I was hit with a big question out of nowhere...

ktsmom

New member
You handled that so well! You never know when they are going to ask these things. I think sometimes it is better that it comes out of the blue like that so there's not a lot of time for you to get emotional - you just answer the question matter of factly. Thanks for sharing! <img src="i/expressions/heart.gif" border="0">
 

ktsmom

New member
You handled that so well! You never know when they are going to ask these things. I think sometimes it is better that it comes out of the blue like that so there's not a lot of time for you to get emotional - you just answer the question matter of factly. Thanks for sharing! <img src="i/expressions/heart.gif" border="0">
 

ktsmom

New member
You handled that so well! You never know when they are going to ask these things. I think sometimes it is better that it comes out of the blue like that so there's not a lot of time for you to get emotional - you just answer the question matter of factly. Thanks for sharing! <img src="i/expressions/heart.gif" border="0">
 

ktsmom

New member
You handled that so well! You never know when they are going to ask these things. I think sometimes it is better that it comes out of the blue like that so there's not a lot of time for you to get emotional - you just answer the question matter of factly. Thanks for sharing! <img src="i/expressions/heart.gif" border="0">
 

ktsmom

New member
You handled that so well! You never know when they are going to ask these things. I think sometimes it is better that it comes out of the blue like that so there's not a lot of time for you to get emotional - you just answer the question matter of factly. Thanks for sharing! <img src="i/expressions/heart.gif" border="0">
 

Emily65Roses

New member
Be careful telling her meds won't be an issue anymore. Chances are, a full out CURE won't be found. Curing DNA is a little ridiculous. It's more likely that they'll come up with more meds. Perhaps meds that will allow CFers to live normal lifespans, but it wouldn't make us free of meds.

I was told my whole life that a cure was "right around the corner" and it ended up pissing me off because I kept hearing it, and got nothing from it. I just don't want you to get her hopes up for nothing. I do believe they'll come up with better meds that will help us live longer. They're doing it all the time.

But a magic pill or shot or surgery where you won't have to do ANYTHING anymore...? Nooootttt gonna happen.
 

Emily65Roses

New member
Be careful telling her meds won't be an issue anymore. Chances are, a full out CURE won't be found. Curing DNA is a little ridiculous. It's more likely that they'll come up with more meds. Perhaps meds that will allow CFers to live normal lifespans, but it wouldn't make us free of meds.

I was told my whole life that a cure was "right around the corner" and it ended up pissing me off because I kept hearing it, and got nothing from it. I just don't want you to get her hopes up for nothing. I do believe they'll come up with better meds that will help us live longer. They're doing it all the time.

But a magic pill or shot or surgery where you won't have to do ANYTHING anymore...? Nooootttt gonna happen.
 

Emily65Roses

New member
Be careful telling her meds won't be an issue anymore. Chances are, a full out CURE won't be found. Curing DNA is a little ridiculous. It's more likely that they'll come up with more meds. Perhaps meds that will allow CFers to live normal lifespans, but it wouldn't make us free of meds.

I was told my whole life that a cure was "right around the corner" and it ended up pissing me off because I kept hearing it, and got nothing from it. I just don't want you to get her hopes up for nothing. I do believe they'll come up with better meds that will help us live longer. They're doing it all the time.

But a magic pill or shot or surgery where you won't have to do ANYTHING anymore...? Nooootttt gonna happen.
 

Emily65Roses

New member
Be careful telling her meds won't be an issue anymore. Chances are, a full out CURE won't be found. Curing DNA is a little ridiculous. It's more likely that they'll come up with more meds. Perhaps meds that will allow CFers to live normal lifespans, but it wouldn't make us free of meds.

I was told my whole life that a cure was "right around the corner" and it ended up pissing me off because I kept hearing it, and got nothing from it. I just don't want you to get her hopes up for nothing. I do believe they'll come up with better meds that will help us live longer. They're doing it all the time.

But a magic pill or shot or surgery where you won't have to do ANYTHING anymore...? Nooootttt gonna happen.
 

Emily65Roses

New member
Be careful telling her meds won't be an issue anymore. Chances are, a full out CURE won't be found. Curing DNA is a little ridiculous. It's more likely that they'll come up with more meds. Perhaps meds that will allow CFers to live normal lifespans, but it wouldn't make us free of meds.
<br />
<br />I was told my whole life that a cure was "right around the corner" and it ended up pissing me off because I kept hearing it, and got nothing from it. I just don't want you to get her hopes up for nothing. I do believe they'll come up with better meds that will help us live longer. They're doing it all the time.
<br />
<br />But a magic pill or shot or surgery where you won't have to do ANYTHING anymore...? Nooootttt gonna happen.
 
B

brewz2

Guest
Hey Emily,
While your post was a little disheartening, I understand where you're coming from. Right now, my faith is and always will be what I cling to for hope. I know that miracles happen every day, and I know we're becoming so much more tech. advanced that I have to believe that God can do anything. I have to instill that in my children to believe. What kind of parent would I be if I gave her a doomsday outlook on her life? If she wants to believe that there could be a day that she won't have to take meds anymore, then I'm gonna believe right along with her because if I give up, how will she have any hope? I try and teach them that nobody is promised tomorrow, and to live life every day as happy as you can be.

I do know where you're coming from when they say a cure is right around the corner. I also have a first cousing that's turning 30 this year, and he's still waiting, frustrated, but we can all only hope that we're living in the day that we'll see the hope come to life!

Anyways, just like children, there's no instruction manual on what to do or how to cope with this, but I'm just doing the best I can....and praying for strength and comfort for when I may need it..
 
B

brewz2

Guest
Hey Emily,
While your post was a little disheartening, I understand where you're coming from. Right now, my faith is and always will be what I cling to for hope. I know that miracles happen every day, and I know we're becoming so much more tech. advanced that I have to believe that God can do anything. I have to instill that in my children to believe. What kind of parent would I be if I gave her a doomsday outlook on her life? If she wants to believe that there could be a day that she won't have to take meds anymore, then I'm gonna believe right along with her because if I give up, how will she have any hope? I try and teach them that nobody is promised tomorrow, and to live life every day as happy as you can be.

I do know where you're coming from when they say a cure is right around the corner. I also have a first cousing that's turning 30 this year, and he's still waiting, frustrated, but we can all only hope that we're living in the day that we'll see the hope come to life!

Anyways, just like children, there's no instruction manual on what to do or how to cope with this, but I'm just doing the best I can....and praying for strength and comfort for when I may need it..
 
B

brewz2

Guest
Hey Emily,
While your post was a little disheartening, I understand where you're coming from. Right now, my faith is and always will be what I cling to for hope. I know that miracles happen every day, and I know we're becoming so much more tech. advanced that I have to believe that God can do anything. I have to instill that in my children to believe. What kind of parent would I be if I gave her a doomsday outlook on her life? If she wants to believe that there could be a day that she won't have to take meds anymore, then I'm gonna believe right along with her because if I give up, how will she have any hope? I try and teach them that nobody is promised tomorrow, and to live life every day as happy as you can be.

I do know where you're coming from when they say a cure is right around the corner. I also have a first cousing that's turning 30 this year, and he's still waiting, frustrated, but we can all only hope that we're living in the day that we'll see the hope come to life!

Anyways, just like children, there's no instruction manual on what to do or how to cope with this, but I'm just doing the best I can....and praying for strength and comfort for when I may need it..
 
B

brewz2

Guest
Hey Emily,
While your post was a little disheartening, I understand where you're coming from. Right now, my faith is and always will be what I cling to for hope. I know that miracles happen every day, and I know we're becoming so much more tech. advanced that I have to believe that God can do anything. I have to instill that in my children to believe. What kind of parent would I be if I gave her a doomsday outlook on her life? If she wants to believe that there could be a day that she won't have to take meds anymore, then I'm gonna believe right along with her because if I give up, how will she have any hope? I try and teach them that nobody is promised tomorrow, and to live life every day as happy as you can be.

I do know where you're coming from when they say a cure is right around the corner. I also have a first cousing that's turning 30 this year, and he's still waiting, frustrated, but we can all only hope that we're living in the day that we'll see the hope come to life!

Anyways, just like children, there's no instruction manual on what to do or how to cope with this, but I'm just doing the best I can....and praying for strength and comfort for when I may need it..
 
B

brewz2

Guest
Hey Emily,
<br />While your post was a little disheartening, I understand where you're coming from. Right now, my faith is and always will be what I cling to for hope. I know that miracles happen every day, and I know we're becoming so much more tech. advanced that I have to believe that God can do anything. I have to instill that in my children to believe. What kind of parent would I be if I gave her a doomsday outlook on her life? If she wants to believe that there could be a day that she won't have to take meds anymore, then I'm gonna believe right along with her because if I give up, how will she have any hope? I try and teach them that nobody is promised tomorrow, and to live life every day as happy as you can be.
<br />
<br />I do know where you're coming from when they say a cure is right around the corner. I also have a first cousing that's turning 30 this year, and he's still waiting, frustrated, but we can all only hope that we're living in the day that we'll see the hope come to life!
<br />
<br />Anyways, just like children, there's no instruction manual on what to do or how to cope with this, but I'm just doing the best I can....and praying for strength and comfort for when I may need it..
 
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