I'm desperate for hope

[Kim2008]

I just found this website and I am so glad I did. You are all so inspiring. I am trying to gather as much information as I possible can. I am 5 months pregnant and I found out Friday by precious boy has CF. I have been around many many CF patints in my life, due to having Chrons Disease. CF patients were always my roommates. However, I know CF treatments have come a long way in 30 years when I knew it.

I guess my question to all of you is when do they become syptomatic, and do we start treatment before hand to try and slow the process? Can I nurse him? I know they need high fat diests, but is that right away? Any info I can get now will help me to better prepare myself for my little miracle!

thank you,
Kim

 

[Kim2008]

I just found this website and I am so glad I did. You are all so inspiring. I am trying to gather as much information as I possible can. I am 5 months pregnant and I found out Friday by precious boy has CF. I have been around many many CF patints in my life, due to having Chrons Disease. CF patients were always my roommates. However, I know CF treatments have come a long way in 30 years when I knew it.

I guess my question to all of you is when do they become syptomatic, and do we start treatment before hand to try and slow the process? Can I nurse him? I know they need high fat diests, but is that right away? Any info I can get now will help me to better prepare myself for my little miracle!

thank you,
Kim

 

[Kim2008]

I just found this website and I am so glad I did. You are all so inspiring. I am trying to gather as much information as I possible can. I am 5 months pregnant and I found out Friday by precious boy has CF. I have been around many many CF patints in my life, due to having Chrons Disease. CF patients were always my roommates. However, I know CF treatments have come a long way in 30 years when I knew it.

I guess my question to all of you is when do they become syptomatic, and do we start treatment before hand to try and slow the process? Can I nurse him? I know they need high fat diests, but is that right away? Any info I can get now will help me to better prepare myself for my little miracle!

thank you,
Kim

 

[Kim2008]

I just found this website and I am so glad I did. You are all so inspiring. I am trying to gather as much information as I possible can. I am 5 months pregnant and I found out Friday by precious boy has CF. I have been around many many CF patints in my life, due to having Chrons Disease. CF patients were always my roommates. However, I know CF treatments have come a long way in 30 years when I knew it.

I guess my question to all of you is when do they become syptomatic, and do we start treatment before hand to try and slow the process? Can I nurse him? I know they need high fat diests, but is that right away? Any info I can get now will help me to better prepare myself for my little miracle!

thank you,
Kim

 

[Kim2008]

I just found this website and I am so glad I did. You are all so inspiring. I am trying to gather as much information as I possible can. I am 5 months pregnant and I found out Friday by precious boy has CF. I have been around many many CF patints in my life, due to having Chrons Disease. CF patients were always my roommates. However, I know CF treatments have come a long way in 30 years when I knew it.

I guess my question to all of you is when do they become syptomatic, and do we start treatment before hand to try and slow the process? Can I nurse him? I know they need high fat diests, but is that right away? Any info I can get now will help me to better prepare myself for my little miracle!

thank you,
Kim

 

[pnhuffman]

I just wanted to welcome you to this website. You have come to the right place. I don't really have any words of wisdom or anything but there are plenty of people here that can help you out.

Again Welcome!

 

[pnhuffman]

I just wanted to welcome you to this website. You have come to the right place. I don't really have any words of wisdom or anything but there are plenty of people here that can help you out.

Again Welcome!

 

[pnhuffman]

I just wanted to welcome you to this website. You have come to the right place. I don't really have any words of wisdom or anything but there are plenty of people here that can help you out.

Again Welcome!

 

[pnhuffman]

I just wanted to welcome you to this website. You have come to the right place. I don't really have any words of wisdom or anything but there are plenty of people here that can help you out.

Again Welcome!

 

[pnhuffman]

I just wanted to welcome you to this website. You have come to the right place. I don't really have any words of wisdom or anything but there are plenty of people here that can help you out.

Again Welcome!

 

[babyluke]

Our three month old son was diagnosed with CF this past Wednesday via a sweat test. The genetic testing for the exact strand is still pending. I do not understand everything about the different strands, but we are going to see a genetic couselor on Thurs. He seems to have poor pancreatic function at this point--the enzymes are helping, but he is so small and so far off the growth chart at this point that we are really scared. We read there is a connection between size/growth and lung function. I was wondering, how long after diagnosis and beginning treatment have others begun to see an improvement in their child's overall health and growth? We just began enzymes late last Wed. and began aresol treatments that day as well. We just came home from the hospital last night. We feel very overwhelmed and so worried about the future. I am glad to have found this site. We do not have any family or friends affected by CF. Most people we have told do not even know what it is, so we also feel pretty alone right now. I appreciate any insight anyone may have.
ABender

 

[babyluke]

Our three month old son was diagnosed with CF this past Wednesday via a sweat test. The genetic testing for the exact strand is still pending. I do not understand everything about the different strands, but we are going to see a genetic couselor on Thurs. He seems to have poor pancreatic function at this point--the enzymes are helping, but he is so small and so far off the growth chart at this point that we are really scared. We read there is a connection between size/growth and lung function. I was wondering, how long after diagnosis and beginning treatment have others begun to see an improvement in their child's overall health and growth? We just began enzymes late last Wed. and began aresol treatments that day as well. We just came home from the hospital last night. We feel very overwhelmed and so worried about the future. I am glad to have found this site. We do not have any family or friends affected by CF. Most people we have told do not even know what it is, so we also feel pretty alone right now. I appreciate any insight anyone may have.
ABender

 

[babyluke]

Our three month old son was diagnosed with CF this past Wednesday via a sweat test. The genetic testing for the exact strand is still pending. I do not understand everything about the different strands, but we are going to see a genetic couselor on Thurs. He seems to have poor pancreatic function at this point--the enzymes are helping, but he is so small and so far off the growth chart at this point that we are really scared. We read there is a connection between size/growth and lung function. I was wondering, how long after diagnosis and beginning treatment have others begun to see an improvement in their child's overall health and growth? We just began enzymes late last Wed. and began aresol treatments that day as well. We just came home from the hospital last night. We feel very overwhelmed and so worried about the future. I am glad to have found this site. We do not have any family or friends affected by CF. Most people we have told do not even know what it is, so we also feel pretty alone right now. I appreciate any insight anyone may have.
ABender

 

[babyluke]

Our three month old son was diagnosed with CF this past Wednesday via a sweat test. The genetic testing for the exact strand is still pending. I do not understand everything about the different strands, but we are going to see a genetic couselor on Thurs. He seems to have poor pancreatic function at this point--the enzymes are helping, but he is so small and so far off the growth chart at this point that we are really scared. We read there is a connection between size/growth and lung function. I was wondering, how long after diagnosis and beginning treatment have others begun to see an improvement in their child's overall health and growth? We just began enzymes late last Wed. and began aresol treatments that day as well. We just came home from the hospital last night. We feel very overwhelmed and so worried about the future. I am glad to have found this site. We do not have any family or friends affected by CF. Most people we have told do not even know what it is, so we also feel pretty alone right now. I appreciate any insight anyone may have.
ABender

 

[babyluke]

Our three month old son was diagnosed with CF this past Wednesday via a sweat test. The genetic testing for the exact strand is still pending. I do not understand everything about the different strands, but we are going to see a genetic couselor on Thurs. He seems to have poor pancreatic function at this point--the enzymes are helping, but he is so small and so far off the growth chart at this point that we are really scared. We read there is a connection between size/growth and lung function. I was wondering, how long after diagnosis and beginning treatment have others begun to see an improvement in their child's overall health and growth? We just began enzymes late last Wed. and began aresol treatments that day as well. We just came home from the hospital last night. We feel very overwhelmed and so worried about the future. I am glad to have found this site. We do not have any family or friends affected by CF. Most people we have told do not even know what it is, so we also feel pretty alone right now. I appreciate any insight anyone may have.
ABender

 

[babyluke]

Thank you for what you said. As a mommy of a little boy recently diagnosed, what I need to know more than anything is that there is hope and that there is something that we can do for him. I don't want to be helpless and I am determined that he is going to have a good, long, full life.
Angela, mommy to Luke, 3 months--just diagnosed

 

[babyluke]

Thank you for what you said. As a mommy of a little boy recently diagnosed, what I need to know more than anything is that there is hope and that there is something that we can do for him. I don't want to be helpless and I am determined that he is going to have a good, long, full life.
Angela, mommy to Luke, 3 months--just diagnosed

 

[babyluke]

Thank you for what you said. As a mommy of a little boy recently diagnosed, what I need to know more than anything is that there is hope and that there is something that we can do for him. I don't want to be helpless and I am determined that he is going to have a good, long, full life.
Angela, mommy to Luke, 3 months--just diagnosed

 

[babyluke]

Thank you for what you said. As a mommy of a little boy recently diagnosed, what I need to know more than anything is that there is hope and that there is something that we can do for him. I don't want to be helpless and I am determined that he is going to have a good, long, full life.
Angela, mommy to Luke, 3 months--just diagnosed

 

[babyluke]

Thank you for what you said. As a mommy of a little boy recently diagnosed, what I need to know more than anything is that there is hope and that there is something that we can do for him. I don't want to be helpless and I am determined that he is going to have a good, long, full life.
Angela, mommy to Luke, 3 months--just diagnosed