Hey Emily,
While your post was a little disheartening, I understand where you're coming from. Right now, my faith is and always will be what I cling to for hope. I know that miracles happen every day, and I know we're becoming so much more tech. advanced that I have to believe that God can do anything. I have to instill that in my children to believe. What kind of parent would I be if I gave her a doomsday outlook on her life? If she wants to believe that there could be a day that she won't have to take meds anymore, then I'm gonna believe right along with her because if I give up, how will she have any hope? I try and teach them that nobody is promised tomorrow, and to live life every day as happy as you can be.
I do know where you're coming from when they say a cure is right around the corner. I also have a first cousing that's turning 30 this year, and he's still waiting, frustrated, but we can all only hope that we're living in the day that we'll see the hope come to life!
Anyways, just like children, there's no instruction manual on what to do or how to cope with this, but I'm just doing the best I can....and praying for strength and comfort for when I may need it..