Hi,
I didn't read thru all of the other posts but here is something that has helped me. Kinda weird.....
My dermo put me on Doryx (doxacycline...don't know how to spell that). I guess it's used more for staph but it makes me feel a TON better (I don't have staph only PA). I can tell when I'm on it and when I'm not. It's used to clear up my skin but it makes my lungs feel so much better. I asked my dr about it, he had no answer but said "Whatever works!"
So I don't know if you could ask your dr about it, it can't hurt anything. It will make you sensitive to the sun but in winter (in Ohio) we have no sun.
Hope this helps and I hope you feel better!
<img src="i/expressions/face-icon-small-smile.gif" border="0">
Kelli
30 f CF