I'm Out Of Ideas...

iknownothing

New member
Tara,

I read through the posts. The one thiing I see missing is what you do twice a day to get rid of the secretions. I see the vest, correct? The vest isn't enough. Try the flutter or acapela. You need to really work it for a good 30 minutes twice a day, everyday.

Albuterol, hypertonic saline, both while doing the vest. Then 20 to 30 minutes of flutter/acapela. Then inhaled antibiotic.

The exercise will also help. A stairclimber with handles will help build legs and upper body, which will help with muscles around the rib cage, which will give you more strength to cough the garbage out.

The older you get, the harder you're going to have to work. You have two very good reasons to work hard (Tom and Abby). Get mad, get going.

BEFORE YOU DO ANYTHING, CONSULT YOUR DOCTOR.

Ignore everything above because I know nothing.
 

iknownothing

New member
Tara,

I read through the posts. The one thiing I see missing is what you do twice a day to get rid of the secretions. I see the vest, correct? The vest isn't enough. Try the flutter or acapela. You need to really work it for a good 30 minutes twice a day, everyday.

Albuterol, hypertonic saline, both while doing the vest. Then 20 to 30 minutes of flutter/acapela. Then inhaled antibiotic.

The exercise will also help. A stairclimber with handles will help build legs and upper body, which will help with muscles around the rib cage, which will give you more strength to cough the garbage out.

The older you get, the harder you're going to have to work. You have two very good reasons to work hard (Tom and Abby). Get mad, get going.

BEFORE YOU DO ANYTHING, CONSULT YOUR DOCTOR.

Ignore everything above because I know nothing.
 

iknownothing

New member
Tara,

I read through the posts. The one thiing I see missing is what you do twice a day to get rid of the secretions. I see the vest, correct? The vest isn't enough. Try the flutter or acapela. You need to really work it for a good 30 minutes twice a day, everyday.

Albuterol, hypertonic saline, both while doing the vest. Then 20 to 30 minutes of flutter/acapela. Then inhaled antibiotic.

The exercise will also help. A stairclimber with handles will help build legs and upper body, which will help with muscles around the rib cage, which will give you more strength to cough the garbage out.

The older you get, the harder you're going to have to work. You have two very good reasons to work hard (Tom and Abby). Get mad, get going.

BEFORE YOU DO ANYTHING, CONSULT YOUR DOCTOR.

Ignore everything above because I know nothing.
 

iknownothing

New member
Tara,

I read through the posts. The one thiing I see missing is what you do twice a day to get rid of the secretions. I see the vest, correct? The vest isn't enough. Try the flutter or acapela. You need to really work it for a good 30 minutes twice a day, everyday.

Albuterol, hypertonic saline, both while doing the vest. Then 20 to 30 minutes of flutter/acapela. Then inhaled antibiotic.

The exercise will also help. A stairclimber with handles will help build legs and upper body, which will help with muscles around the rib cage, which will give you more strength to cough the garbage out.

The older you get, the harder you're going to have to work. You have two very good reasons to work hard (Tom and Abby). Get mad, get going.

BEFORE YOU DO ANYTHING, CONSULT YOUR DOCTOR.

Ignore everything above because I know nothing.
 

iknownothing

New member
Tara,

I read through the posts. The one thiing I see missing is what you do twice a day to get rid of the secretions. I see the vest, correct? The vest isn't enough. Try the flutter or acapela. You need to really work it for a good 30 minutes twice a day, everyday.

Albuterol, hypertonic saline, both while doing the vest. Then 20 to 30 minutes of flutter/acapela. Then inhaled antibiotic.

The exercise will also help. A stairclimber with handles will help build legs and upper body, which will help with muscles around the rib cage, which will give you more strength to cough the garbage out.

The older you get, the harder you're going to have to work. You have two very good reasons to work hard (Tom and Abby). Get mad, get going.

BEFORE YOU DO ANYTHING, CONSULT YOUR DOCTOR.

Ignore everything above because I know nothing.
 

kayleesgrandma

New member
Tara, I don't have anything constructive to add, Kaylee is just now culturing PA for the first time...Just wanted to say that I am sorry you are feeling so sick and tired in battling this damn disease...I hope you can find a suitable mix in all this advice.

(I went back and looked at the pictures of your adorable kids...)
<a target=_blank class=ftalternatingbarlinklarge href="http://tarabelletwins.blogspot.com/">http://tarabelletwins.blogspot.com/</a>
 

kayleesgrandma

New member
Tara, I don't have anything constructive to add, Kaylee is just now culturing PA for the first time...Just wanted to say that I am sorry you are feeling so sick and tired in battling this damn disease...I hope you can find a suitable mix in all this advice.

(I went back and looked at the pictures of your adorable kids...)
<a target=_blank class=ftalternatingbarlinklarge href="http://tarabelletwins.blogspot.com/">http://tarabelletwins.blogspot.com/</a>
 

kayleesgrandma

New member
Tara, I don't have anything constructive to add, Kaylee is just now culturing PA for the first time...Just wanted to say that I am sorry you are feeling so sick and tired in battling this damn disease...I hope you can find a suitable mix in all this advice.

(I went back and looked at the pictures of your adorable kids...)
<a target=_blank class=ftalternatingbarlinklarge href="http://tarabelletwins.blogspot.com/">http://tarabelletwins.blogspot.com/</a>
 

kayleesgrandma

New member
Tara, I don't have anything constructive to add, Kaylee is just now culturing PA for the first time...Just wanted to say that I am sorry you are feeling so sick and tired in battling this damn disease...I hope you can find a suitable mix in all this advice.

(I went back and looked at the pictures of your adorable kids...)
<a target=_blank class=ftalternatingbarlinklarge href="http://tarabelletwins.blogspot.com/">http://tarabelletwins.blogspot.com/</a>
 

kayleesgrandma

New member
Tara, I don't have anything constructive to add, Kaylee is just now culturing PA for the first time...Just wanted to say that I am sorry you are feeling so sick and tired in battling this damn disease...I hope you can find a suitable mix in all this advice.

(I went back and looked at the pictures of your adorable kids...)
<a target=_blank class=ftalternatingbarlinklarge href="http://tarabelletwins.blogspot.com/">http://tarabelletwins.blogspot.com/</a>
 

spacemom

New member
About garlic... the Danish 2005 study mentions at the end:

"However, in order to achieve
the garlic-extract dose used for the treatment of the
infectious mouse model, an 80 kg person would have to
ingest 50 whole bulbs of garlic every day! Work is currently
in progress to isolate and characterize the pure compounds
responsible for blocking the P. aeruginosa QS systems."

<img src="i/expressions/face-icon-small-shocked.gif" border="0">

The 2007 study of the Nottingham univ. should be completed by now... <img src="i/expressions/face-icon-small-confused.gif" border="0">
 

spacemom

New member
About garlic... the Danish 2005 study mentions at the end:

"However, in order to achieve
the garlic-extract dose used for the treatment of the
infectious mouse model, an 80 kg person would have to
ingest 50 whole bulbs of garlic every day! Work is currently
in progress to isolate and characterize the pure compounds
responsible for blocking the P. aeruginosa QS systems."

<img src="i/expressions/face-icon-small-shocked.gif" border="0">

The 2007 study of the Nottingham univ. should be completed by now... <img src="i/expressions/face-icon-small-confused.gif" border="0">
 

spacemom

New member
About garlic... the Danish 2005 study mentions at the end:

"However, in order to achieve
the garlic-extract dose used for the treatment of the
infectious mouse model, an 80 kg person would have to
ingest 50 whole bulbs of garlic every day! Work is currently
in progress to isolate and characterize the pure compounds
responsible for blocking the P. aeruginosa QS systems."

<img src="i/expressions/face-icon-small-shocked.gif" border="0">

The 2007 study of the Nottingham univ. should be completed by now... <img src="i/expressions/face-icon-small-confused.gif" border="0">
 

spacemom

New member
About garlic... the Danish 2005 study mentions at the end:

"However, in order to achieve
the garlic-extract dose used for the treatment of the
infectious mouse model, an 80 kg person would have to
ingest 50 whole bulbs of garlic every day! Work is currently
in progress to isolate and characterize the pure compounds
responsible for blocking the P. aeruginosa QS systems."

<img src="i/expressions/face-icon-small-shocked.gif" border="0">

The 2007 study of the Nottingham univ. should be completed by now... <img src="i/expressions/face-icon-small-confused.gif" border="0">
 

spacemom

New member
About garlic... the Danish 2005 study mentions at the end:

"However, in order to achieve
the garlic-extract dose used for the treatment of the
infectious mouse model, an 80 kg person would have to
ingest 50 whole bulbs of garlic every day! Work is currently
in progress to isolate and characterize the pure compounds
responsible for blocking the P. aeruginosa QS systems."

<img src="i/expressions/face-icon-small-shocked.gif" border="0">

The 2007 study of the Nottingham univ. should be completed by now... <img src="i/expressions/face-icon-small-confused.gif" border="0">
 
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