so i had previously posted about the last clinic i was at giving me a lot of trouble. Then i posted i started going to the childrens cf clinic in dayton. Let me say amazing!! its near a 2 1/2 hour trip from where i live but worth it. After talking to my dr and deciding that my lungs where full of junk and i was, what he called, "Behind the 8 ball" i was sent over to the adult cf place at miami valley hospital and i was very worried, i had never went anywhere else for 26 years and i must say that i am pleasently surprised and happy with this place. The dr remembered the horrendous times i have with my ivs that i had discussed with him, they were ready for me with a bed side picc line when i got here. they all welcomed me with a warm welcome and brought me a fridge and filled it up with all the high calorie protien goodies you could ask for. they are very friendly and even brought me a fan for my room to make sure that i felt like i was home. the drs told me that the staff here are extremely dedicated to the cf patients and i can definately say that i can see that. I couldnt be happier with switching, here i am treated like an adult and they LISTEN to me and my concerns. I would recommend dayton cf clinic to anyone. I wanted to thank everyone for the support.
the drs are saying my body is sensitive to everything after doing cultures, that my pfts dropped 20 percent in the last two years. i'm at a 65 now and we are trying to get them back up and possibly be put on the new cf drug Kalydeco i think its called. they even said with me having a five year old at home if i wanted i could do home treatments. The last clinic acted like they didn't care, made you feel stupid, called me a hypocondraic even. They refused to listen to my concerns as a parent and a patient and now that i changed i couldnt be happier thanks guys for your support <img src="i/expressions/face-icon-small-smile.gif" border="0">
the drs are saying my body is sensitive to everything after doing cultures, that my pfts dropped 20 percent in the last two years. i'm at a 65 now and we are trying to get them back up and possibly be put on the new cf drug Kalydeco i think its called. they even said with me having a five year old at home if i wanted i could do home treatments. The last clinic acted like they didn't care, made you feel stupid, called me a hypocondraic even. They refused to listen to my concerns as a parent and a patient and now that i changed i couldnt be happier thanks guys for your support <img src="i/expressions/face-icon-small-smile.gif" border="0">