Im 18 and i have cf

[Imadeitto18]

Hey everyone,<br>
                              My
name is mandi and i am 18. my mom was never there for me in the
hospital and when i was im school everyone made fun of me because i
have this disease and i dont think its fair at all. What am i
supposed to do. My whole family blames all there problems on my
disease and when i did go to school everyone called me infected
disease girl and tubey because i used to have a feediny tube in my
stomach and im tired of people calling me names. I also cant keep a
stable relationship because there afraid to get to close to me just
in case i pass away and its just not fair. when i lived with my
parents my mom blamed her drinking on my disease and my father
blamed his drug habbits on my disease please help me in anyway you
guys can thank you always mandi

 

[beautifulsoul]

Hi Mandi,
Welcome to the site. Everyone here is very nice and helpful to all. I sent you a private message. So check it out.

-----------------
Amber/ turning 15 in August,yeah!

w/CF/CFRD

 

[JazzysMom]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Imadeitto18</b></i>

Hey everyone,

                              My
name is mandi and i am 18. my mom was never there for me in the
hospital and when i was im school everyone made fun of me because i
have this disease and i dont think its fair at all. What am i
supposed to do. My whole family blames all there problems on my
disease and when i did go to school everyone called me infected
disease girl and tubey because i used to have a feediny tube in my
stomach and im tired of people calling me names. I also cant keep a
stable relationship because there afraid to get to close to me just
in case i pass away and its just not fair. when i lived with my
parents my mom blamed her drinking on my disease and my father
blamed his drug habbits on my disease please help me in anyway you
guys can thank you always mandi</end quote></div>


First of all welcome. Secondly dont listen to everyone using your CF as an excuse to jusify their addictions, behaviors etc. Its just an excuse. You are havinga rough time & people that dont know or dont care can be very mean & vicious. Please know that you are important & we care about you here. I know that doesnt help when faced with the constant name calling or confrontations, but maybe our support here will give you inner strength to handle things better!

 

[Imadeitto18]

thank you very much and i finally told my mom how i felt about her
blaming her drinking on me and she apologized and i accepted it and
i told her that i want to go to counseling and  she said she
would love to go with me and that she proud of me for everything i
went through and me going to my appointments all by myself ever
since i was 11 and me graduating high school and living on my own
before i was 18 and i thank her for trying her best at raising me
well thank you again melissa

 

[anonymous]

HI MANDI MY NAMES CJ, YEA IM A GUY AND IM SAD FOR YOUR TERRIABLE EXPERIANCES "U POOR THING". I DONT WISH 2 SOUND 2 MACHO BUT IF YOU HAD GONE 2 MY SCHOOL OR ME YOURS THEY WOULD1NT HAVE TREATEDED U THAT WAY? TRUST ME GIRL! I 2 HAVE CF AND YEA I HAD SOME TROUBLE BUT I SOON SORTED OUT THOSE BULLIES LET ME TELL YEA IM Q WELL AND DONE ALL SORT OF SPORTS BOXING ETC. ANYWAY RU STILL ON LINE 2DAY?
CJ

 

[Imadeitto18]

<b><i><span style=" font-size: medium;"> hey</i></b>
<b><i><span style=" font-size: medium;">CJ- thank you for saying
that thats awsome and i dont think you sound macho at all but thank
you always mandi and i know excatly what you mean well later and
take your meds allright late always your cf friend
mandi</i></b> <br>

 

[anonymous]

thats ok m8! your msg upset me, how could people treat you that way?. the other msgs above sum it all up 4u! your friend cj x

 

[sk8rgrrrl4life]

4get every1 that put you down u don't need them as long as you got
true friends who got your back you'll be ight!!!!!
  <img src="i/expressions/face-icon-small-happy.gif" border="0"><br>
<br>
~alyssa~ 14 yrs old with cf and cfrd

 

[janninibeany]

hey mandi, i am jannine 17 with cf and it sounds lyk you have problems u just wana talk about which is understandable if u have msn add me queeniepiper@hotmail.com or just email me .

p.s your family shouldnt blame them self cause cf is a gene which some people have, its nothing to do with how your family are.

 

[fugikitten2087]

Mel is right, they shouldn't use your disease. If you need to talk you can send me a private message and I'll give you my AIM, MSN and anything other way you can contact me... Your inmy prayers.

 

[anonymous]

NO ONE SHOULD BE MAKING FUN OF YOU,THATS CRUEL.MY GRANDSON HAS CF HE IS 18,HE GETS ALONG FINE WITH HIS CLASMATES,HE NEVER HAD A PROBLEM IN SCHOOL.YOU HAVE TO FIND NICER FRIENDS,THEY HAVE TO UNDERSTAND WHAT CF IS,I HAVE BEEN THE CHAIRMAN OF THE GREAT STRIDES WALK SINCE MY GRANDSON HAD CF.I WISH I COULD GET HIM TO GET ON THIS SITE AND TALK TO OTHERS HIS AGE WHO HAS CF,MAYBE YOU CAN GIVE ME A IDEA I COULD SHARE WITH HIM TO GET HIM INTRESTED......HE IS DOING FINE WITH HIS TREATMENTS,HE IS USING A NEW HYPERTONIC SALINE SOLUTION NOW,THIS CAME ABOUT BECAUSE OF SOME YOUG MEN IN AUSTRILIA WHO HAD CF,THEY DID A LOT OF SURFING AND HAD VEY LITTLE PROBLEMS WITH INFECTION AND MUCUS,THEY DEVELOPED A SOLUTION IN NORTH CAROLINA UNIVERSITY WHICH HE USES ,DO YOU KNOW ABOU THIS????

 

[anonymous]

MY EMAIL IS JTBOJOJO@AOL.COM IM NOT SURE HOW THIS SITE WORKS HOPE YOU GOT MY REPLY TO YOR CONCERN ABOUT PEOPLE MAKING FUN OF YOU,PLEASES LET ME KNOE,I WOULD LIKE TO GET MY GRANDSON TO TALK TO YOU,HE IS 18,HAS CF................

 

[coltsfan715]

Mandi,

Your post broke my heart truly. People, kids especially, can be so cruel. People I knew used to pick on me about things when I was in middle school and a bit into high school, they would pick at things like my coughing and my nails being bigger or the fact that I had to take medicine. The only thing was no one knew I had CF except my closest friends. I tolerated it as long as I could then started fighting back. I know it is not the best way to handle it, but at my school I realized that if I call out the people that were picking at me it WOULD stop because they didn't want to be made to look like an @--.
I just hate that you had to endure that the entire time you were in school with no one to turn to with your family having the issues they were dealing with and all. Congrats on talking to your mom about the stuff that was bothering you. I do hope that ouseling helps. I know it helped me a bit when I went in H.S. It made me a bit happier with myself.
If you ever want to talk feel free to message me or email me -- xiao07@hotmail.com.

This site is great. I didn't know many people with CF at all when I first came here and you will find a great group of people you can count on to support you when you need it or just listen to you complain about what is bothering you if that is all you need to do too.

Have a good day,
Lindsey

 

[Giggles]

Mandi:

I am so sorry you have to live in a environment that does not support you and motivate you!!! Please think good thought! Keep yourself healthy, embrace your disease and share what CF is with people so they could try to understand. I think people make fun of others cause they are scared. Stand tall and brave and do all that you can to feel well and show others that CF is nothing to be afraid of. Do not coward away from those who make fun of you or blame you for their addictions. Speak up and be strong and explain why you have a feeding tube etc.

My heart goes out to you and I pray you will not let others get you down. Be a role model for those who are less fortunate like yourself!!!! Hang in there and just be courageous. Good job on talking to your mom.

Just know you can control what you do and how you think and act. You do not have to have others dictate how you should feel. Stay strong and courageous like you already are for living with CF


Jennifer 34 years old with CF and CFRD

 

[bmombtoo]

Mandi,<br>
I think counseling would be great for you . Even if your Mom backs
out or never goes, you go for you. Using you as an excuse is just
that, an excuse....if it wasn't your CF than it would be something
else. It's easy to blame problems on someone else, that way they
don't have to take responsibility for their own behavior (drinking
and drugging). Maybe your doctor or CF clinic can recommend a
counselor or therapist who has worked with others who have CF.

 

[blackchameleon]

WOW Mandi, i found your story sad and frustrating, however i want
you to know i think for you to have coped in hospital , finished
school and living independant from your parents inspirational! you
are a winner no doubt- u obviously have loads of character. punch
punch punch is my way!<br>