. Not taking a strenuous job - forsaking the "sexy" job for one that I know I can do while maintaining my health

8. Visiting other CF centers to understand their best practices (see point #2)

9. Properly treating my allergies... my FEV1 would probably be 20-30 points lower if I didn't properly diagnose and aggressively treat my allergies

10. Going on IV's aggressively

11. Learning best practice from other CFer's

12. Exploring ways to fit CF into my life, like using a dishwasher to wash/sterilize my nebs. Installing an inverter in my car so I can neb & vest on my commute to work. Using an eFlow to cut down on time that my daily med routine works

13. Advocating for myself - always making sure when I'm in patient and out patient every healthcare professional that gets near me practices proper infection control

14. I'm sure a little bit of luck. But I have 2 class 2 mutations so I'm not sure how much luck plays into... some probably


This is a great site to learn from other CFer's....

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cfvoice.com/info/teens/mentor/index.jsp">http://www.cfvoice.com/info/teens/mentor/index.jsp</a>
 
S

saveferris2009

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jbrandonAW</b></i>

WOW those are some really good numbers. For those with numbers over 80 - what do you do the get them that high or keep them that high???
</end quote></div>



1. Being proactive... about everything

2. Educating myself on every single aspect of CF

3. Incredible care and dedication to my care by my parents growing up

4. Militant compliance to meds

5. Exercising (only recently, though...it gave me a nice FEV1 bump)

6. Sleeping enough

7. Not taking a strenuous job - forsaking the "sexy" job for one that I know I can do while maintaining my health

8. Visiting other CF centers to understand their best practices (see point #2)

9. Properly treating my allergies... my FEV1 would probably be 20-30 points lower if I didn't properly diagnose and aggressively treat my allergies

10. Going on IV's aggressively

11. Learning best practice from other CFer's

12. Exploring ways to fit CF into my life, like using a dishwasher to wash/sterilize my nebs. Installing an inverter in my car so I can neb & vest on my commute to work. Using an eFlow to cut down on time that my daily med routine works

13. Advocating for myself - always making sure when I'm in patient and out patient every healthcare professional that gets near me practices proper infection control

14. I'm sure a little bit of luck. But I have 2 class 2 mutations so I'm not sure how much luck plays into... some probably


This is a great site to learn from other CFer's....

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cfvoice.com/info/teens/mentor/index.jsp">http://www.cfvoice.com/info/teens/mentor/index.jsp</a>
 
S

saveferris2009

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jbrandonAW</b></i>

WOW those are some really good numbers. For those with numbers over 80 - what do you do the get them that high or keep them that high???
</end quote></div>



1. Being proactive... about everything

2. Educating myself on every single aspect of CF

3. Incredible care and dedication to my care by my parents growing up

4. Militant compliance to meds

5. Exercising (only recently, though...it gave me a nice FEV1 bump)

6. Sleeping enough

7. Not taking a strenuous job - forsaking the "sexy" job for one that I know I can do while maintaining my health

8. Visiting other CF centers to understand their best practices (see point #2)

9. Properly treating my allergies... my FEV1 would probably be 20-30 points lower if I didn't properly diagnose and aggressively treat my allergies

10. Going on IV's aggressively

11. Learning best practice from other CFer's

12. Exploring ways to fit CF into my life, like using a dishwasher to wash/sterilize my nebs. Installing an inverter in my car so I can neb & vest on my commute to work. Using an eFlow to cut down on time that my daily med routine works

13. Advocating for myself - always making sure when I'm in patient and out patient every healthcare professional that gets near me practices proper infection control

14. I'm sure a little bit of luck. But I have 2 class 2 mutations so I'm not sure how much luck plays into... some probably


This is a great site to learn from other CFer's....

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cfvoice.com/info/teens/mentor/index.jsp">http://www.cfvoice.com/info/teens/mentor/index.jsp</a>
 
S

saveferris2009

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jbrandonAW</b></i>

WOW those are some really good numbers. For those with numbers over 80 - what do you do the get them that high or keep them that high???
</end quote>



1. Being proactive... about everything

2. Educating myself on every single aspect of CF

3. Incredible care and dedication to my care by my parents growing up

4. Militant compliance to meds

5. Exercising (only recently, though...it gave me a nice FEV1 bump)

6. Sleeping enough

7. Not taking a strenuous job - forsaking the "sexy" job for one that I know I can do while maintaining my health

8. Visiting other CF centers to understand their best practices (see point #2)

9. Properly treating my allergies... my FEV1 would probably be 20-30 points lower if I didn't properly diagnose and aggressively treat my allergies

10. Going on IV's aggressively

11. Learning best practice from other CFer's

12. Exploring ways to fit CF into my life, like using a dishwasher to wash/sterilize my nebs. Installing an inverter in my car so I can neb & vest on my commute to work. Using an eFlow to cut down on time that my daily med routine works

13. Advocating for myself - always making sure when I'm in patient and out patient every healthcare professional that gets near me practices proper infection control

14. I'm sure a little bit of luck. But I have 2 class 2 mutations so I'm not sure how much luck plays into... some probably


This is a great site to learn from other CFer's....

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cfvoice.com/info/teens/mentor/index.jsp">http://www.cfvoice.com/info/teens/mentor/index.jsp</a>
 
S

saveferris2009

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jbrandonAW</b></i>
<br />
<br />WOW those are some really good numbers. For those with numbers over 80 - what do you do the get them that high or keep them that high???
<br /></end quote>
<br />
<br />
<br />
<br />1. Being proactive... about everything
<br />
<br />2. Educating myself on every single aspect of CF
<br />
<br />3. Incredible care and dedication to my care by my parents growing up
<br />
<br />4. Militant compliance to meds
<br />
<br />5. Exercising (only recently, though...it gave me a nice FEV1 bump)
<br />
<br />6. Sleeping enough
<br />
<br />7. Not taking a strenuous job - forsaking the "sexy" job for one that I know I can do while maintaining my health
<br />
<br />8. Visiting other CF centers to understand their best practices (see point #2)
<br />
<br />9. Properly treating my allergies... my FEV1 would probably be 20-30 points lower if I didn't properly diagnose and aggressively treat my allergies
<br />
<br />10. Going on IV's aggressively
<br />
<br />11. Learning best practice from other CFer's
<br />
<br />12. Exploring ways to fit CF into my life, like using a dishwasher to wash/sterilize my nebs. Installing an inverter in my car so I can neb & vest on my commute to work. Using an eFlow to cut down on time that my daily med routine works
<br />
<br />13. Advocating for myself - always making sure when I'm in patient and out patient every healthcare professional that gets near me practices proper infection control
<br />
<br />14. I'm sure a little bit of luck. But I have 2 class 2 mutations so I'm not sure how much luck plays into... some probably
<br />
<br />
<br />This is a great site to learn from other CFer's....
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.cfvoice.com/info/teens/mentor/index.jsp">http://www.cfvoice.com/info/teens/mentor/index.jsp</a>
 
B

BaylorCrew07

New member
I'm 24

FEV1 - 116% (2 weeks ago)

Never been on IV's.

In answer to your question about keeping lung function up; I work out A LOT and am very diligent with my treatments. I swam competitively for 10 years, so worked out 4+ hours/day...since retiring from swimming, I played water polo in college, ran a marathon & am currently training for my 2nd marathon. I feel a lot healthier when I'm active and tend to feel worse when I'm not active for periods of time (can feel stuff in my lungs, etc). Not sure if it plays a part, but I also try to eat healthy.
 
B

BaylorCrew07

New member
I'm 24

FEV1 - 116% (2 weeks ago)

Never been on IV's.

In answer to your question about keeping lung function up; I work out A LOT and am very diligent with my treatments. I swam competitively for 10 years, so worked out 4+ hours/day...since retiring from swimming, I played water polo in college, ran a marathon & am currently training for my 2nd marathon. I feel a lot healthier when I'm active and tend to feel worse when I'm not active for periods of time (can feel stuff in my lungs, etc). Not sure if it plays a part, but I also try to eat healthy.
 
B

BaylorCrew07

New member
I'm 24

FEV1 - 116% (2 weeks ago)

Never been on IV's.

In answer to your question about keeping lung function up; I work out A LOT and am very diligent with my treatments. I swam competitively for 10 years, so worked out 4+ hours/day...since retiring from swimming, I played water polo in college, ran a marathon & am currently training for my 2nd marathon. I feel a lot healthier when I'm active and tend to feel worse when I'm not active for periods of time (can feel stuff in my lungs, etc). Not sure if it plays a part, but I also try to eat healthy.
 
B

BaylorCrew07

New member
I'm 24

FEV1 - 116% (2 weeks ago)

Never been on IV's.

In answer to your question about keeping lung function up; I work out A LOT and am very diligent with my treatments. I swam competitively for 10 years, so worked out 4+ hours/day...since retiring from swimming, I played water polo in college, ran a marathon & am currently training for my 2nd marathon. I feel a lot healthier when I'm active and tend to feel worse when I'm not active for periods of time (can feel stuff in my lungs, etc). Not sure if it plays a part, but I also try to eat healthy.
 
B

BaylorCrew07

New member
I'm 24
<br />
<br />FEV1 - 116% (2 weeks ago)
<br />
<br />Never been on IV's.
<br />
<br />In answer to your question about keeping lung function up; I work out A LOT and am very diligent with my treatments. I swam competitively for 10 years, so worked out 4+ hours/day...since retiring from swimming, I played water polo in college, ran a marathon & am currently training for my 2nd marathon. I feel a lot healthier when I'm active and tend to feel worse when I'm not active for periods of time (can feel stuff in my lungs, etc). Not sure if it plays a part, but I also try to eat healthy.
 
D

Diane

New member
I am 44

not sure what my fev1 is ( havent been able to do it for 7 months) so i will list my last one in Dec. which was 38%

last iv's was about a month ago.
 
D

Diane

New member
I am 44

not sure what my fev1 is ( havent been able to do it for 7 months) so i will list my last one in Dec. which was 38%

last iv's was about a month ago.
 
D

Diane

New member
I am 44

not sure what my fev1 is ( havent been able to do it for 7 months) so i will list my last one in Dec. which was 38%

last iv's was about a month ago.
 
D

Diane

New member
I am 44

not sure what my fev1 is ( havent been able to do it for 7 months) so i will list my last one in Dec. which was 38%

last iv's was about a month ago.
 
D

Diane

New member
I am 44
<br />
<br />not sure what my fev1 is ( havent been able to do it for 7 months) so i will list my last one in Dec. which was 38%
<br />
<br />last iv's was about a month ago.
 
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