Hi everyone I hope you don't mind me posting on here. I am a mum to a four year old girl who has cf. I am from England and came upon this site..which I am glad.
I cannot put into words what I really want to say. I have so many questions to ask.I guess I have come here because I feel you maybe able to give me the facts from your own experience of living with cf.
I want to be strong for my daughters sake although at times I get scared for her future. I want to be a positive role model for her. Forgive me for not making much sense.
To be honest I did not know anything about cf until my daughter had the heel prick test. It took me a while to take everything in.
I would like any input from you what I can do to help her condition, like diet advice phisio etc.
I have got to the stage where I think the best people to ask these questions is people who have cf.
Again thanks for reading and if you want to reply to my post I would be very grateful.
LILLYTREE
I cannot put into words what I really want to say. I have so many questions to ask.I guess I have come here because I feel you maybe able to give me the facts from your own experience of living with cf.
I want to be strong for my daughters sake although at times I get scared for her future. I want to be a positive role model for her. Forgive me for not making much sense.
To be honest I did not know anything about cf until my daughter had the heel prick test. It took me a while to take everything in.
I would like any input from you what I can do to help her condition, like diet advice phisio etc.
I have got to the stage where I think the best people to ask these questions is people who have cf.
Again thanks for reading and if you want to reply to my post I would be very grateful.
LILLYTREE