I wonder

mlag2010

New member
Well the only reason i mention it is because... I have been very prone to sinus issues and have been diagnosed after having an mri scan I believe it was with chronic sinusitis. I get a cold and it tends to the majority of the time turn into an infection. I never take decongestants because I can't breathe... I drown in the conjestion. I always take antihistimines to try and dry it up so I can at least function while sort of. I had whooping cough as a kid and was diagnosed with asthma. Never really had any weight gain issues have almost always been overweight and am about 5'9 so growth wasn't a problem, was diagnosed with failure to thrive or so I have been told but for unrelated issues. So I don't know it just occured to me that maybe there might be a link although my carrier testing came back without any genetic markers for the 97 mutations it tests for. Any opinions would be apprec. thnks much MLAG
 

mlag2010

New member
Well the only reason i mention it is because... I have been very prone to sinus issues and have been diagnosed after having an mri scan I believe it was with chronic sinusitis. I get a cold and it tends to the majority of the time turn into an infection. I never take decongestants because I can't breathe... I drown in the conjestion. I always take antihistimines to try and dry it up so I can at least function while sort of. I had whooping cough as a kid and was diagnosed with asthma. Never really had any weight gain issues have almost always been overweight and am about 5'9 so growth wasn't a problem, was diagnosed with failure to thrive or so I have been told but for unrelated issues. So I don't know it just occured to me that maybe there might be a link although my carrier testing came back without any genetic markers for the 97 mutations it tests for. Any opinions would be apprec. thnks much MLAG
 

mlag2010

New member
Well the only reason i mention it is because... I have been very prone to sinus issues and have been diagnosed after having an mri scan I believe it was with chronic sinusitis. I get a cold and it tends to the majority of the time turn into an infection. I never take decongestants because I can't breathe... I drown in the conjestion. I always take antihistimines to try and dry it up so I can at least function while sort of. I had whooping cough as a kid and was diagnosed with asthma. Never really had any weight gain issues have almost always been overweight and am about 5'9 so growth wasn't a problem, was diagnosed with failure to thrive or so I have been told but for unrelated issues. So I don't know it just occured to me that maybe there might be a link although my carrier testing came back without any genetic markers for the 97 mutations it tests for. Any opinions would be apprec. thnks much MLAG
 

alabamamom

New member
Baylor in Texas tests for 150 (think it's Baylor). and maybe it's 125, but its more. also, get the sweat test. but i'd guess that if you are overweight, it is probably not cf.
 

alabamamom

New member
Baylor in Texas tests for 150 (think it's Baylor). and maybe it's 125, but its more. also, get the sweat test. but i'd guess that if you are overweight, it is probably not cf.
 

alabamamom

New member
Baylor in Texas tests for 150 (think it's Baylor). and maybe it's 125, but its more. also, get the sweat test. but i'd guess that if you are overweight, it is probably not cf.
 

jendonl

New member
Some people with CF are pancreatic sufficient and do not have weight problems. I wouldn't rule out CF based on weight. There are over 1300 known mutations that cause CF. You should get the full Ambry panel. Have you had the sweat test?
 

jendonl

New member
Some people with CF are pancreatic sufficient and do not have weight problems. I wouldn't rule out CF based on weight. There are over 1300 known mutations that cause CF. You should get the full Ambry panel. Have you had the sweat test?
 

jendonl

New member
Some people with CF are pancreatic sufficient and do not have weight problems. I wouldn't rule out CF based on weight. There are over 1300 known mutations that cause CF. You should get the full Ambry panel. Have you had the sweat test?
 

petnurse

New member
There is also some debate about symptomatic carriers. There are quite a few people on this site who believe they are. Again, something people like to argue about :-S
 

petnurse

New member
There is also some debate about symptomatic carriers. There are quite a few people on this site who believe they are. Again, something people like to argue about :-S
 

petnurse

New member
There is also some debate about symptomatic carriers. There are quite a few people on this site who believe they are. Again, something people like to argue about :-S
 

AnD

New member
As a plump CFer (from Alabama, <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) and DDF508'er, you can be overweight and have CF. There are enough of us for a club <img src="i/expressions/face-icon-small-tongue.gif" border="0"> .

Hopefully, mlag, you can get the testing for the full panel from Ambry and know one way or the other soon.
 

AnD

New member
As a plump CFer (from Alabama, <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) and DDF508'er, you can be overweight and have CF. There are enough of us for a club <img src="i/expressions/face-icon-small-tongue.gif" border="0"> .

Hopefully, mlag, you can get the testing for the full panel from Ambry and know one way or the other soon.
 

AnD

New member
As a plump CFer (from Alabama, <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) and DDF508'er, you can be overweight and have CF. There are enough of us for a club <img src="i/expressions/face-icon-small-tongue.gif" border="0"> .
<br />
<br />Hopefully, mlag, you can get the testing for the full panel from Ambry and know one way or the other soon.
 
A

alluneedislove

Guest
I also wouldn't rule out the height either. I am 5'9 and have Cf. I was finally diagnosed at 15 after being told i had asthma, allergies to my pets, and was in the clinic every other week with a cold or some sort. Good Luck! Get a sweat test.
 
A

alluneedislove

Guest
I also wouldn't rule out the height either. I am 5'9 and have Cf. I was finally diagnosed at 15 after being told i had asthma, allergies to my pets, and was in the clinic every other week with a cold or some sort. Good Luck! Get a sweat test.
 
A

alluneedislove

Guest
I also wouldn't rule out the height either. I am 5'9 and have Cf. I was finally diagnosed at 15 after being told i had asthma, allergies to my pets, and was in the clinic every other week with a cold or some sort. Good Luck! Get a sweat test.
 
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