I have one tragic story about this, and another bad one.
1. My neighbor's niece allegedly died from the ibuprofen treatment. I'm guessing this was in the 90s when I heard most about it, but he didn't say what year it was. His niece was 19 years old, part of "the study" and under close watch. Years went by, everything seemed fine with the ibuprofen dosage, etc. Eventually she was in the hospital for a routine sinus surgery, when she didn't make it out the anethesia, and passed away. No one understood why since she seemed so "normal", no signs of such complications. He said "one day she looked just like you (meaning me) and the next she was dead". When they did an autopsy they discovered that her small intestine (I believe that was the organ he told me) was dead and completely rotted. More research was done immediately with the family's persistance to find out why she died. They believe the ibuprofen treatment slowly killed her insides and that was what killed her. Her family went to great lengths to sue the doctors, but with every legal corner they turned, the doctor's lawyers were one step ahead. After a year or two (I don't remember how long he said they spent) the case had to be dropped b/c so many records that could have been used against the doctors mysteriously disapeared over the course of the trials, that they were no force against them. There was too much money and power used against the family, that it was a losing battle. Such a tragic story!!!!
2. I personally used to take advil nearly 3-5 times a week for years and years. I never thought too much about it since it always help me so much. I was not taking it as an antiinflammatory treatment, just for back aches and headaches. I should have put it together that it was bad to take so frequently, but in the back of my mind I knew there had been an actual treatment using ibuprofen for cf so I kind of figured it would be fine. The concept made sense to me though, so I didn't really think twice about it. Then last year I went into kidney failure and they suspect it was due to the long term, consistent ibuprofen use. 50% of the time doctors do not know the reason for kidney failure, but they suspected that's what it was from for me. Pretty scary! Luckily my kidneys went back to normal after about 2 weeks, no dialysis was needed, but I no longer touch ibuprofen.
So in my opinion, don't use it as a "treatment".
