I Was a CF carrier for 29 yrs

[laurieb5]

Wow I'm so bless to have found this site and all the wonderful responses thank you to
all of you .

My reason for getting re-tested again is a bit complicated. I have been overweight all my life until 5 years ago, I had gastric bypass and lost alot of weight I mantained a normal and healthy weight for about 4 years until this past years I started to drop more and more weight, talking with my GB doctor I told him of all my symptoms that I was having like greasy stool and vitamin deficiency alot of coughing with mucous and shortness of breath and he found it very strange to have all of this going on so far out post op. Since he knew of my CF status that I was supposedly a CF carrier he asked me to go see a pulmonary specialist and the specialist requested a CF DNA blood analysis.

Talking with Mom we realized that I have been haveing a presistant cough for almost 10 years but very mild we thought since I was a CF carrier that I just had a chronic cough, to me I didn't even notice it because I'm so use to coughing it became almost like second nature. Mom told me hundreds of time to go and get it checked out but I thought it was nothing. Little did I know that my then sleepy CF genes were waking up sort of speak lol

thank you for taking the time to read my reply
~*Laurie

 

[laurieb5]

Wow I'm so bless to have found this site and all the wonderful responses thank you to
all of you .

My reason for getting re-tested again is a bit complicated. I have been overweight all my life until 5 years ago, I had gastric bypass and lost alot of weight I mantained a normal and healthy weight for about 4 years until this past years I started to drop more and more weight, talking with my GB doctor I told him of all my symptoms that I was having like greasy stool and vitamin deficiency alot of coughing with mucous and shortness of breath and he found it very strange to have all of this going on so far out post op. Since he knew of my CF status that I was supposedly a CF carrier he asked me to go see a pulmonary specialist and the specialist requested a CF DNA blood analysis.

Talking with Mom we realized that I have been haveing a presistant cough for almost 10 years but very mild we thought since I was a CF carrier that I just had a chronic cough, to me I didn't even notice it because I'm so use to coughing it became almost like second nature. Mom told me hundreds of time to go and get it checked out but I thought it was nothing. Little did I know that my then sleepy CF genes were waking up sort of speak lol

thank you for taking the time to read my reply
~*Laurie

 

[laurieb5]

Wow I'm so bless to have found this site and all the wonderful responses thank you to
all of you .

My reason for getting re-tested again is a bit complicated. I have been overweight all my life until 5 years ago, I had gastric bypass and lost alot of weight I mantained a normal and healthy weight for about 4 years until this past years I started to drop more and more weight, talking with my GB doctor I told him of all my symptoms that I was having like greasy stool and vitamin deficiency alot of coughing with mucous and shortness of breath and he found it very strange to have all of this going on so far out post op. Since he knew of my CF status that I was supposedly a CF carrier he asked me to go see a pulmonary specialist and the specialist requested a CF DNA blood analysis.

Talking with Mom we realized that I have been haveing a presistant cough for almost 10 years but very mild we thought since I was a CF carrier that I just had a chronic cough, to me I didn't even notice it because I'm so use to coughing it became almost like second nature. Mom told me hundreds of time to go and get it checked out but I thought it was nothing. Little did I know that my then sleepy CF genes were waking up sort of speak lol

thank you for taking the time to read my reply
~*Laurie

 

[laurieb5]

Wow I'm so bless to have found this site and all the wonderful responses thank you to
all of you .

My reason for getting re-tested again is a bit complicated. I have been overweight all my life until 5 years ago, I had gastric bypass and lost alot of weight I mantained a normal and healthy weight for about 4 years until this past years I started to drop more and more weight, talking with my GB doctor I told him of all my symptoms that I was having like greasy stool and vitamin deficiency alot of coughing with mucous and shortness of breath and he found it very strange to have all of this going on so far out post op. Since he knew of my CF status that I was supposedly a CF carrier he asked me to go see a pulmonary specialist and the specialist requested a CF DNA blood analysis.

Talking with Mom we realized that I have been haveing a presistant cough for almost 10 years but very mild we thought since I was a CF carrier that I just had a chronic cough, to me I didn't even notice it because I'm so use to coughing it became almost like second nature. Mom told me hundreds of time to go and get it checked out but I thought it was nothing. Little did I know that my then sleepy CF genes were waking up sort of speak lol

thank you for taking the time to read my reply
~*Laurie

 

[laurieb5]

Wow I'm so bless to have found this site and all the wonderful responses thank you to
all of you .

My reason for getting re-tested again is a bit complicated. I have been overweight all my life until 5 years ago, I had gastric bypass and lost alot of weight I mantained a normal and healthy weight for about 4 years until this past years I started to drop more and more weight, talking with my GB doctor I told him of all my symptoms that I was having like greasy stool and vitamin deficiency alot of coughing with mucous and shortness of breath and he found it very strange to have all of this going on so far out post op. Since he knew of my CF status that I was supposedly a CF carrier he asked me to go see a pulmonary specialist and the specialist requested a CF DNA blood analysis.

Talking with Mom we realized that I have been haveing a presistant cough for almost 10 years but very mild we thought since I was a CF carrier that I just had a chronic cough, to me I didn't even notice it because I'm so use to coughing it became almost like second nature. Mom told me hundreds of time to go and get it checked out but I thought it was nothing. Little did I know that my then sleepy CF genes were waking up sort of speak lol

thank you for taking the time to read my reply
~*Laurie

 

[Marjolein]

Welcome to the boards! I hope you'll find here everything you're looking for, and more.

I understand it must have been a complete shock, but i think it's a good thing that you found out. Now your doctors can hopefully be very proactive about your care and i hope you'll live a relatively healthy and ofcourse very happy life!

Marjolein

 

[Marjolein]

Welcome to the boards! I hope you'll find here everything you're looking for, and more.

I understand it must have been a complete shock, but i think it's a good thing that you found out. Now your doctors can hopefully be very proactive about your care and i hope you'll live a relatively healthy and ofcourse very happy life!

Marjolein

 

[Marjolein]

Welcome to the boards! I hope you'll find here everything you're looking for, and more.

I understand it must have been a complete shock, but i think it's a good thing that you found out. Now your doctors can hopefully be very proactive about your care and i hope you'll live a relatively healthy and ofcourse very happy life!

Marjolein

 

[Marjolein]

Welcome to the boards! I hope you'll find here everything you're looking for, and more.

I understand it must have been a complete shock, but i think it's a good thing that you found out. Now your doctors can hopefully be very proactive about your care and i hope you'll live a relatively healthy and ofcourse very happy life!

Marjolein

 

[Marjolein]

Welcome to the boards! I hope you'll find here everything you're looking for, and more.

I understand it must have been a complete shock, but i think it's a good thing that you found out. Now your doctors can hopefully be very proactive about your care and i hope you'll live a relatively healthy and ofcourse very happy life!

Marjolein

 

[jaimers]

glad to hear you're getting to see a doc and that you've never had symptoms too badly! going along with sakasuka's post, i have those two exact gene mutations and have not fared as well as you over the years so i guess there really isn't any way to tell how things are going to turn out! glad you found the site though <img src="i/expressions/face-icon-small-smile.gif" border="0"> <3jaime

 

[jaimers]

glad to hear you're getting to see a doc and that you've never had symptoms too badly! going along with sakasuka's post, i have those two exact gene mutations and have not fared as well as you over the years so i guess there really isn't any way to tell how things are going to turn out! glad you found the site though <img src="i/expressions/face-icon-small-smile.gif" border="0"> <3jaime

 

[jaimers]

glad to hear you're getting to see a doc and that you've never had symptoms too badly! going along with sakasuka's post, i have those two exact gene mutations and have not fared as well as you over the years so i guess there really isn't any way to tell how things are going to turn out! glad you found the site though <img src="i/expressions/face-icon-small-smile.gif" border="0"> <3jaime

 

[jaimers]

glad to hear you're getting to see a doc and that you've never had symptoms too badly! going along with sakasuka's post, i have those two exact gene mutations and have not fared as well as you over the years so i guess there really isn't any way to tell how things are going to turn out! glad you found the site though <img src="i/expressions/face-icon-small-smile.gif" border="0"> <3jaime

 

[jaimers]

glad to hear you're getting to see a doc and that you've never had symptoms too badly! going along with sakasuka's post, i have those two exact gene mutations and have not fared as well as you over the years so i guess there really isn't any way to tell how things are going to turn out! glad you found the site though <img src="i/expressions/face-icon-small-smile.gif" border="0"> <3jaime

 

[opalnorm]

Hi Lauri,
My daughter, Angie 19, died 18 years ago from CF. She was diagnosed at 16. She had other problems as well. A lot of allergies so she couldn't take a lot of the CF meds at the time. Thank God for you that CF has come a long way since then. There are wonderful new treatments that we didn't have back then. I just know you will be fine. One of the things I and Ang truly believed was that the most important thing you can do for yourself is KEEP YOUR LUNGS CLEAR!!! She did her percussions religiously. She was a cheerleader and excersized every day. This kept her lungs clear. She ran whenever possible. It made her cough alot however that was the whole purpose of the excersizing.

 

[opalnorm]

Hi Lauri,
My daughter, Angie 19, died 18 years ago from CF. She was diagnosed at 16. She had other problems as well. A lot of allergies so she couldn't take a lot of the CF meds at the time. Thank God for you that CF has come a long way since then. There are wonderful new treatments that we didn't have back then. I just know you will be fine. One of the things I and Ang truly believed was that the most important thing you can do for yourself is KEEP YOUR LUNGS CLEAR!!! She did her percussions religiously. She was a cheerleader and excersized every day. This kept her lungs clear. She ran whenever possible. It made her cough alot however that was the whole purpose of the excersizing.

 

[opalnorm]

Hi Lauri,
My daughter, Angie 19, died 18 years ago from CF. She was diagnosed at 16. She had other problems as well. A lot of allergies so she couldn't take a lot of the CF meds at the time. Thank God for you that CF has come a long way since then. There are wonderful new treatments that we didn't have back then. I just know you will be fine. One of the things I and Ang truly believed was that the most important thing you can do for yourself is KEEP YOUR LUNGS CLEAR!!! She did her percussions religiously. She was a cheerleader and excersized every day. This kept her lungs clear. She ran whenever possible. It made her cough alot however that was the whole purpose of the excersizing.

 

[opalnorm]

Hi Lauri,
My daughter, Angie 19, died 18 years ago from CF. She was diagnosed at 16. She had other problems as well. A lot of allergies so she couldn't take a lot of the CF meds at the time. Thank God for you that CF has come a long way since then. There are wonderful new treatments that we didn't have back then. I just know you will be fine. One of the things I and Ang truly believed was that the most important thing you can do for yourself is KEEP YOUR LUNGS CLEAR!!! She did her percussions religiously. She was a cheerleader and excersized every day. This kept her lungs clear. She ran whenever possible. It made her cough alot however that was the whole purpose of the excersizing.

 

[opalnorm]

Hi Lauri,
My daughter, Angie 19, died 18 years ago from CF. She was diagnosed at 16. She had other problems as well. A lot of allergies so she couldn't take a lot of the CF meds at the time. Thank God for you that CF has come a long way since then. There are wonderful new treatments that we didn't have back then. I just know you will be fine. One of the things I and Ang truly believed was that the most important thing you can do for yourself is KEEP YOUR LUNGS CLEAR!!! She did her percussions religiously. She was a cheerleader and excersized every day. This kept her lungs clear. She ran whenever possible. It made her cough alot however that was the whole purpose of the excersizing.