Ideas for venus

live2breath

New member
Hey everyone I am getting ready to hold a benifet for CF in CINCINNATI OHIO we will have live music drink specials and if we can get some decent raffle prizes that still working on all the details but I do know for a fact that if you have CF or are a parent with a child with CF you get in for free
 

live2breath

New member
Hey everyone I am getting ready to hold a benifet for CF in CINCINNATI OHIO we will have live music drink specials and if we can get some decent raffle prizes that still working on all the details but I do know for a fact that if you have CF or are a parent with a child with CF you get in for free
 

Cbegley

New member
Yeah, that doesn't sound like such a hot idea. People with CF are suggested to stay away from others who have it, because they can catch each others germs that one person who CF might be immune to and carry the germ, and give it to someone else.
 

Cbegley

New member
Yeah, that doesn't sound like such a hot idea. People with CF are suggested to stay away from others who have it, because they can catch each others germs that one person who CF might be immune to and carry the germ, and give it to someone else.
 

live2breath

New member
OK people seriously dont tell me you guys let CF make you live a certain way forget that you only have one life I chose quality not longevity I take risks and I live like there is no tommrow plain and simple
 

live2breath

New member
OK people seriously dont tell me you guys let CF make you live a certain way forget that you only have one life I chose quality not longevity I take risks and I live like there is no tommrow plain and simple
 

Incomudrox

New member
burkholderia capacia is not worth it chief

also just because you believe one thing does not make it what others believe do not put the lives of other children and cfers at risk unknowingly
I MAYBE WRONG but my guess is your cf is probably pretty mild compared to a lot on this board
 

Incomudrox

New member
burkholderia capacia is not worth it chief

also just because you believe one thing does not make it what others believe do not put the lives of other children and cfers at risk unknowingly
I MAYBE WRONG but my guess is your cf is probably pretty mild compared to a lot on this board
 

live2breath

New member
ok I see your point about the children thing that did not occur to me I saw it as it was going to be in a bar and be 21+ but the parents thing and CF is only as bad as you tell your self it is the only way it stops me is if I am getting a clean out
 

live2breath

New member
ok I see your point about the children thing that did not occur to me I saw it as it was going to be in a bar and be 21+ but the parents thing and CF is only as bad as you tell your self it is the only way it stops me is if I am getting a clean out
 

Incomudrox

New member
I see your point, as well you can't stop living because of bacteria... they are everywhere. Everytime you take a shower you are being showered in PA... it's everywhere. Would I never meet someone with CF? Not true.. I have in the past. Would I meet someone who I knew had B. Capacia? No chance in hell. Problem being is that with something that a bunch of people are showing up to, not everyone knows what they have, and you have no idea what they have. There is an element of mystery to it... too much for me. The only other thing I could see happening which isn't likely is if some bacteria hitched a ride home on a parent to a child with CF.. possible not likely but something to consider.

I worked on cars for years getting tons of cuts and probably a lot of infections from it never stopped me. I'd still do it but I moved to the city and don't have the space anymore. I never let anything stop me from living life, as it sounds like do you.
 

Incomudrox

New member
I see your point, as well you can't stop living because of bacteria... they are everywhere. Everytime you take a shower you are being showered in PA... it's everywhere. Would I never meet someone with CF? Not true.. I have in the past. Would I meet someone who I knew had B. Capacia? No chance in hell. Problem being is that with something that a bunch of people are showing up to, not everyone knows what they have, and you have no idea what they have. There is an element of mystery to it... too much for me. The only other thing I could see happening which isn't likely is if some bacteria hitched a ride home on a parent to a child with CF.. possible not likely but something to consider.

I worked on cars for years getting tons of cuts and probably a lot of infections from it never stopped me. I'd still do it but I moved to the city and don't have the space anymore. I never let anything stop me from living life, as it sounds like do you.
 

Incomudrox

New member
<a href="http://www.cff.org/LivingWithCF/StayingHealthy/Germs/Bcepacia/">http://www.cff.org/LivingWithCF/StayingHealthy/Germs/Bcepacia/</a>
 

Incomudrox

New member
<a href="http://www.cff.org/LivingWithCF/StayingHealthy/Germs/Bcepacia/">http://www.cff.org/LivingWithCF/StayingHealthy/Germs/Bcepacia/</a>
 
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