I'm not smiling right now...

[TonyaH]

Andrew is scheduled for a liver ultrasound on June 3rd. He has had numerous blood draws this year and all but one of them has come back with elevated levels.

We were called into clinic yesterday for pfts, as Andrew has been coughing up blood again and she wanted to see what his numbers look like. He has been on mephyton for almost a month, since his firt bleed.

Could all of this, the bleeding, the liver levels, etc. all be related to a vitamin K deficiency? Or do these problems sound unrelated? Our doctor really thinks the bleeds are a low tolerance for hts, and it makes sense to me, but something is telling me there is more going on here. Have you ever had trouble with the "science" of the disease vs. your "instinct" about what the problem is? I trust his doctor, very much. But there's a voice inside my head telling me we are missing something.....

 

[TonyaH]

Andrew is scheduled for a liver ultrasound on June 3rd. He has had numerous blood draws this year and all but one of them has come back with elevated levels.

We were called into clinic yesterday for pfts, as Andrew has been coughing up blood again and she wanted to see what his numbers look like. He has been on mephyton for almost a month, since his firt bleed.

Could all of this, the bleeding, the liver levels, etc. all be related to a vitamin K deficiency? Or do these problems sound unrelated? Our doctor really thinks the bleeds are a low tolerance for hts, and it makes sense to me, but something is telling me there is more going on here. Have you ever had trouble with the "science" of the disease vs. your "instinct" about what the problem is? I trust his doctor, very much. But there's a voice inside my head telling me we are missing something.....

 

[TonyaH]

Andrew is scheduled for a liver ultrasound on June 3rd. He has had numerous blood draws this year and all but one of them has come back with elevated levels.

We were called into clinic yesterday for pfts, as Andrew has been coughing up blood again and she wanted to see what his numbers look like. He has been on mephyton for almost a month, since his firt bleed.

Could all of this, the bleeding, the liver levels, etc. all be related to a vitamin K deficiency? Or do these problems sound unrelated? Our doctor really thinks the bleeds are a low tolerance for hts, and it makes sense to me, but something is telling me there is more going on here. Have you ever had trouble with the "science" of the disease vs. your "instinct" about what the problem is? I trust his doctor, very much. But there's a voice inside my head telling me we are missing something.....

 

[TonyaH]

Andrew is scheduled for a liver ultrasound on June 3rd. He has had numerous blood draws this year and all but one of them has come back with elevated levels.

We were called into clinic yesterday for pfts, as Andrew has been coughing up blood again and she wanted to see what his numbers look like. He has been on mephyton for almost a month, since his firt bleed.

Could all of this, the bleeding, the liver levels, etc. all be related to a vitamin K deficiency? Or do these problems sound unrelated? Our doctor really thinks the bleeds are a low tolerance for hts, and it makes sense to me, but something is telling me there is more going on here. Have you ever had trouble with the "science" of the disease vs. your "instinct" about what the problem is? I trust his doctor, very much. But there's a voice inside my head telling me we are missing something.....

 

[TonyaH]

Andrew is scheduled for a liver ultrasound on June 3rd. He has had numerous blood draws this year and all but one of them has come back with elevated levels.
<br />
<br />We were called into clinic yesterday for pfts, as Andrew has been coughing up blood again and she wanted to see what his numbers look like. He has been on mephyton for almost a month, since his firt bleed.
<br />
<br />Could all of this, the bleeding, the liver levels, etc. all be related to a vitamin K deficiency? Or do these problems sound unrelated? Our doctor really thinks the bleeds are a low tolerance for hts, and it makes sense to me, but something is telling me there is more going on here. Have you ever had trouble with the "science" of the disease vs. your "instinct" about what the problem is? I trust his doctor, very much. But there's a voice inside my head telling me we are missing something.....

 

[point]

Vitamin K is used in the liver to maintain normal clotting factor so that blood properly clots. It is also stored in the liver. So if his enzymes are elevated/ inflammation in the liver his Vit K usage could be impaired and/or deficient. Pair that with sensitivity to HTS and they could both be contributing. I would say your instincts are working with the science in this case. I'd ask to have his Vit K levels check just to confirm.

 

[point]

Vitamin K is used in the liver to maintain normal clotting factor so that blood properly clots. It is also stored in the liver. So if his enzymes are elevated/ inflammation in the liver his Vit K usage could be impaired and/or deficient. Pair that with sensitivity to HTS and they could both be contributing. I would say your instincts are working with the science in this case. I'd ask to have his Vit K levels check just to confirm.

 

[point]

Vitamin K is used in the liver to maintain normal clotting factor so that blood properly clots. It is also stored in the liver. So if his enzymes are elevated/ inflammation in the liver his Vit K usage could be impaired and/or deficient. Pair that with sensitivity to HTS and they could both be contributing. I would say your instincts are working with the science in this case. I'd ask to have his Vit K levels check just to confirm.

 

[point]

Vitamin K is used in the liver to maintain normal clotting factor so that blood properly clots. It is also stored in the liver. So if his enzymes are elevated/ inflammation in the liver his Vit K usage could be impaired and/or deficient. Pair that with sensitivity to HTS and they could both be contributing. I would say your instincts are working with the science in this case. I'd ask to have his Vit K levels check just to confirm.

 

[point]

Vitamin K is used in the liver to maintain normal clotting factor so that blood properly clots. It is also stored in the liver. So if his enzymes are elevated/ inflammation in the liver his Vit K usage could be impaired and/or deficient. Pair that with sensitivity to HTS and they could both be contributing. I would say your instincts are working with the science in this case. I'd ask to have his Vit K levels check just to confirm.

 

[Landy]

Have you laid off of the HTS or Pulmozyme, assuming he's on both?

 

[Landy]

Have you laid off of the HTS or Pulmozyme, assuming he's on both?

 

[Landy]

Have you laid off of the HTS or Pulmozyme, assuming he's on both?

 

[Landy]

Have you laid off of the HTS or Pulmozyme, assuming he's on both?

 

[Landy]

Have you laid off of the HTS or Pulmozyme, assuming he's on both?

 

[barbc888]

The only thing that makes me cough up a lot of blood is when my blood sugar levels are out of whack and running high. Does Andrew have CFRD by any chance?

 

[barbc888]

The only thing that makes me cough up a lot of blood is when my blood sugar levels are out of whack and running high. Does Andrew have CFRD by any chance?

 

[barbc888]

The only thing that makes me cough up a lot of blood is when my blood sugar levels are out of whack and running high. Does Andrew have CFRD by any chance?

 

[barbc888]

The only thing that makes me cough up a lot of blood is when my blood sugar levels are out of whack and running high. Does Andrew have CFRD by any chance?

 

[barbc888]

The only thing that makes me cough up a lot of blood is when my blood sugar levels are out of whack and running high. Does Andrew have CFRD by any chance?
<br />
<br />