IM sick of CF %*()&@)&%

[anonymous]

I try and try and try and try...day and night eating 500-1000 calories per meal of the day no weight gain im still hovering AT 125 POUNDS its ANnoying if we got enzymes why can't they work as good as the normal ones our body should be making. i mean cmon!!!im 16 and 5'8 and weighing 125 pounds why can't i gain. I feel like i got the opposite of bolimia( spelling or that other eating disorder) i try and try.

nothing happens what is so duffulcult for my body to freaking asorb 7 pound rack of ribs and beans and potatos all in one sitting so my weight shoots to 132 pounds from all that food then 2 week later even with all the heavier eating i do i've gone back down to silly stupid 125 i wanna leave the 20's atleast give me 130 atleast. This is just so annoying ( >_<')

 

[JennaB]

I understand totally. I feel the same way at times. I'm like, I'm doing all these treatments, and still my chest gets tight. Or I get congested. It does get old. Sometimes you just have to scream and complain and get it all out. It does suck.

 

[anonymous]

Ever tried megase?

I've tried eating smaller meals more often lately and it's more comfortable than cramming 1000 calories/meal. I was 80 pounds at age 16. I'm 140 and not much taller now.

Jason 30 w/cf

 

[anonymous]

This is kinda an easy answer with a tough solution. Everyones body reacts differently to their meds, and metabolisms are different. There are also alot of theories that can come into play. Cramming 1000 calories a meal into your stomach may be to much to process at once. Therefor alot is lost. Enzymes tend to miss alot. You also gotta find what your metabloism takes to. I used to eat nothing but healthy food. And would gain weight well. Whenever I ate junk food, I would lose weight. It also depends on how active or in active you are. Are you exercising or playing on empty stomachs, or even on full? You gotta find the best time of exercise after or before eating not to jeaporadize a huge calorie loss. I used to play sports, mainly soccer. I wouldnt eat before the games, then eat huge aftewards. Maybe try spacing eating out to a few more times a day to give your body a consistent intake at all times. Experiment a bit and find what works for you. I know its a pain in the butt. Im 5'10 and been 140 pounds forprob 10 years straight. And i eat horrendously at times. Also, check to see you have no DIOS's, they can hinder weight can signifcantly.

Chad 28/m w/cf

 

[anonymous]

I hear ya!!!<b>Text</b> I too am fed-up with CF! Not so much from a weight stand point, but more from a PFT stand point. For the past 6 weeks I've been working out like crazy (weight traing and 1 hour of cardio 5-6 days every week) eating as much as I possible can, and taking TOBI...all in an effort to get my PFT's back up. I had my appointment Tues and not only did my PFT's NOT got up, but they went DOWN 10% & 14%. I was totally devistated and pissed off!

I just wanted to let you know that I can relate!

Melanie 25f w/cf

 

[Mockingbird]

Chad has a good point. =-) I used to go the route of eating huge meals, too, I wish I had the dietician I had now, she suggested just eating little meals throughout the day. That way, you have more of a chance of processing it all. It might help gain some weight and keep it anyway. =-) It still gets tiring, though, having to eat all the time. Sometimes, I won't eat for an entire day, just for a break. It actually feels good to feel hungry! Of course, I always pay for taking days off like that.

Jarod
23 w/cf

 

[anonymous]

Melanie, you might wanna check to see if you have an asthma component then. All the cardio and fev going down. Ive done that before, thought it was my cf, turned out to be asthma. I went into clinic to have it tested, and sure enough, after exercise my fev went down alost 20%. Took some ventolin, and within 15 minutes went right back to normal.

Chad 28 m w/cf

 

[supermanfan]

I don't know if this has been said yet because frankly I didn't take the time to read all the responses... but you have to remember the pancrease not working proberly is not the only thing keeping you from gaining weight. With CF you body is working harder to keep infections out, and all the food you eat doesn't get a chance to be stored. It gets burned up right way, as energy to fight off infection...

After I had my transplant I started gaining weight, and only because my body was no longer stuggeling to stay healthy. I still take enzymes with food to help in digestion..

 

[anonymous]

Chad (or anyone that knows) -

What are DIOS's?

 

[anonymous]

It is a bowel obstruction. Blocks food from moving through or fecal matter. Can be very painful and fatal if not treated. Im not sure what DIOS stands for but I THINK it means Distal Intestinal Obstructive Syndrome.

Chad 28 m w/cf

 

[ASHLEIGH1228ANTOSZ]

i agree with u i am just about sick of cf too...it seems to me the older i get the more trouble i am havein, i was never put in the hospital until i turn around 20 i am now 21 i have had 4 picklines in the last year and been in an out of the freakin hospital so much when i get sick i dont want to go to my check ups cause its always bad news....i just recently got married and found out i cant have a family and if i were to get pregant i have a chance of worsening my cf.....when i was like 5 they told my mom that the life expectancy was about 13 and then told her 25, so what is it now i am so scared i aint going to enjoy a full life with my husband......<img src="i/expressions/face-icon-small-sad.gif" border="0"> <img src="i/expressions/face-icon-small-frown.gif" border="0"> ohhhh just so u know i was like 90 pounds until i was 18 i finally hit 100 and now i am 120....dont worry u will gain the wieght

ash 21f/cf

 

[Emily65Roses]

Generally, you can count on CF getting worse with time. I was never in the hospital for IV meds until I was 16. Now I go roughly twice a year. As far as not being able to get pregnant, I would look into that more. Most doctors will try to discourage any and all CFers from getting pregnant. But some people still handle it fine. Look into it and do some research. It couldn't hurt to at least check on it.

 

[anonymous]

I know you guys will be ready to kill me but I'm just the opposite. I am 27 years old (female) with CF and I want to take some weight off. I am at 140-145 lbs. and I feel like a heffer. I can't fit into my pants. I have rolls of chub, my butt and thighs have dimples. Not even my face has dimples...just my butt. It's nasty. I want to take some weight off but it's just so hard.

Here is part of the reason, which may help others gain weight. I am on Trazadone 200 mg. at bedtime. It's an antidepressant and it also helps me sleep becuase other wise I' be up all night long. Well this med makes me eat like it's going out of style!!! I typically eat dinner between 6-8 and then I take my meds at 10 or so. Well this med will make me eat an entire meal. Not just a snack...it's like bring on the food. It's crazy. And it makes me so tired that I will literally be eating with my eyes closed because I'm so tired.

But if you want to gain weight and you need an antidepressant, this is the way to go!
Kelli

 

[anonymous]

i'm 28 and 5'8" 131 lbs. i wanted to be a little heavier too but then i realized that extra
weight would make it hard on my lungs so i quit trying to gain weight. now i'm happy
with my weight.